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sarahmatthews , to disability
@sarahmatthews@tweesecake.social avatar

I’ve written some thoughts on Blind Spot: Exploring and Educating on Blindness by Maud Rowell, a short book that packs a punch! These essays are so insightful, writing about issues I’ve been thinking about recently in a far more eloquent way than I could ever manage #BookReview @bookstodon @disability
https://app.thestorygraph.com/reviews/84af5c9d-cede-4358-9941-9651cc1497c9

tomkindlon , to disability
@tomkindlon@disabled.social avatar

Ancient Greek word of the day: κακοθερής (kakotherēs), unsuited to endure summer heat (literally, bad at summer).

My thoughts are with those with conditions such as ME for which this is relevant.

Hashtags:
@longcovid
@chronicillness
@spoonies
@disability
@mecfs

halcionandon , to disability
@halcionandon@disabled.social avatar

Some advocates I’ve been in contact with in the past have discriminated again me because am disabled (& have functional limitations).

What we’re they expecting? That’s why I need their help!

We don’t have enough people in the social welfare system and some that we do have are extremely dodgy (some are fantastic but they have years long waiting lists or charge unaffordable fees). Where does that leave people that need help? Where I am, if not worse.

@disability
@disabilityjustice

halcionandon , to disability
@halcionandon@disabled.social avatar

Still really need an . The orgs are all still full in my catchment and will be in the foreseeable future.

If anyone out there can help, please let me know.

🙏

@socialwork
@socialworkers
@mutualaid
@chronicillness
@disabilityjustice
@disability

appassionato , to bookstodon
@appassionato@mastodon.social avatar

Disability Intimacy: Essays on Love, Care, and Desire by Alice Wong, 2024

The much-anticipated follow up to the groundbreaking anthology Disability Visibility: another revolutionary collection of first-person writing on the joys and challenges of the modern disability experience, and intimacy in all its myriad forms.

@bookstodon



kerstinsailer , to disabilityjustice
@kerstinsailer@sciences.social avatar

Pure brilliance and so much empathy in this piece by @martinruecker on (as well as ) sufferers
https://www.martin-ruecker.com/anna-and-the-beast

As Martin normally writes in German, this is something for the English speaking community as well

@disabilityjustice

meganL , to disability
@meganL@mas.to avatar

Just a reminder that organized religions are full of such good people that they successfully lobbied to get themselves exempted from the Americans with Disabilities Act. So as hard as it is getting secular ableist workplaces to obey the law, religions got themselves an exemption.

Don't work for them.

https://www.reddit.com/r/disability/comments/1d48vd3/i_got_fired_today/ @disability

AceyAngel , to actuallyautistic
@AceyAngel@disabled.social avatar

Looking to support a fellow Autist whilst navigating your own ASD journey?

I invite you to follow my Autistic Diaries Blog!

I share insight on my own personal experiences as a Chronically ill Autistic person. My life, my diagnosis, and some information about Autism and my chronic illnesses (Coeliac and Graves', as well as POTS, and other conditions)

https://buymeacoffee.com/addriannawa/welcome-my-autistic-diaries-blog

@actuallyautistic

servelan , to actuallyautistic
@servelan@newsie.social avatar
ucaccessnow , to academicchatter
@ucaccessnow@sfba.social avatar

A mistake many people make is thinking that ADA can only be met through offices of rationing & policing. No. That is how the ableists running UC choose to deny accessibility as the default and make ppl have to beg & eventually sue for accessibility.

Pushing for more funding for these offices is still granting their premise that doing things this way is being accessible to the public that funds UC. It isn't. @academicchatter

https://dailybruin.com/2024/02/02/its-just-a-fact-understaffed-cae-office-fails-to-meet-students-needs

meganL , to disability
@meganL@mas.to avatar

"(Stella) Young coined the term “inspiration porn” to describe how describing disabled people as 'inspirational' can be objectifying."

https://19thnews.org/2024/05/jennifer-wexton-speech-congress-voice-app-disability-conversation/ @disability

mcdutchie , to disabilityjustice

@EU_Commission: “EU-wide access to support and assistance: ❌ Not a EU competence”

Also @EU_Commission: “EU-wide and of people: ✅ Totally a EU competence, let's do it!"

https://edf-feph.org/blog/the-no-competence-fallacy/
by Florian Sanden of the European Network on Independent Living

@disabilityjustice

kshernandez , to blackmastodon
@kshernandez@me.dm avatar

Hey, y'all! Need to get some food in the house, asap. I'm out. I need at least $100, to start, of this goal to make delivery worth it(I don't drive). Which turns out to be more like $80 in food after fees.

At $70 now!

Every dollar and share matters and is appreciated. @disability @blackmastodon @blackfedi @poetry please help amplify?

tomkindlon , to disabilityjustice
@tomkindlon@disabled.social avatar

UK Government Open Consultation
“Modernising support for independent living: the health & disability green paper”

Article with links
https://www.gov.uk/government/consultations/modernising-support-for-independent-living-the-health-and-disability-green-paper

The government has published a series of documents including a Green paper & evidence pack

@disability @disabilityjustice
@chronicillness @spoonies

1/

tomkindlon OP ,
@tomkindlon@disabled.social avatar

2/

There is consultation questionnaire about whether assessment for PIP should be based more on a diagnosed condition or on its functional impact; about the need for assessment and review for awarding PIP, and how to assess fluctuating conditions.


@disability @disabilityjustice @chronicillness @spoonies
@mecfs

kshernandez , to writingcommunity
@kshernandez@me.dm avatar

Happy frens!!

What y'all doin today?

Me? I plan on coffee'ing, , , thanks for life.

Praying fervently for my siblings in justice who are to be out there on the Frontline fighting for liberation.

God be with us all. 💞🫂

@disability @poetry @writingcommunity

video/mp4

tomkindlon , to disabilityjustice
@tomkindlon@disabled.social avatar

People with disabilities including a woman with ME complaining about how they have been treated by the Welsh health service

https://www.bbc.com/news/uk-wales-68891090

@chronicillness
@spoonies
@disability
@disabilityjustice
@mecfs

ucaccessnow , to disability
@ucaccessnow@sfba.social avatar

AAPD's 2024 NBCUniversal Tony Coelho Media Scholarship application period just opened up.

Check it out if you're disabled and majoring in media, communications, or adjacent subjects.

https://www.surveymonkey.com/r/2024nbcuaapd

@disability

weirdwriter , to romancelandia
kshernandez , to disability
@kshernandez@me.dm avatar

Hey everyone. At $150/$250 to finish out my week's rent, to keep me safe. 2 days late. Please use PP/V for urgent access to funds, avoid late fees, houselessness and generally more misery. @disability @mutualaid fam please amplify?

https://paypal.me/kshernandezinc

https://t.co/vYy8B84lt3

Every dollar counts! Grateful for every dollar, share, prayer. https://me.dm/@kshernandez/112321327762220677

meganL , to disability
@meganL@mas.to avatar

Showering in my van as a wheelchair user + public shower horror stories | VANLIFE |

https://www.youtube.com/watch?v=HmEhpVhvoGc @disability

meganL , to disability
@meganL@mas.to avatar

Are there places in the Fediverse where folks who are longtime disabled (i.e. having done some of the work of dismantling their internalized ableism) who are into pan-disability activism are hanging out exchanging ideas and tactics?

Most of what I see is discussion within silos of one's own disability group (ME, blindness, autism, etc.) and or COVID discussion [all of which is great, but I'm looking for more pan-disability stuff to supplement]

@disability

meganL , to disability
@meganL@mas.to avatar
halcionandon , to disabilityjustice
@halcionandon@aus.social avatar

Can people PLEASE help me contact / /places of worship/ community groups & ask if they can help me find somewhere to live? If one can’t then they are affiliated with others that might and can ask people in their congregation. Put a plea on their message board irl or Facebook/ whatever online presence they have.

I am living with abuse /neglect and can’t do this anymore.

You don’t have to be in . Search for help in area. Search the . Anywhere.

Ask your place of if you have one.🙏

None of the orgs I‘ve been referred to help people with or
(Orange Door, Safe Steps I’ve tried them all.)

Please help.

@multipledisabilities @disabilityjustice
@socialwork
@mecfs
@mutualaid
@WythenshaweMethodists

halcionandon , to disability
@halcionandon@disabled.social avatar

Can people PLEASE help me contact / /places of worship/ community groups & ask if they can help me find somewhere to live.

Don’t have to be in . Search for help in area. Search the . Anywhere.

Ask your place of if you have one.🙏

None of the orgs I‘ve been referred to help people with or
(Orange Door, Safe Steps I’ve tried them all.)

I cannot live like this anymore.

@chronicillness @mutualaid
@disability

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