I do have some conditions with overlapping symptoms which will complicate the process, like cptsd, juvenile onset #t1d with resulting brain damage, neuropathy, anxiety, etc
Also, I'm poor and live in rural north California (I'm on medi-cal, aka partnership insurance)
Any tips, shares, etc appreciated. Good luck everybody!
Parent or teacher interested in a Covid safe school?! Centered in disability justice. One is forming in MA/RI, location TBD. Email for more info or with questions!
Everyone should go out and read Against Technoableism: Rethinking Who Needs Improvement by Ashley Shew. Thank you @jillrhudy for the recommendation. Loved it.
has anybody ever received a #medical#diagnosis where the #doctor told you that your illness will likely cause a significant reduction in your #lifespan? Not that you are dying, but that you likely will not live to be an old person? How did you deal with this news? How do you handle that?
American Association of People with Disabilities (AAPD) put out a press release today re letters it sent to major media outlets and leaders of the Democrat & the Republican parties.
How did you make a more robust sense of self? How do you know when your sense of self is strong or weak? Interested to hear people's lived experiences.
Years of dissociation and masking makes it hard to feel what is me.
I'm sure BIPOC are awful tired of performative actions.
As a disabled activist who hasn't been at it all that long (but intensely at it so far), I'm thinking the thing one most needs to ask from organizations who are hiring (or "letting you volunteer") for DEI work,
the big question to ask and get the answer in writing in a binding form is:
I’m interested in memoirs, blogs etcetera telling stories of resilience, surviving psychiatry, trauma (developmental). Please share them if you know any. #MadLiterature
Lisa Wallace on why she left psychiatric care and why she may return one day
"UC Santa Barbara Associated Students’ Commission on Disability Equity announced plans to open a Disability Cultural Center on the third floor of the University Center...
The post followed a Senate bill unanimously passed during a Jan. 17 Associated Students (A.S.) Senate meeting that incorporated the DCC into the organization. The Senate bill was co-authored by second-year history of public policy and law major Amelia Rowe and second-year political science major MingJun Zha.
“I was inspired by [C.O.D.E. External Affairs Coordinator Yao Yao] Xiao’s drive and initiative in addressing the unique struggles disabled students face on campus,” Rowe said in an email statement to the Nexus.
The Soteria model relies on personal relationships, interactive activities, and minimal use of psychiatric medication within a comfortable “living community” as opposed to a conventional psychiatric setting.
#MadLiterature
How Does the Soteria House Heal?
The alternative treatment model of Soteria helps individuals suffering from schizophrenia without relying on medication or coercion.
We really need more works on the differences in POV in the disability community that come specifically from how long someone's been disabled (from birth on up to last minute disability in old age) and how connected or unconnected they are not just to a community of people with their same disability, but to a pan-disability community. @disability#Disability
I survived the void,
I came back with groceries, medicine, and actually had had fun!🍫
Trying some experimentally creative #writing#captions to see what #disability &#actuallyautistic who are marginalized, plagued by imposter syndrome, masking for survival, code switching, frame switching perspective, juggling the elements of nature and self or selves around.
What I have been listening to today...
Since I work with persons with disabilities, I wanted to start reading books about the wonderful people I work with. The stories being told remind me of some of the persons I work with. @stevesilberman#autism#bookstodon#disability#books@bookstodon#Bookwyrm 📚☕
Call for papers - ‘Intersectional and Critical #ADHD Thought: ADHDers Think Back’, for a special issue of the Canadian Journal of Disability Studies. [ETA: The abstract deadline has been EXTENDED till 25th Feb 2024.] The editors are seeking critical intersectional papers that “‘think back’, explicitly or implicitly, against medical and denialist models of ADHD.”
“At this point, it is fair to conclude that ADHD Studies is an acritical and non intersectional field, produced by non-ADHDers. What we need is critical and intersectional ADHD knowledge produced by ADHDers themselves.”
Submissions are welcomed from academics, PhD students and activists. See the CfP for a great list of topics, from “Trans-ing while ADHD-ing: questions for intersectional justice,” to critical approaches to ADHD and religious faith.
Forcing a person back to the source of their trauma with no meaningful support or accommodations is placing lives in danger. The new government push to get kids back into school is a danger to disabled communities.
The problem is isn't that the kids are not in school, it's that school is not a safe environment for all kids.
It's revealing how lived experience with disability is not a requirement, but "Advanced degree in related area and/or equivalent experience/training" is.
My scooter doesn’t have a tight turning circle so using it on a bus is a lot harder than my powered wheelchair but after my lesson today I feel confident enough using it on buses 😀
Empire of Normality
Neurodiversity and Capitalism
by Robert Chapman
This is a priority read for me!
I’m looking forward to how Chapman explains the emergence and rise of the pathology paradigm and its entanglement with the fundamental logic of capitalism. Specifically how the medical and scientific definitions of illness, disability, and normality have grown in response to economic and ideological developments.