I read about a new detailed map of the human brain. As expected, the "normal brains" were contrasted with "disordered" ones and how eventually they might learn "what's wrong" with them.
This could be the connection between Ehlers-Danlos and neurodivergence. (People with EDS, like me, are 7 times as likely to be autistic and 5 times as likely to have ADHD -- also like me.)
I know people with estrogen have said their ADHD gets worse during perimenopause/menopause, but I'm wondering if people with testosterone 50+ also notice their Autism/ADHD symptoms getting worse. Especially more "inattentive"/stuck in their thoughts.
I feel like we really need more research on all of this.
My current world order, where my morning and overnight schedule has largely shifted to accommodate a crazy early start to get kiddo ready for alternate school pickup, has resulted in my not being up as late at night as I used to be.
What I’ve realized is this seriously impacts my productivity. I’m way more productive at quiet times in mg day, and now my working time is constrained to when others are around. This sucks.
Scientists restore brain cells impaired by a rare genetic disorder
A therapy that restores brain cells impaired by a rare genetic disorder may offer a strategy for treating conditions like autism, epilepsy, and schizophrenia. #press
The background to this is that #AuDHD people have a choice: be yourself, and get rejected, or pretend to be NT, and get rejected, but not as quickly or as often. The NT population WILL NOT accept us for what we are!
What some people don’t seem to be able to understand is that for the ones with executive disfunction number of steps matters a lot.
I just put away all my dried laundry aside of duvet cover.
Why? Because for all the other things it’s easy one-step task: grab all the knickers and shove them into the drawer, get the home clothes and put it into home clothes cube box(that cubed Ikea shelf is such a helper for people like me, I just have a cube for every thing).
But the linen shelf is at the top of the bathroom closet, and it’s almost full. So I need a stepladder to be able to put the duvet cover there(I can try to shove it there without, I kinda reach the shelf itself, but in its current state the cover is likely to fall from there, and probably with some other things, so that would upset me which I am not ready to deal with now).
But the stepladder is now occupied by my winter shoes which were drying there before I put them away for summer.
But to put them away I need to get two big boxes from under my bed, empty one by putting everything that is there into the other one, put all the shoes there, put the boxes back under the bad, ensure all the boxes there are arranged in a way that is allowing my cat to play in that labyrinth, and probably clean up after that as I suppose there’s going to be a few dust bunnies.
Gosh, I got tired by just typing all that.
Going through all those steps may bot take too much time(if I don’t get distracted by something, including the urge to sort everything perfectly), but the very thought of going through all those steps just discourages me so much that I can’t find energy to start. “It’s just one duvet cover!” - they say. “It’s a shitton of steps!” - I answer.
Well, the cover is drying in a way that obscures a view from my bed which irritates me enough to maybe develop enough anger to put it away in the weekend.
No place is perfect. But I’ve yet to meet a higher concentration of truly caring & superbly talented folks. Staff and residents alike.
PS. For my #neurodivergent peeps: They have therapists who are #autisitc, #ADHD, & #AuDHD. They made intake changes based on my feedback re: “the intake process for someone with sensory sensitivities”.
No place is perfect. But I’ve yet to meet a higher concentration of truly caring & superbly talented folks. Staff and residents alike.
PS. For my #neurodivergent peeps: They have therapists who are #autisitc, #ADHD, & #AuDHD. They made intake changes based on my feedback re: “the intake process for someone with sensory sensitivities”.
#Autism#ADHD#AuDHD#ActuallyAutistic
How does everyone know how, when and how much they're masking?
As a late-diagnosed #AuDHD, I struggle to differentiate between "me but masking" and "me but in a diff situation".
Now that I know I'm autistic, I even miss the person I used to be in some situations before I knew.
I used to call myself a "social chameleon" - I just changed automatically to suit the circumstances.
But who actually am I and what is just a mask? @actuallyautistic @actuallyadhd
n. the state of not knowing how you really feel about something, which forces you to sift through clues hidden in your own behavior, as if you were some other person — noticing a twist of acid in your voice, an obscene amount of effort you put into something trifling, or an inexplicable weight on your shoulders that makes it difficult to get out of bed.
Had a big videocall at work today and suddenly realized I am avoiding eye contact even in videocalls. Like, I subconsciously avoid looking at people who are looking at the camera, even if they are those who’re talking. I look at those who look away, I look at those who sit too far from the camera to actually see where they’re looking, I look at myself, I look at Slack’s UI, I constantly remind myself to not look over the screen, but can’t help glancing. Anything but looking at those who seemingly look at me. Even though they are not actually here and most time in those group calls it means they are not actually looking at me.
Other #autistic folks, do you find it easier to look people in the eyes in video-calls or do you struggle with it too? @actuallyautistic #neurodivergent #AuDHD
A friend shared this short film by her Autistic daughter, who’s about to start at college. This is her attempt to “capture [my] feelings that [I get] of anxiety or stress when under pressure.”
1 - Think of a thing to post to Mastodon
2 - Pick up phone to post said thing
3 - Get distracted by phone notifications
4 - Read and clear notifications for 5 minutes
5 - Forget what I was doing and just mooch on phone for 15 minutes.
6 - Put phone down
** Some variable amount of time passes. **
7 - Remember what I wanted to post and pick up phone.
8 - Return to step 3. @actuallyadhd #ADHD#AuDHD#Neurospicy
I am someone who gets migraines and have since I was 8. The reason was never uncovered, but I know migraines are more common among neuroduvergent folks like myself.
My question for you is this:
When you have pain, what do you do to help manage it so your emotional regulation goes out the window?
In short, I can be mean when I am in the midst of migraine.
@actuallyautistic
I’m in the middle of a big move to a small rental & I almost missed Late-Identified AuDHD’s first birthday. ALMOST!
About thirty minutes to midnight I looked at my bookshelf, saw my 1st copy, remembered I forgot to do a cover reveal for the upcoming second edition, and decided to celebrate with a post and a Reese’s egg.