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@sal@brain.worm.pink cover
@sal@brain.worm.pink avatar

sal

@[email protected]

TEN HOUSES FOR EVERY HOBO

No Ethnostates For Anyone

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olena , to actuallyautistic
@olena@mementomori.social avatar

Just noticed that at work I’m getting too close to the screen not in order to see better(in fact, my eyes don’t quite like being that close), but in order to subconsciously help me to focus on a needed thing. Like, the bigger percentage of my viewfield is occupied by the ‘correct’ thing - the higher the chance that I don’t get distracted, especially if the thing is kinda monotonous and the rest of the environment is changing.
I’ve always been scolded for that as a kid, always told that it’s going to impair my vision(which remains perfect), but only now I realized why I actually am doing that

Fellow and other folk with , do you also do that? Does it help?


@actuallyautistic

sal ,
@sal@brain.worm.pink avatar

@ratcatcher @independentpen @olena @actuallyautistic @pathfinder I love being psychotic in your walls while you cry for therapists to come stop me

olena , to actuallyautistic
@olena@mementomori.social avatar

About AuDHD social interactions and inability to stop

A colleague of mine complained that it’s impossible to find sour cream here. I said no, it’s everywhere, it’s just called differently here, check this and that supermarkets, look near the butter.
In the evening, I send them links to the online shop pages of all the varieties of sour cream in every local supermarket chain, and for those which don’t have the online shop, I google images of the varieties sold there and send them also.
Next day, when doing my daily shopping, I see sour cream, and I buy it, and then bring it to the colleague.
Only after seeing the confused expression on their face after giving them the thing, I realize that maybe I may be doing something wrong, and keep the two other varieties in the bag not telling them that I actually brought more.
And I have to tell you that I am actually kinda proud of myself that THIS TIME I was able to notice the expression and actually stop.
Usually I realize I have done something wrong only after they run away and start avoiding me





@actuallyautistic

sal ,
@sal@brain.worm.pink avatar

@olena @actuallyautistic ...what do they call sour cream there??

aetherglow , to actuallyautistics
@aetherglow@translunar.academy avatar

Happy Autistic Pride Day fellow Autistics! @actuallyautistics

Make this a day of relentless, unapologetic Autism!

:Aydan_happy_stim_anim: :AEON_glow: :Akiko_texture_stim: :7_music_stim: :Zeta_primitive_tech:

sal ,
@sal@brain.worm.pink avatar

@winter @actuallyautistics @kranzkrone @aetherglow @Xiong_Shui I am

yawnbox , to actuallyautistic
@yawnbox@disobey.net avatar

can anyone recommend a book about intimacy that takes into account neurodiversity?

@actuallyautistic

sal ,
@sal@brain.worm.pink avatar

@yawnbox @actuallyautistic I'm mostly thinking of fiction examples like An Unkindness of Ghosts
"Hollow" by Mia Mingus and some of the other stories from Octavia's Brood
"Sick Woman Theory," implicitly more than explicitly.

autism101 , to actuallyautistic
@autism101@mstdn.social avatar

I just finished watching the first season of Geek Girl by autistic creator Holly Smale. 💛

Harriet knows she is different, but doesn't yet know the reason why...but we do. 😉

Fingers crossed Netflix has the smarts to quickly green light a season 2.

@actuallyautistic

sal ,
@sal@brain.worm.pink avatar

@autism101 @actuallyautistic thats not a reason thats a description

they decide to call the difference a name and then say the name is an explanation

autism101 , to actuallyautistic
@autism101@mstdn.social avatar

Do you have any clothing routines? I own eight gray plain t-shirts with no tags which I love. I often will just wear them over and over again.

@actuallyautistic

sal ,
@sal@brain.worm.pink avatar

@purplewater @autism101 @actuallyautistic people can do an intervention on me if I try to buy any more maroon sweaters

sal , to actuallyautistic
@sal@brain.worm.pink avatar

@ratcatcher @actuallyautistic
This man told me that disabled COVID deaths were a non-issue that we just needed to get over by 'going to therapy'. 🙃

RE: https://c.im/@ratcatcher/112423014439994833

russellmcormond , to actuallyautistic
@russellmcormond@spore.social avatar

I'm regularly confused why anyone, especially parents of Autistic children, would think ABA (Applied Behavioral Analysis) is a good thing.

Sure, it might make your child compliant at moments when you want to do show-and-tell with your "friends", but you will be generating lifelong trauma.

https://neurodivergentrebel.substack.com/p/neurodivergent-rebels-neurodivergent

@actuallyautistic


sal ,
@sal@brain.worm.pink avatar

@pawsplay @russellmcormond @actuallyautistic So does he have the means to give / withdraw consent to this? Or express whether or not he finds it to be a 'support' at all? Through AAC if not through verbal speech?

sal ,
@sal@brain.worm.pink avatar

@pawsplay @actuallyautistic @actuallyaudhd @russellmcormond Does he have the means to give or withdraw his consent to this particular therapist / program - Through AAC if not through verbal speech?

sal ,
@sal@brain.worm.pink avatar

@pawsplay @actuallyaudhd @actuallyautistic @russellmcormond (AAC Means Augmentative and Alternative Communication.)
https://www.assistiveware.com/blog/how-to-talk-about-aac

sal ,
@sal@brain.worm.pink avatar

@pawsplay @russellmcormond @actuallyautistic
As you're posting this to Autistic groups which tend to be full of experts-by-survival on these programs, I must ask:
Does he have the means to give or withdraw his consent to working with this particular therapist / program - Through AAC if not through verbal speech?

(We tend to be literal communicaters as you know, so if the answer was 'implied' somewhere it wasn't clear.)

sal , to actuallyautistic
@sal@brain.worm.pink avatar

@actuallyautistic @multipledisabilities
Where can I talk with users and get feedback about different AAC options? Asking for a friend

sal , to actuallyautistic
@sal@brain.worm.pink avatar

ok @actuallyautistic and folks be aware this is going on ☢️
I'll add alttext in a minute I'm busy right now

image/png

sal OP ,
@sal@brain.worm.pink avatar

@actuallyautistic
Text is:
A user called Lightning Bjornsson (alts Melanie Bjornsdottir and Malik, admin of umbrellix) writing:

"I successfully made a perfectly good person hate themself (specifically, to say “I’m sorry, whatever i’ve done, I’m stupid. I understand that you don’t want to talk to me any more, I just don’t know why, apart from that I was lewd, and disrespectful, and just a bad fox. I know i’m a bad friend. I’m just sorry, for everything” by the same through-block messaging mechanic I used to insult them, see later in the message) by abruptly blocking them everywhere and then coldly telling them in email that their nickserv account was a source of abuse on our irc network which was why we couldn’t drop it."

"update on hate friend: i think they self-harmed (they mention visiting the hospital) and I'm now acting in email like we've never spoken.
I'm committed to the bit, pretending we have zero record of ever having spoken to them and that they're banned for common abuse of NickServ registrations. If I come clean, I doubt they'd want to, even as they give this song and dance of wanting to reconcile."

sal OP ,
@sal@brain.worm.pink avatar

@actuallyautistic

Image: Another post from user called Lightning Bjornsson (alts Melanie Bjornsdottir and Malik, admin of umbrellix) reading:
"So, after teaching them how to make sourdough bread, I've decided to play a practical joke. When this person emails me, they'll get a fake bounce. I'll still see their message, but it will look like my mailserver bounced it."

They then wrote:
"update: because of the email prank's effects on them, they are now taking their sedative they take PRN for anxiety, in context of a higher dose of their antidepressant
i have told them to call 999."

eo , to actuallyautistic
@eo@dads.cool avatar

"high functioning autism" is basically bulimia for executive functioning.
What do you think about this analogy, @actuallyautistic?

sal ,
@sal@brain.worm.pink avatar

@Selena @melindrea @filmfreak75 @eo @actuallyautistic so do I have this right that u want to base your inclusion and 'opportunities' on distancing ur self from 'slower' ppl?
I mean please lmk if you mean something else

pathfinder , to actuallyautistic
@pathfinder@beige.party avatar

@actuallyautistic

I once wrote about how it was not unrealistic, to think that there was no such thing as an un-traumatised autistic. About how so many of us have known bullying and persecution simply for being different. Not even always for what we may have said or done, but often for simply standing out; in all the ways that we didn't even know we were. How just simply being, was so often an excuse to be attacked or punished. That our very existence, even as hard as we tried to mask, whether we knew that was what we were doing or not, was the cause of so much pain.

All the scars we carry from misreading situations. Or from believing in something, or someone, and being burnt as a consequence. All the times we've tried to stand up for ourselves, or as often as not for others, and been dismissed and ridiculed. All the misjudgements and disbelieve and times when our intent and purpose have been seen in the ways that were never, ever, meant. The sheer inability for others to see us as we are, or to judge us accordingly. But, always to seem to want to see the worst and to base everything else on that.

But the more I learn and understand about being autistic. The more I realise that so much of my trauma and the scars that were left, came not just from this overt pain, but from the covert well-meaning of others as well. From my parents and relatives, from friends and teachers. From all the advice and instruction I have received over the years that was meant to shape me in the right way. As a child, to teach me how to grow up, how to behave and act. What was expected and what wasn't. And then, as an adult, how I was supposed to be and how a successful life, with me in it, was supposed to look. All the rules I was supposed to learn, all the codes I was supposed to follow. How to act, how to speak, what to feel, when to feel it. What I was supposed to do and how I was supposed to be.

Not in any unusual way. Not in any way that you weren't supposed to raise a child, well a normal child anyway. That's what makes this so covert. If you were trying to do this to a child knowing that they were autistic, then it's overt abuse. It is ABA, it is infantilising and punishing a child for always failing to become something, that they had no more chance of becoming than a cat has of becoming a dog. But for those of us who didn't know we were autistic. It was simply the constant hammering of the world trying, without even realising it, to fit a round peg into a square hole and all the pain and disappointment that came from their failure to come even close.

For me, what made this worse, was that it wasn't as if I didn't know that I was different, not in my heart, but that I thought that I shouldn't be. That I should be able to learn what I was being taught, that I should be able to follow the guidance. That I wasn't any different really from anyone else and so if I failed to act in the right way, or react the way I should, for that matter, then it was my fault. All the patient sighs and familiar looks, simply became just another reinforcement of my failure. Even being told off for the simplest things, became a reminder that something that I should have been able to do, was beyond me and always for the only reason that ever made any sense; that I was broken, that it was my fault somehow.

Is it any wonder that so much of my life has been about trying to justify myself in the light of this, of trying to become that "good dog". Of judging myself against an impossible standard. A constant lurching from one bad to choice to another, and always because I thought they were the right ones. And for each new failure and inability to even come close, another scar, another reminder of what I wasn't. Further proof that my self-esteem was right to be so low. Of how I was such a failure and a bad person. That I was never going to be a proper son or brother or friend. Because I couldn't even be what I was supposed to be, let alone what I should become.

Looking back, I can't help thinking about how much of my life I spent living this way; of trying not to repeat the sins of my past. Of not repeating the actions or behaviour that led to those past failures and trauma. Of, in fact, all the effort I put in to not being myself. Because that, I realise now, was what I was trying to do. I was that round peg and trying to hammer myself into the square hole. Because everything I had learnt had taught me to think that this was how I had to be. That this was how you grew. And in so many ways, I can't help feeling angry about this. About the wasted years, about the scars I carry that were never my fault. About the way I was brought up, even though none of it was ever meant, but only ever well-meant.


sal ,
@sal@brain.worm.pink avatar

@pathfinder @glen @Tooden @actuallyautistic Neither 'explains' anything, they're subjective descriptors of observed behavior (as filtered through the medical profession's values and biases) not explanations of causes. There's no Platonic Ideal 'right answer' to find.

ScriptFanix , to actuallyautistic
@ScriptFanix@maly.io avatar

Check my girlfriend's gift for my birthday
@actuallyautistic

sal ,
@sal@brain.worm.pink avatar

@ScriptFanix @actuallyautistic Aus Krankheit Eine Waffe
Machen!

bananamangodog , to actuallyautistic
@bananamangodog@aus.social avatar

Can anyone point me in the direction of persons pursuing self-sufficient lifestyles? The could be mental, physical, or other and the self-sufficiency could be from a , or perspective.

Looking for social media accounts, books, blogs, youtube or people doing this kind of thing outside of modern socials that would be happy to have a conversation about it.

@permacultre @mecfs @actuallyautistic

sal ,
@sal@brain.worm.pink avatar

@KitMuse @bananamangodog @permacultre @mecfs @actuallyautistic Vandwllers Forum is a good space for this!

Also have you seen https://howtogeton.wordpress.com/ ?

Dr_Obvious , to actuallyautistic German
@Dr_Obvious@chaos.social avatar

@actuallyautistic
Does anybody have a solid scientific ressource that HSP is autism with a stigma free lable?

I think I read something in the past, but can't recall it.

First thing I just read about differences between the two is so funny. "Autism is like that, HSP is also like that, but we frame it differently, so it's different!"

sal ,
@sal@brain.worm.pink avatar

@Dr_Obvious @actuallyautistic Ultimately, if someone identifies that way, it's no one else's business, the term "autistic" too was coined by racist eugenicist doctors, and just by taking it on we don't necessarily gain any "superior" self-knowledge.

NightlyBye , to actuallyautistic
@NightlyBye@gaypirates.club avatar

@actuallyautistic folk, has anyone watched this? I'm a little skeptical because once again in the description we get "autistic or learning disabled" people, and while this isn't about providing services it maybe does perpetuate this notion that we all have the same needs (especially as this is, in the BBC's words, for Autism Acceptance week). But I adore Michael Sheen and I am definitely intrigued by the concept.

https://www.bbc.co.uk/programmes/m001xyj5

sal ,
@sal@brain.worm.pink avatar

@NightlyBye @actuallyautistic Why does that description make you suspicious?

sal ,
@sal@brain.worm.pink avatar

@arth @actuallyautistic @NightlyBye Honestly hearing people (who ID as autistic) say that seeing something being made by/about Autistic&ID people makes them "skeptical," is super discouraging - it leads me to expect low-support-need-supremacist treatment. Or an identity based around high functioning-ability / masking-ability and distance-from people who couldn't do mainstream school or work. (sometimes even using "ND" as a shorthand for "autistic" and no one else.) Though I try not to assume that's what's going on.

sal ,
@sal@brain.worm.pink avatar

@NightlyBye @actuallyautistic Really, I just want to know that you don't feel the MAIN way society is wrong about Autists is that "lots of us AREN'T like Those People who need home aides and have big meltdowns and are always making weird noises and can't talk." Really I am trying to hold out some hope here.

lifewithtrees , to actuallyadhd
@lifewithtrees@mstdn.social avatar

Question for the @actuallyadhd and potentially @actuallyautistic

I am someone who gets migraines and have since I was 8. The reason was never uncovered, but I know migraines are more common among neuroduvergent folks like myself.

My question for you is this:

When you have pain, what do you do to help manage it so your emotional regulation goes out the window?

In short, I can be mean when I am in the midst of migraine.

I want to do better.

Any advice?

sal ,
@sal@brain.worm.pink avatar

@lifewithtrees @actuallyadhd @actuallyautistic I stopped talking to my parents and also started eating meat again and both those things seemed to make most of my migraines go away.

Also migraine is neurological and the nerves in the gut often cause some partial gastroparesis during migraine episode, so anything to get the digestion going again, bitters, coffee, hot spicy broth, easier-to-digest foods, or just waiting to eat until the worst of nausea passes.

Dr_Obvious , to actuallyautistic German
@Dr_Obvious@chaos.social avatar

@actuallyautistic
I read a statement from @Ap_Saegge on a different platform that a very high IQ should be considdered as a disability. The reasoning was that it's so often correlated with different kinds of ND.
But I found it on it's own funny and true.

If you say or do something smart you get reactions. First of all, no matter what direction, they have the tendency of othering. There are sometimes negative reactions from people being intimidated.

sal ,
@sal@brain.worm.pink avatar

@Dr_Obvious @actuallyautistic @Ap_Saegge IQ results mostly just correlate with innoculation in White Protestant upper-class culture (that's by the design of IQ tests) and income / ZIP code corresponding to either better-funded schools or privileged access private education and tutoring.

ImmedicableME , to actuallyautistic
@ImmedicableME@mastodon.online avatar

Just shared two major lists of autism traits in females with someone who is wondering if they’re autistic and crying as I reread all of the things that led to me pursuing an autism diagnosis at age 48, you know, as one does. These lists literally changed my life.


@actuallyautistic

https://the-art-of-autism.com/females-and-aspergers-a-checklist/?subscribe=success#subscribe-blog-blog_subscription-2

https://taniaannmarshall.wpcomstaging.com/2013/03/22/moving-towards-a-female-profile-the-unique-characteristics-abilities-and-talents-of-young-girls-with-asperger-syndrome/?amp=1

sal ,
@sal@brain.worm.pink avatar

@krafty @ImmedicableME @actuallyautistic Not to worry there's no evidence that they're actually more or less common in men versus women. The main reason for the diagnostic gap is doctor's biases and preconceptions clouding their perceptions, not essential differences between how the genders actually think or act.

sal ,
@sal@brain.worm.pink avatar

@krafty @ImmedicableME @actuallyautistic (Show 100 people a video of the same baby - tell 50 of them it's a boy, and tell 50 of them it's a girl. Same baby, same video, but suddenly their descriptions of the behavior change wildly.)

18+ MnemosyneSinger , to actuallyautistic
@MnemosyneSinger@kolektiva.social avatar

@actuallyautistic

Does it help you with autistic things? How so?

For me it not only helps with pain, anxiety, and depression but it also seems to help me interacting with people and with what I think might be selective mutism.

Example, I went to the dentist three times since November. The first two times, besides being a sensory nightmare, I was unable to speak more than two words to the dentist. The third time, I smoked some cannabis before the appointment and was better able to cope with the lights and sounds, be polite to the dentist, and thank her for recommending a water flosser.

Before that I had been going back and forth on whether I am autistic but on the way home from that appointment I had the realization and the dots all connected: the rarity of me interacting with people unless I have to because of difficulty talking, my dislike of phone calls for the same reason, my borderline agoraphobia and dislike of cars both having to do with sensory hypersensitivity, the fact that I am so much better at communicating in writing than in person because I have more processing time, the list goes on. It just all clicked at once, I think another effect of the cannabis being the ability to see the big picture not just the details.

People look down on stoners and have all kinds of misconceptions about it but honestly, I would use it every day if I could. It helps me so much.

Anyway, I can't be the only one. In my state, autism is on the list of qualifying conditions for medical cannabis. So, I'm curious. How about you?

sal ,
@sal@brain.worm.pink avatar

@aprilkirby @moh_kohn @MnemosyneSinger @actuallyautistic I get the opposite over here, it's the hyperbolic what-if-ification of everything, in a kind of awful dissociative way.
Love acid though.

ScruffyDux , to actuallyautistic
@ScruffyDux@fosstodon.org avatar

@actuallyautistic I would like to politely request that well meaning people stop saying autism is not a disorder, only a difference.

It's incredibly alienating for those of us who do in fact have disordered nervous systems causing disability and suffering, not as a comorbidity, but directly because of autism.

Do you know how hard it is to be physically crippled by autism, but no Dr can treat you because you're uncommon? Then for other autistic people deny your disorder exists is heartbreaking.

sal ,
@sal@brain.worm.pink avatar

@ScruffyDux @actuallyautistic Yeah and when people say that they often follow it up by treating higher-support-needs autistic people or more "visibly" autistic people as "negative stereotypes" instead of ... recognizing them as the people who fought the hardest for autistic liberation because they're the most heavily targeted by institutional abuse.

Terry_QQ_Jones , to actuallyautistic
@Terry_QQ_Jones@blacksun.social avatar

@sal @actuallyautistic @nddev @sebwhatever @onisillos @neuralex

Sure, I do agree.

But be wary that the theist agendas include the fact that these people are willing to be dishonest about most anything, or all wrong things. Crimes.

"Religion is regarded by the common people as true, by the wise as false, and by the rulers as useful." -- Lucius Annaeus Seneca

sal ,
@sal@brain.worm.pink avatar

@Terry_QQ_Jones @actuallyautistic @nddev @sebwhatever @onisillos @neuralex deleted because IDK even what claim you're making here

halcionandon , to disabilityjustice
@halcionandon@aus.social avatar

plz Situation worsening.😔

Are people broke? Cutting on essentials. Can’t afford to eat?

Then why not try helping others?:

I’m fleeing and Denied basic needs for years.

If anyone wants to take me in & be my you’re welcome to help.
I am but you really just need to do basics around a normal day. Bring me some food. Throw on some laundry.

It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances. If you’ve got your own , even better.

I have some emergency savings to get going. Can sort something out.

In , .

Might even consider moving states. Nobody here been keen to help so far.

The agencies and orgs don’t help disabled people. Tried them all. It’s been years.

risk

@disabilityjustice
@disability
@mecfs
@mutualaid

sal ,
@sal@brain.worm.pink avatar

@halcionandon @disabilityjustice @disability @mecfs @mutualaid Hi are you able to see my messages? IDK if there is an issue with federation. I am not in australia but might be able to connect u w some folks there?

rebekka_m , to actuallyadhd
@rebekka_m@fnordon.de avatar

For people that are not @actuallyadhd the common medication feels different that for those who are - non ADHDers feel like on Coke, very energetic and highly vibrant, similar to using Speed, while ADHDers tend to get calm and focused, able to concentrate at all.

Question [I haven't googled yet]: What is it with antidepressants - if people without a depression take those, do they feel LOTS happier than ever or something different?

Or do you know sth. about this, @actuallyautistic?

sal ,
@sal@brain.worm.pink avatar

@rebekka_m @actuallyadhd @actuallyautistic I was given antidepressants when suicidal but not depressed - on the assumption that it must be depression and not other factors causing my suicidality, although I was in fact quite explicitly clear about the factors actually causing it - no, they did not make me happy.

Many people regardless of neurology may experience calming effects from stimulants, depending on things like dosage and tolerance. People who experience 'ADD' or similar may also get more stereotypical 'speedier' effects depending on same.

sal ,
@sal@brain.worm.pink avatar

@rebekka_m @actuallyautistic @actuallyadhd Yes.

Except, I don't mean "similar," I mean "identical," at least if we're using "speed" to mean amphetamines, since we're talking about people taking drugs that are amphetamines.

This excerpt is from https://www.nytimes.com/2012/01/29/opinion/sunday/childrens-add-drugs-dont-work-long-term.html

sal ,
@sal@brain.worm.pink avatar

@rebekka_m @actuallyautistic @actuallyadhd Also
https://www.nature.com/articles/1301164
&
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3489818/

It's known that ADD DX does not exclude someone from being able to get "high" effects off of prescription amphetamines, and this is one of the reasons doctors will prescribe "slow-release" vivanse to prevent these users from being able to get more "high" off them.

(Of course I do not agree with their moralism against people taking drugs to get high.)

And re: antidepressants:
https://www.psychologytoday.com/us/blog/insight-therapy/202207/depression-is-not-caused-chemical-imbalance-in-the-brain
&
http://cepuk.org/unrecognised-facts/myth-of-the-chemical-imbalance/

18+ wordswithnima , to actuallyautistic
@wordswithnima@writing.exchange avatar

if you're someone who found out you're autistic as an adult and have since taught yourself to unmask, what are some of your favourite/go-to stims?

@actuallyautistic

sal ,
@sal@brain.worm.pink avatar

@wordswithnima @actuallyautistic what about people who were DX'd as kids and trained/pressured/groomed to mask?

sal , to actuallyautistic
@sal@brain.worm.pink avatar

@actuallyautistic
https://edinstitute.org/blog/2012/10/31/bingeing-is-not-bingeing

Tim_McTuffty , to actuallyautistic
@Tim_McTuffty@beige.party avatar

Diary of an ASD Squirrel. Day 86 Monday 22/01/24

TL:DR Project WOOF is back up & walking ! ; Bit of gaming, bit of house elfing, tiny bit of eating.

Got a decent night’s sleep, even though I was up for an hour around 1am.

Road tested the new trousers this morning, a couple of laps around my favourite short walk, puffing & panting like a 90 year old , while chatting to CDP 🧚‍♀️, who I think thought I was about to keel over 😆

Did a load of chores when I got home.

A couple of hours on ESO helped passed the day then some solo stuff.

Used up a can of beans that were somewhat past their BBF date for my tea - maybe 500 kcals with the bread n butter , hey what doesn’t kill yer makes yer stronger !

Final Thoughts.

Ok Project WOOF is officially back on the road ! 717kcals used , 55 minutes exercise,7k steps across 3.5 miles. Yay.

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic

sal ,
@sal@brain.worm.pink avatar

@PixysJourney @Tim_McTuffty @actuallyautistic https://edinstitute.org/blog/2012/12/21/food-fears-i-food-family-and-fear

EmilyMoranBarwick , to actuallyautistic
@EmilyMoranBarwick@mastodon.social avatar

To my fellow or otherwise folks…

I would appreciate any tips on how to use Mastodon without it causing overwhelm/getting lost in it.

🧠My blend of has a REAL hard time with this kind of platform (never got Twitter either), but I’m drawn to the community & connection here.

I’m like instantly a confounded 105-year-old when it comes to Mastodon/Twitter 🙃

Ps - I’ve seen @actuallyautistic but not clear how that even works

sal ,
@sal@brain.worm.pink avatar

@SophiaFree @EmilyMoranBarwick @actuallyautistic So I think for one thing this way majorly overestimates the knowledge / expertise doctors are working with here. Really "testing" is a misnomer in this case - they're looking over assessments that you can look over yourself without a doctor, there are no 'labs,' no scans, just a doctor's opinion on your personal experience that you yourself inevitably know far more about than they do. Also the autism dx has no 'explanatory' power - ie is not to distinguish "this presentation, stemming from this biological cause" from "this same presentation, stemming from different biological cause" - but is only a subjective umbrella term to describe a loose and broad cluster of experiences regardless of cause.

See
https://thenewinquiry.com/book-of-lamentations/
and
https://www.sciencedaily.com/releases/2019/07/190708131152.htm

If this is your first time encountering Mad liberation perspectives or survivor / ex-patient oriented self-concepts I'd also check out the work of Mel Baggs, Bonnie Burstow, and Irit Shimrat.

alexisbushnell , to actuallyautistic
@alexisbushnell@toot.wales avatar

Me, an human, "omg why does this flannel smell so strong? It's like it's been soaked in perfume. How has it got such a strong smell? WTF?"

@Uselessgeneration (an allistic/ADHD human) "...it just smells of wet flannel."

@actuallyautistic

sal ,
@sal@brain.worm.pink avatar

@alexisbushnell @Uselessgeneration @actuallyautistic a lot of laundry detergents smell offputting to me, I like to use the unscented ones

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

Do my comrades have a carb addiction?

If so, you’re not alone.

Do you find that carbs regulate you? Or dysregulate?

@actuallyautistic

sal ,
@sal@brain.worm.pink avatar

@theautisticcoach @actuallyautistic No those are what's called a vital macronutrient for human life and referring to eating habits as an addiction is the kind of restriction mindset that we're all better off free from

orangegoldgreen , to actuallyautistic
@orangegoldgreen@neurodifferent.me avatar

The phrase "burnt out former gifted kid" has always given me the ick, but there are unique challenges/issues/traumas related to that experience that tend to come up in discussions and I've never encountered a good description.

Proposal for a slightly less icky alternative:
✨ burnt out former high achiever ✨

@actuallyautistic @autistics

sal ,
@sal@brain.worm.pink avatar

@joshsusser @orangegoldgreen @actuallyautistic @autistics Both are real phenomenon for some people - the issue isn't w/ what language u use for yourself that's personal choice - the question is how you treat the burnout & neglected needs of people who are socially considered low-functioning or high-support-needs etc

obrerx , to actuallyautistic
@obrerx@neurodifferent.me avatar


@actuallyautistic

Whew... while I was quietly sitting in my apartment: loud, pounding footsteps coming up outside stairs, then a sudden and loud attempt to come in my front door, no knocking, but the door was fortunately locked. I look out my kitchen window and see two men.

I'm so shocked by this I go into a reaction mode (I'm that way lately, very shut down and withdrawn) and I loudly ask them why they tried to come in without knocking, and this becomes, initially, an argument.

Turns out someone had died. They were entering to find the body, but entered wrong apt. I explained to them, regardless of situation, always knock.

Anyway... taking deep breaths. Another day of being very environmentally sensitive in an aggressive insensitive world.

They ended up apologizing, and I apologized as well (even though I was right, but that's me trying to bridge across to their world), and the left.

And of course I sit here feeling I once again overreacted and "should have been more calm".

Self-gaslighting is awful.

sal ,
@sal@brain.worm.pink avatar

@obrerx @actuallyautistic Holy shit that's terrifying. Nah overreacting would have been if you were one of those "Stand Your Ground" assholes who shot a gun at them or something, verbally telling someone to fuck off is the exact right response when they do something like that out of the blue with no warning or explanation.

SeattleSanchez , to actuallyautistic
@SeattleSanchez@social.ridetrans.it avatar

My mind has been obsessed with this video all day! So well laid out how our two parties became one since the 80s and 90s.
https://www.tiktok.com/t/ZPRc1uouD/
@actuallyautistic

sal ,
@sal@brain.worm.pink avatar

@mdylanbell @SeattleSanchez @actuallyautistic Forced concessions in order to maintain a voting block isn't the same thing as that, also instead of speculating about what they 'really want' we can learn a lot more from looking at what economic class they themselves belong to

sal ,
@sal@brain.worm.pink avatar

@mdylanbell @SeattleSanchez @actuallyautistic No

sal ,
@sal@brain.worm.pink avatar

@mdylanbell @SeattleSanchez @actuallyautistic Also there is no such thing as helping all classes

sal ,
@sal@brain.worm.pink avatar

@mdylanbell @SeattleSanchez @actuallyautistic Ok sure whatever u say nationalist
https://www.indigenousaction.org/voting-is-not-harm-reduction-an-indigenous-perspective/

sal ,
@sal@brain.worm.pink avatar

@veirling @mdylanbell @SeattleSanchez @actuallyautistic Right and also we can see that these people are ruling-class partisans first and party partisans second, in that they stopped the democratic voting process from happening in the primaries so they could personally hand the 2016 candidacy to Clinton knowing full well she'd likely lose because Sanders running would have threatened their financial interests - they decided either a Clinton OR Trump presidency would be far preferable to them rather than a D victory under someone who wasn't aligned with their ideological platform. Their party lost but their class won.

ScruffyDux , to actuallyautistic
@ScruffyDux@fosstodon.org avatar

@actuallyautistic Has anyone encountered any quality research or theories as to the cause of hypotonia in ?

I've seen brief mention of links to metabolic dysfunction but with little to no detail on specifics.

sal ,
@sal@brain.worm.pink avatar

@ScruffyDux @actuallyautistic Not research, purely anecdotal: when I went to Phy Therapy after an injury, Phys Therapist kept saying move [this way] without [moving that way] and I could not at all understand the difference between those two things...

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