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DoctorDisco , to random
@DoctorDisco@mendeddrum.org avatar

My wife and I had the "Friends" talk again today.

We're both getting on in years. She's older than me and she's worried that if she goes before me (not imminently.. 20 to 30 years at least I hope) I'll be on my own without friends.

I keep telling there's a difference between being lonely or being alone.

I don't really have a social life outside of my wife and her friends (and I consider them HER friends rather than mine) but that's fine for me

DoctorDisco OP ,
@DoctorDisco@mendeddrum.org avatar

The whole conversation was triggered by me saying I had planned a cycle route up around our old stomping ground of Dulwich.. and my wife suggested I call in to visit a "friend of ours"

I told her I really wouldn't feel comfortable calling on them without her present as I considered them more her friend than mine and that I was only "friends by association" which triggered the whole "who do you consider friends?" Conversation which led to the "im worried about you being lonely" chat

olena , to actuallyautistic
@olena@mementomori.social avatar

I don’t have nostalgia. I don’t miss places. I may remember them vividly, and love something about them, and hold it dear in my heart, but when I leave - I don’t want to come back.
Actually, I feel rather bad if for some reason I have to. Because the place has already changed. Because I have already changed. Because we’re out of sync now(if we ever were). Because I don’t belong. And seeing that hurts actually way more than just not returning.
Maybe it has something to do with the lack of object permanence. Maybe it is more about that autistic refusal to accept the reality which differs from expectations. Inside, I feel like a kid having a meltdown in the middle of the shopping mall because the toy they got was not 100% what they imagined it was going to be. No place is what you remember when you return after leaving. Maybe that’s the reason.

Is it something other people also experience often? Do you feel nostalgic often or refuse to get back?




@actuallyautistic

luckytran , to random
@luckytran@med-mastodon.com avatar

UPDATE: NY Governor Kathy Hochul said on CNN last night that she is considering a ban on masks.

This is absolutely shameful! New York has suffered so much from COVID, and COVID is not over. We should be normalizing and depoliticizing masks, not banning them.

Source: https://www.governor.ny.gov/news/icymi-audio-rush-transcript-governor-hochul-guest-cnn-laura-coates

Ilovechai ,
@Ilovechai@sciences.social avatar
DivergentDumpsterPhoenix , to neurodivergent
@DivergentDumpsterPhoenix@disabled.social avatar

Last month I surveyed 2,750 people on their language preferences surrounding autism. The first set of results has been published, and compares Autistic and non-Autistic preferences

Find it here-

https://emergentdivergence.com/autism-language-preference-survey-2024/

@neurodiversity @neurodivergent @actuallyautistic @autisticadvocacy

BZBrainz , to actuallyautistic
@BZBrainz@mastodonbooks.net avatar

@actuallyautistic
@adhd

What have I learned today? The internet may roast you for using inexpensive and in the same sentence. 😅

With that said, any or adults have experience living in a micro apartment? What was it like for you?

I’ve spent a few hours reading news articles and subreddits—and I’m still thinking about it.

olena , to actuallyautistic
@olena@mementomori.social avatar

Everytime I stand in front of the door and frantically search for the keys in my bag, all that makes me panic, pushes me to the verge of tears - even though it is not such a big deal because I’m not in a hurry and if anything, the concierge has a spare pair.
So, naturally, my brain tries to compensate for a possible fail - and every time I walk home, I feel almost unbeatable urge to get my keys out of my bag to my hand when I am still like 200 meters from home.
I suppose, it’s the same overcompensation mechanism that makes me come to airport at least two hours before the departure and to a train station at least an hour before, buy spares of essentials each time a bottle starts feeling not full, or always have a stocked pantry(though there may be multiple of ones and none of others as I always forget to check what I have before going to the store)

Is this exaggerated(to the point of creating problems) ‘better safe than sorry’ something people are more prone to? Do you guys also do that?
@actuallyautistic

xarvh , to random
@xarvh@functional.cafe avatar

Two different psychs now told me I have "autistic traits" significant enough to have fucked my life.
I'm functional enough that I don't qualify for state help, and won't be able to afford private care for a while, so I have to DIY.
Could anyone recommend resources on how autistic adults can learn to deal with the condition, especially when it comes to socialization?
Thank you <3


servelan , to actuallyautistic
@servelan@newsie.social avatar
chevalier26 , to actuallyautistic
@chevalier26@mastodon.social avatar

What are your thoughts on self-diagnosis being belittled by many in the autistic community?

For clarity, I’m not asking to start a debate, just a genuine discussion. I currently don’t have the option to get a diagnosis, but feel fairly confident that the research I’ve done over the past year and a half has been legitimate and credible.

I don’t feel comfortable saying that I am definitively autistic, but I am ok with saying I’m “self-suspecting.” @actuallyautistic

servelan ,
@servelan@newsie.social avatar

@chevalier26 @actuallyautistic I don't think everybody needs a formal diagnosis to 'be' , but it can be empowering to know, like I know I have a legitimate reason to refuse jello, for example (sensory processing disorder; mostly textures and colors, but also volume/brightness).

mcdutchie , to actuallyautistic

“Autistic Joy” is the 20th autistic-led conference/retreat.

Provisional main programme schedule now available: https://www.autscape.org/2024/programme/schedule

Registration is open! https://www.autscape.org/2024/registration/

@actuallyautistic @neurodiversity

mcdutchie , to actuallyautistic

“Autistic Joy” registration is open!
28 August – 31 August @ The Hayes Conference Centre, Swanwick, Derbyshire, UK

Programme of presentations:
https://www.autscape.org/2024/programme/

Booking information:
https://www.autscape.org/2024/registration/
Prices include full board.

What is :
https://www.autscape.org/


@actuallyautistic @neurodiversity

mighty_orbot , to actuallyautistic
@mighty_orbot@retro.pizza avatar

Neurotypicals: “This person likes me, so I’ll talk to them about things I find interesting.”

people: “The only way this person will like me is if I don’t tell them about the weird things I find interesting.”

@actuallyautistic

DivergentDumpsterPhoenix , to neurodivergent
@DivergentDumpsterPhoenix@disabled.social avatar

Please stop with the euphemisms. We know what we are, we don't need it explained to us. It is patronising when people try and define our identity for us.

@actuallyautistic @autisticadvocacy @neurodiversity @neurodivergent

mcdutchie , to disability

“In general, I see autistic people being denied independence, or allowed their independence but denied much of what constitutes living.”

@heta, President of the European Council of Autistic People, writing on as an person for the European Disability Forum.

https://www.edf-feph.org/blog/autistic-people-and-independent-living/

@actuallyautistic @disability

MikeFromLFE , to random
@MikeFromLFE@cupoftea.social avatar

We've been sent a huge questionnaire from our daughter's psychologist about her childhood and we are meeting with them in a few weeks time for an in depth interview.

There's some suggestion that she may be and this has played a major role in her troubles over recent years.

I'm suspending judgement because I don't know enough about the subject and Internet research on in adult females isn't particularly helpful. I'm leaving this one to the professionals

26pglt , to actuallyautistic
@26pglt@mastodon.au avatar

This account of a teenager & his family is heartbreaking 💔.

Families raising kids who have violent meltdowns struggle to find support. Kids like this are acutely vulnerable to the influence of anyone who is kind to them & any group in which they find acceptance. For those of us who experience meltdowns, learning to understand & manage our overwhelm & the eruptions it leads to is a lifelong journey. For most of us it’s full of failure & shame. Where & how can we find acceptance & love? How can we learn to be gentle with ourselves?

I think many folk, especially those of us who grew up undiagnosed & unsupported then raised similarly undx, distressed, overwhelmed & volatile autistic kids while unable to find help, would shudder with recognition at elements of this tragic story.

My heart goes out to this family ❤️‍🩹 @actuallyautistic

https://www.abc.net.au/news/2024-04-29/parents-of-teenager-who-stabbed-bishop-give-first-interview/103767910?utm_source=abc_news_app&utm_medium=content_shared&utm_campaign=abc_news_app&utm_content=other

youronlyone , to actuallyautistic
@youronlyone@c.im avatar
olena , to actuallyautistic
@olena@mementomori.social avatar

You’re not walking around consciously choosing what to pick up. You don’t choose. You don’t decide. It sticks like a crumb you accidentally stepped onto. Like cat’s hair. Good luck trying to get rid of it: while cleaning one, you get three more. Sometimes some dry out and fall off. You don’t choose which either.

Phrase here, intonation there, a bit of smile from that one, a funny move from another…

I wonder, if someone who has known you some time ago, meets you again in some years, and then meets some people from the same circles - how long does it take to tell those you’ve been interacting with most during those years by how they’ve grown into you, by spotting in them all those new things you’ve become.




@actuallyautistic

olena , to actuallyautistic
@olena@mementomori.social avatar

When a mimic is put into a safe environment where it doesn’t have to mimic anymore to survive - what shape does it have?

For some reason, it seems to me, it won’t be neither any established form nor an amorphous blob, but rather some chaotic combination, multidimensional exquisite corpse, of various elements flickering between each and every form it has ever taken or observed

And to demand it to show its true form is to take it out of the safe environment

(This post is actually about autistic masking)



@actuallyautistic

DivergentDumpsterPhoenix , to autisticadvocacy
@DivergentDumpsterPhoenix@disabled.social avatar

Report number 2 on CAMHS has been published. This one looks at the qualitative data and includes direct quotes on the experiences of CAMHS

https://emergentdivergence.com/wp-content/uploads/2024/04/CAMHS-Report-2024-2.pdf

@actuallyautistic @autisticadvocacy @neurodiversity

BZBrainz , to actuallyautistic
@BZBrainz@mastodonbooks.net avatar

@actuallyautistic

Tweet shared to the FB group Feral Neurodivergent Raging Meme Posting and now here with you. I’ve been down and this was the first thing that made me laugh today. I hope it makes you laugh too.

ideogram , to random
@ideogram@social.coop avatar

Do allistic people really need constant interaction with others? In person? It sounds horrific. I lived with other people for years. Often they want interaction. That's just brutal for the autistic mind isn't it?

autism101 , to actuallyautistic
@autism101@mstdn.social avatar

Do you ever struggle with getting bored with some routines.

@actuallyautistic

image: unknown

Lipidolith ,
@Lipidolith@mastodon.social avatar

@autism101 @actuallyautistic
Everyday life of a and
🙄
My gifted brain: Hey, look, something new, exciting, challenging!! Yay!!!🥳🥳🥳
My autistic brain: Now, wait a sec.... hey, what you're doing??? You know, we can't deal with that?!?!
My gifted brain: Oh, shut up, this is sooo cool!!!💃🎵🎶🎵
My autistic brain: *sigh
Me: thanks guys... *overwhelmed *shutdown
😒😔🤯

Ilovechai , to autisticadvocacy
@Ilovechai@sciences.social avatar
Ilovechai OP ,
@Ilovechai@sciences.social avatar

@actuallyautistic @autisticadvocacy

Sent this voice clip to my daughter in college tonight after she texted sharing she was having bad , nausea, overwhelm (and I'm guessing probably . )

Sometimes we just need a .
(Also sent this meditation) ✨️
https://insighttimer.com/chelseapottenger/guided-meditations/meditation-for-anxiety-relief

Sharing both if anyone else needed comfort.

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