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EmilyMoranBarwick , to actuallyautistic
@EmilyMoranBarwick@mastodon.social avatar

Would love : I find I'm fixating on the way my brain locks onto all /

Like "when is the best time to post?!"🙄

I only ever used social media as an educational content creator & the ever-shifting (& more) REALLY messed me up (hardly alone in that!)

I came to Mastodon to have a space that's NOT my nonprofit—that's ME

I want , not clicks

But it's creeping in nonetheless...

@actuallyautistic

Tarrenvane , to actuallyadhd

Just had an idea for an / / (perhaps too) shirt/pin that I wish I had the skills to at least design:
A human brain, over which is a pop-up dialog that says:
Alert:
This brain is offline for maintenance. Please try your request again later.
with an OK button at the bottom.
For times when what I call "controlled shutdown) is necessary. @actuallyautistic @actuallyadhd @neurodiversity

btaroli , to actuallyadhd
@btaroli@federate.social avatar

Someone shared this in our company neurodiversity slack channel, and I had some mixed feelings about the information shared. Has anyone tried this and can share the results they experienced?

“The Truth About ADHD in Adults: Harvard's Dr.
Chris Palmer Explains the Research”

https://youtu.be/XM5qZXqTQ3s?si=_VHW-zQOMEHP-ftL

@actuallyautistic @actuallyadhd

aphyr , to random
@aphyr@woof.group avatar

The devastating combination of ADHD, insurance fuckery, doctors being booked out five months in advance, and that providers simply Do Not Answer Their Email Or Phones means that I've been trying to see a doctor about daily pain for... over a year

trollupsx ,
@trollupsx@woof.group avatar

@aphyr I have to admit some amusement at a practitioner saying to someone with , “you should prioritize this.” Srsly? “You didn’t just seriously suggest prioritizing to someone with ADHD did you? Are you even remotely aware….?” Hahaha

@actuallyautistic

EmilyMoranBarwick , to actuallyadhd
@EmilyMoranBarwick@mastodon.social avatar

I'm reading the book "ADHD 2.0" and they have this list of what to look for in your environment (for it to be friendly).

Whelp...as someone who works for and by myself...I guess I AM the problematic workplace ¯_(ツ)_/¯


Would love to hear from / peeps:

How do you create a friendly workplace for yourself?


@actuallyadhd @actuallyautistics @actuallyaudhd

rebekka_m , to actuallyadhd
@rebekka_m@fnordon.de avatar

Here all @actuallyautistic and @actuallyadhd folks can find a great series of articles on neurodivergent life in academia: https://elifesciences.org/inside-elife/44d04224/being-neurodivergent-in-academia-why-sparks-of-change-is-publishing-stories-from-neurodivergent-researchers

Found that via @marews - thanks, lots and lots!!

On this page I also got to a list [it's a spread sheet! <3] of hacks/tipps/insights from ND scientists for mutuals that is so damn rich I HAVE to share it with y'all here in addition: https://docs.google.com/spreadsheets/d/10Q8AgTAK3FPRxpF6Uta-Ye9Op-pYz7aENxPP_7MXT2o/edit#gid=0

BZBrainz , to actuallyautistic
@BZBrainz@mastodonbooks.net avatar

@audhd @Adhdinos @actuallyautistic
I’m excited to share the updated cover for Late Identified A Beginner’s Workbook (2nd edition with updated title) soon! In the meantime, the first edition will stay up and available with the first cover I created for it. 🥰

First edition ➡️ https://books2read.com/audhd

pixelbud , to random
@pixelbud@evenpace.social avatar

Starting to learn about autistic burnout. Anyone else experience this, have advice, or just want to commiserate?

I also have arthritis learned recently that pain tolerance can lower while in burnout. Doesn’t that make arthritis a cycle of burnout? Or I mean cyclical.

EmilyMoranBarwick ,
@EmilyMoranBarwick@mastodon.social avatar

@pixelbud Experience with burnout you ask? Let me regale you with the last 3 decades of my life 🙃

In all seriousness, I went through VERY severe burnout for 6 years. I'm still working to come out of that.

Before I knew I was I just forced myself through burnout.

Now I'm trying to listen better to my brain/body "cues" of things being "too much". BUT that doesn't mean "the world" obliges!

Maybe others from @actuallyautistic @actuallyadhd will have tips!

btaroli , to actuallyautistic
@btaroli@federate.social avatar

One thing I notice about being sick or exhausted after a night of poor sleep is that my anxiety level trying to usher son through his getting ready is far less anxious for me. I just don’t have the energy to get to that place. A place I didn’t really want to be.

Is there a way to avoid getting to that anxious place when I have the energy, I wonder… 🤔

@actuallyautistic

Dynamicallydisabled , to autisticadvocacy
@Dynamicallydisabled@spore.social avatar

Maybe you've heard that people can be nonverbal or nonspeaking. But did you know there are many ways to be semi-speaking? I'll list some I just learned about below. Sing out if any of these resonate with you! @autisticadvocacy

chelonaute ,

@Dynamicallydisabled @autisticadvocacy Unfortunately, all this only applies if the difficult/expensive step is language to oral speech and working around it via text is possible. In my case the roadblock is the thought to language step and oral vs. written usually doesn't matter much.

EmilyMoranBarwick , to actuallyautistic
@EmilyMoranBarwick@mastodon.social avatar

To my fellow or otherwise folks…

I would appreciate any tips on how to use Mastodon without it causing overwhelm/getting lost in it.

🧠My blend of has a REAL hard time with this kind of platform (never got Twitter either), but I’m drawn to the community & connection here.

I’m like instantly a confounded 105-year-old when it comes to Mastodon/Twitter 🙃

Ps - I’ve seen @actuallyautistic but not clear how that even works

autism101 , to actuallyautistic
@autism101@mstdn.social avatar

I tend to think of the worst outcomes for upcoming events and may ruminate on them. The old adage, “prepare for the worst, hope for the best” describes how my brain operates most of the time.

@actuallyautistic

theaardvark , to actuallyadhd
@theaardvark@mastodon.me.uk avatar

I love these shorts. I'm learning a lot about how much of who I am comes from my traits. in particular is one of mine.
My is, I'm learning, fundamental to who I am and, with a few exceptions, I wouldn't change it for the world, because then I wouldn't be me.
@actuallyadhd .
https://youtube.com/shorts/lX-M7WSp5Ao?si=ZtvDIMI92VUAkAAd

innervisioner , to actuallyautistic
@innervisioner@mastodonapp.uk avatar

Observation.

On learning more about , it feels like these traits have become much more prominent than my autism. Lots of forgetfulness, lack of focus, emotional dysregulation etc.

Q: Do lower dopamine levels ‘bring out’ traits?

I’ve shown ADHD traits forever but didn’t realise. @actuallyautistic

autism101 , to actuallyautistic
@autism101@mstdn.social avatar

This is what I feel like and probably look like to others after spending ten minutes at a holiday party.

@actuallyautistic
image: @ThatSpicyAutisticFemme on IG

btaroli , to actuallyautistic
@btaroli@federate.social avatar

Am I the only person to notice that CBS News showed an advertisement for Autism Speaks today, during national news at 4PM PT? I live in SF Bay Area, and I’m not sure if this was just from local KPIX. I do certainly plan to reach out and raise their attention to the harm this group causes.

@actuallyautistic

Clip from KPIX/CBS in SF Bay Area from 12-JAN during 4PM PT broadcast. I was watching a DVR recording and was flabbergasted to see them show a snippet of an Autism Speaks advertisement.

18+ btaroli , to actuallyautistic
@btaroli@federate.social avatar

🧵 1/7 I’ve been here so many times before. Super excited and engaged on a task or event, particularly one that is coming in the future. I plan. I organize. I prepare. But somewhere along the way, perhaps right up to the moment of it actually happening, I run out of steam …

@actuallyautistic

rebekka_m , to actuallyautistic
@rebekka_m@fnordon.de avatar

Okay, my outing of the day concerning - I can relate to much of the content on gender identification in this post written by Bianca Toeps: https://www.toeps.nl/blog-en/personal-en/identification.

She also wrote a book "But you don't look autistic at all" which I have started but not finished yet @thestorygraph account, thanks to ...], seems OK or even better than OK. Personal journey, sprinkled with facts.

@actuallyautistic

rebekka_m OP ,
@rebekka_m@fnordon.de avatar

@olena for me people here really are THE FIRST GROUP that I do resonate with in many, many facets so I see myself as "belonging" - which is a revelation and currently causes many emotional rollercoaster rides [I was long identifying but am only for a short time diagnosed and am really connecting to it now].

Apart from this exception I fully am with you on this. There never was any group I actually identified with in my life, only as a "part time job", e.g. musician etc

@actuallyautistic

trollupsx , to actuallyautistic
@trollupsx@kinky.business avatar

🧵 1/5 As I introspect on my Autism and how it’s impacted my life, I am forced to consider my sexual explorations starting around age 10 and the social awkwardness that’s always been present. Before, I concluded that it was a function of my introversion and being closeted.

@actuallyautistic

theaardvark , to actuallyadhd
@theaardvark@mastodon.me.uk avatar

Common refrain:
CRAP! It's 23:30 and I've not done [task x] again today! If I get to bed now I can get up at a sensible time tomorrow and really, definitely, absolutely, 100%, defo, guaranteed do [task x].

@actuallyautistic @actuallyadhd

BZBrainz , to actuallyautistic
@BZBrainz@mastodonbooks.net avatar

@Adhdinos @actuallyautistic

I am working on a revised cover for Late-Identified AuDHD: A Beginner's Workbook (retitled 2nd edition). I've been repeatedly advised that using a dyslexic-friendly font in my work is unprofessional. Well, I am a professional with dyslexia... and the use of dyslexia-friendly fonts is a professional choice. Hard line.

BZBrainz OP ,
@BZBrainz@mastodonbooks.net avatar

@rebekka_m The 1st ed of the Late-Identified workbook is available right now! I released it in early 2023 for adults with a late identification or late diagnosis of & —place to start putting the pieces together. Available at most online booksellers:

➡️ https://books2read.com/audhd

The expanded 2nd ed + new cover will be out later this year, and you can follow me here for progress updates. 🧡

@actuallyautistic @Adhdinos

ScriptFanix , to actuallyautistic
@ScriptFanix@maly.io avatar

On Christmas eve, I started dating someone on the spectrum. I think it's the first time I date an autistic woman. And it's so much easier than dating NTs! No subtext, no guessing, no masking. Everything is told to the other in a straightforward manner and it's so simple!
There are some quirks to be addressed as we don't have the same specific needs and some are in conflict, but overall, it's the easiest relationship I've ever been in!
@actuallyautistic

Tarrenvane ,

@ScriptFanix @EVDHmn @graphite @actuallyautistic My partner is , I'm , and we know what each other's needs are and have developed a balance between us.

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