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BlackRing , to asklemmy in Is it really just ageing/ getting older? How is this supposed to work? How is everyone else doing this?

Nope. Not normal sounding to me. Even your doctor says it’s not normal if you think about it, he thinks it’s early. As everyone else states, second opinion time.

Everything you listed, I get, but at a mere fraction, save for the swelling, nothing here. Beyond seeing another doctor for a second opinion, it sounds like you’re physically fit, which is more troubling. I am kind of fit, and sometimes my back hurts. What makes it go away? Working out my core muscles in a regimen after a few weeks. Staying active.

I am 40 fwiw, and you sound far worse off than I feel. See another physician.

flashgnash , to nostupidquestions in Is it me or is everyone in hexbear insane?

I love that without fail every single person in this thread defending hexbears is from ml with the same pronoun tag format every single hexbear seems to have

Almost like they’re hexbear alts or something

EABOD25 OP ,

Weird right? I love how they think everyone is as obsessed with fake internet points as them. Some of them seriously need to talk to people in real life

the_post_of_tom_joad , (edited )

What? Why? Who i say who in their right mind says this in a post absolutely soaking in their own tears? I think the complete batshit audacity is what i find most entertaining about you.

Diva ,
@Diva@lemmy.ml avatar

Before I get accused of being a hexbear alt, I only added them after I saw that they were in common use due to hexbear posters showing up in my /all. We did actually start mandating pronoun tags for people participating in /c/transgender -despite the fact that some of the admins are resistant at the instance lecel- because it seems to work well in the trans spaces on hexbear for fostering a respectful environment.

EABOD25 OP ,

That’s cool, bud. And I’m doing my best to not criticize the individual person, but there are a few people that make souring the reputation of all on HB

Sauerkraut ,

Couldn’t that be said of any and all groups? A few bad posters has soured me on the lemm.ee instance, but would it be logical or fair or me to assume that a few bad experiences reflects an entire group?

EABOD25 OP ,

Not wrong, but a few bad apples can ruin the whole bunch

mathemachristian ,

In my case my hexbear account is an alt of my lemm.ee account

Sauerkraut ,

I am not from ML nor do I have a Hexbear alt of any sort, but I defend Hexbear’s right to be different. They seem to be a younger group of anti-capitalists so I find their perspectives interesting.

Edit: I am still somewhat new to Lemmy, so maybe there is some history with Hexbear that I am ignorant of, but until I see it for myself, I enjoy their content and will continue to support Hexbear.

Cowbee ,
@Cowbee@lemmy.ml avatar

I am still somewhat new to Lemmy, so maybe there is some history with Hexbear that I am ignorant of

Hexbear is a 4 year old community, it drastically predates the Reddit Exodus, and only started federating with other instances around 10 months ago. Those 3 years of self-sustainability created a unique culture that is at odds with the liberal instances on Lemmy, like Lemmy.world.

OpenStars ,
@OpenStars@discuss.online avatar

I would defend anyone’s right to be different as well. However, that’s not the case here - you said it yourself, you really are missing a huge history between Hexbear.net and… well, everyone else across the Fediverse (and highly ironically, as such they would ruthlessly make fun of you, for speaking without knowing - i.e. you are someone who would defend them, but not vice versa). They poke fun at liberals, conservatives, anyone from the West, etc., and the issue isn’t so much their right to exist or be different, but the need for the rest of the Fediverse to spread their message out in the same manner as all the other messages, which are governed by an entirely different set of policies and code of conduct.

I hope you will agree with me that the rights to do a school shooting, or the right to block someone else’s access to medical care… is really no “right” at all. That is to say that they can be however they like, but the moment that they federate with the rest of the world, it crosses over into our rights, whether we want to receive what they offer or not, and even more so to promote & share it to our own users.

But don’t take my word for it: visit e.g. ChapoTrapHouse or the_dunk_tank and see for yourself. Or here’s an example post, where they took a poll on which other instances to deferate from, then promptly ignored the results that said no and defederated from them anyway:-P lemm.ee for instance had 41 votes to keep it and only 4 for it to go, but despite the additional order of magnitude and some passionate responses defending the former (e.g. “But man we should at least stay federated with lemm.ee, that instance’s admin has been very reasonable and it hasn’t caused much trouble at all; nothing that banning any troublemakers can’t fix.”), they defederated from it anyway. And the reasons stated to keep it are also informative - basically so that they can proselytize to them, though notice the distinct lack of wanting to converse with them as equals. And that is just one instance, among the very few that will even consider federation with hexbear.net to begin with. Also, to balance that out, read lemm.ee’s policy on federation with hexbear.net - notice how 100% polar opposite it is, not just in terms of facts but of behaviors.

There is also programming.dev’s response, tldr version: “Hexbear defederated from us so to prevent one way conversations I have added them to our blocklist as well. If the hexbear admins decide to unblock us I can do the same”… followed in the very next post by “It is very likely we will be federating with Hexbear again…” - which despite the fact that that did not end up happening (as of September 8, 2024 I can see hexbear.net on their instances list, make sure to switch the tab at the top to “Blocked Instances”), I want to point out how extremely friendly other instance admins continue to try to be, towards them, though this behavior seems to have never been rewarded in return. And it’s not just these two instances - there are so very many, here’s another at sh.itjust.works, where they thought long & hard about it (mind you this is an EXTREMELY permissive server, chock-full of reasonable-minded people, which you’ll see as/if you read the other posts in that community), and somewhat shockingly seemed ready to do the defederation, but before they could, once again hexbear.net preemptively did it first, thus making the issue moot.

In short, they know exactly how they are - and many people routinely flee from it to spread elsewhere in an attempt to get away from the extremely heavy-handed authoritarian moderation/admin practices. When you tolerate the intolerant though…

graphic describing the paradox of tolerating intolerance

If you enjoy LGBTQIA+ content, it is everywhere, e.g. the variety of blahaj’s that exist - the most popular of which is lemmy.blahaj.zone, with the highest number of users (and to reveal my own bias, I’ve never seen anything written from their admin, Ada, that I have not thoroughly enjoyed reading - if I could follow accounts on the Fediverse, this is one of a mere handful of people across the entire world that I think I would do that for:-). Similarly with “different”/odd content - we love being different here on the Fediverse:-) - and again with left-leaning content (in fact people that are not left-leaning are quite rare).

But I advise to steer well clear of bigots. Except of course to learn about the situation - definitely check it out, and then you’ll know. I know it looks like shit-posting, especially with the rather poor choice of wording in OP’s title, but there truly is an actual history behind all of this. The shit-talking looks casual, but it’s not: hexbear has truly earned most of the ire that is directed its way. And they seem okay with that, some even seem proud of it? :-P

Diva ,
@Diva@lemmy.ml avatar

You made a huge wall of text with some claims not borne out by your links, did you even fully read what you were citing or did you skim looking for things to confirm your argument?

From you:

Took a poll on which other instances to deferate from, then promptly ignored the results that said no and defederated from them anyway:-P lemm.ee for instance had 41 votes to keep it and only 4 for it to go, but despite the additional order of magnitude and some passionate responses defending the former (e.g. “But man we should at least stay federated with lemm.ee, that instance’s admin has been very reasonable and it hasn’t caused much trouble at all; nothing that banning any troublemakers can’t fix.”), they defederated from it anyway. An

From the hexbear discussion

However, as expressed by users belonging to marginalized groups, comments from .ee users are often lib-shit and in some cases outright hostile. While many on hexbear love dunking on these lost libs the duty to protect marginalized users is much more important

Again quoting you:

at sh.itjust.works, where they thought long & hard about it (mind you this is an EXTREMELY permissive server, chock-full of reasonable-minded people,

The hexbear thread expressed the same rationale to block “shits fulla chuds” the fact that you characterize them as reasonable-minded people speaks volumes about you personally.

Just checking in with how someone from a marginalized community felt about this situation: hexbear.net/post/497935

Is posting a meme to “own the liberals” worth your comrades getting more trauma from bigots harassing them?

No its not.

you’ve had your laugh, but it should end

Ban them all, SJW, lemm.ee, lemmy, the programmer nazi edglords. Keep Lemmygrad.

I was ready to take you seriously but if you’re misrepresenting your very first points that’s a lot harder. You’ve been doing more than that, you’ve been inverting the actual history and in the process ommitted the actual options of marginalized people to suit your narrative.

If you enjoy LGBTQIA+ content, it is everywhere, e.g. the variety of blahaj’s that exist - the most popular of which is lemmy.blahaj.zone, with the highest number of users (and to reveal my own bias, I’ve never seen anything written from their admin, Ada, that I have not thoroughly enjoyed reading

Hexbear is majority non-cis, and its weekly trans megatheads are extremely active. I already looked into this, they have done several polls, and have chatted with a number of them since I started moderating /c/transgender

But I advise to steer well clear of bigots. Except of course to learn about the situation - definitely check it out, and then you’ll know.

Are you trying to imply that they’re bigots now? On what basis? If anything you’ve said enough to make me suspect you more than anyone else.

Edit: like clockwork, I check the mod log and you posted this embarrassing comment 8 months ago and got mocked roundly for it. I can see why you’re still holding a grudge now.

https://lemmy.ml/pictrs/image/b781a97f-af1b-42e6-922c-1d0a261f0c6a.png

lol:

https://lemmy.ml/pictrs/image/31429c19-125f-42f4-8b32-85ac104e4e28.png

braindefragger , to asklemmy in Is it really just ageing/ getting older? How is this supposed to work? How is everyone else doing this?

You don’t need to ask strangers on the internet about your health. The only thing you need to do is learn how to get a second opinion from another doctor.

upsiforgot OP ,

Well, yeah, but on the other hand: who else can I ask? Of course, nobody here knows me or my situation. But I do, and let me tell you: there is nobody who I can get some thoughts about this , some questions I didn’t consider yet, ideas on what to do…and maybe a little encouragement… I’m overwhelmed by the amount of people who cared and shared their thoughts

braindefragger ,

who else can I ask?

Everyone has already answered that for you. You ask another doctor. Take care.

nublug , to linux in Libvirt USB passthrought via port

this may help, if you’re using apparmour.

serverfault.com/…/pass-an-usb-hub-from-a-kvm-host…

RiderExMachina , to asklemmy in Is it really just ageing/ getting older? How is this supposed to work? How is everyone else doing this?

I’ve started having issues recently, too. After a work injury, I finally saw my GP, who recommended Physical Therapy, which has basically just been a guided workout with some yoga moves worked in over the course of an hour.

It hasn’t fixed my pain yet, but it’s made it better, and my pain was explained in a way that makes sense (my shoulders and core weren’t as strong as they should have been, placing undue burden on some of my backmuscles).

If you don’t want to go to PT, I’d strongly recommend just slowly doing 10-15 minutes of simple stretching like what you might have done in Gym as a kid. Stretch to the point of mild discomfort, not pain, doing each stretch 3 tines for 10 seconds. It might be worth looking into some basic yoga poses that target your particular pains (or the ones that you want to target first).

I’ll bet you’ll notice good results after a week. If not, definitely go see your GP again.

Obligatory “I am not a doctor”

Manzas , to lemmyshitpost in Regain Control in my ass

Press Start In My Ass

Kanzar , to asklemmy in Is it really just ageing/ getting older? How is this supposed to work? How is everyone else doing this?

Putting aside whether it’s normal for you to be experiencing aging so early*, you should still see another PCP because they didn’t manage your actual concern: “I am experiencing issues functioning day to day life, and would like a plan to manage this”.

It would have been one thing if the doctor had said “yup, just you, so let’s get you into an assisted living arrangement now”, or “I’m fairly certain this is just your shitty genes, but to rule out anything else, let’s send you for X tests and see the Y specialist”.

From your post, it doesn’t sound like that was the case.

*The joke goes that after thirty you don’t get injured, you get permanent disabilities.

frank , to asklemmy in Is it really just ageing/ getting older? How is this supposed to work? How is everyone else doing this?

I had some chronic shoulder pain for years. Primary physician was like “yeah that sucks”. 2 specialists were like “yeah, old collarbone injury I guess? Take Advil”

Years later, third specialist opinion found a missing ligament and did surgery.

Moral of the story is that you should get a few opinions here, maybe the first isn’t right

subignition ,
@subignition@fedia.io avatar

Missing ligament? Like because of genetics or something? That's wild

frank ,

Actually, missing because of a high-side on a motorcycle years ago. I did break some bones, but also tore through the ligament. Well, I guess it died from lack of being attached or whatever and was gone by the time they got an MRI on it

It allowed the bicep to regularly pop out of the humeral groove, which I assure you was not pleasant

Jerkface , to science_memes in So much

… That’s enough real analysis for me today. Or ever, really.

finitebanjo , to lemmyshitpost in Regain Control in my ass

The Good Life in my Ass

Gotta keep up on those probiotics, you know?

Cephalotrocity , (edited ) to asklemmy in Is it really just ageing/ getting older? How is this supposed to work? How is everyone else doing this?

Seek a second opinion. That doctor is not listening to you. Something other than aging is going on and it should be properly investigated.

edit: is severe arthritis in your family (or any other bone/joint disease)? Are you exposed to large or long term doses of chemical(s) or radiation in your life through work or living environment (industrial zone nearby/upwind, or very old home). These are things I’d be considering.

upsiforgot OP ,

Thank you for your answer, I appreciate everyone wo is taking the time and effort. Well, my brother has spondylitis ankylosans. I asked my doc about it (my mother always warned us to have in our mind when something comes up) but he said that this is not related and my symptoms wouldn’t match as I am too young. He also stated that it especially has nothing to do with low back pain. Other than that, no chemicals, no radiation (we live in a area where this actually can be a problem so it is quite common to check for it and we never had any elevated levels) I’m not working in a high stress environment, no heavy lifting or something like that and I move quit regularly during the day

SacralPlexus ,

It’s really interesting to me that you have provided this additional clue because ankylosing spondylitis was literally the first thing that popped into my head reading your story. I agree with others that your story sounds much more than typical aging symptoms and you should seek the opinion of another physician.

upsiforgot OP ,

Yeah well my GP just shoved this aside and I didn’t do any reasearch about it, because I try to avoid reading about symptoms etc. in order not to get ‘biased’, like interpeting too much or influencing my diagnosis (does this make sense?) but as you were asking about it it came back to my mind. Maybe I should check in with a specialist as I just now tried to find some information and it seems to fit really good, it even matches some minor other problems I had earlier (and my GP himself diagnosed me with)

SacralPlexus ,

Even if it ends up NOT being ankylosing spondylitis exactly - you should know that there are some hereditary factors that predispose to AS but also to other, similar conditions which are collectively called “inflammatory spondyloarthropathies.” Given your brother’s diagnosis you probably have a higher chance of one of these conditions because of your shared genetics. So yeah absolutely ask another physician until someone investigates your symptoms!

upsiforgot OP ,

Thank you for this insight. I really don’t want to be sick but if there is something, especially something that could be treated, I’d like to know. My GPs response somehow made me feel like I was overreacting but with so many people reacting so differently, I’ll try to take myself serious and get that checked out!

ulkesh , (edited )
@ulkesh@beehaw.org avatar

Up front: I am not a doctor.

Seriously, seek a second opinion, and if you are a woman, and it sounds like the original doctor is a man, find a woman doctor. I know this sounds sexist, and I’m honestly not trying to be, but it has been shown many times how male doctors tend to overlook or not listen to female patients. You must advocate for yourself.

Anecdotally, my spouse has had this happen numerous times. And it is extremely frustrating every time because it’s effectively a waste of time and money. And, something could be seriously wrong (not saying anything actually is), so you should make very certain at minimum that certain testing is done such as various tests from blood work and/or urine testing.

upsiforgot OP ,

Thank you for your encouragement. I didn’t consider gender playing any role in this yet even though I know about gender bias in medicine in general. Definitely something one should consider when finding a new practitioner

bradboimler , to asklemmy in Is it really just ageing/ getting older? How is this supposed to work? How is everyone else doing this?

I would definitely get a second or third opinion if I were you

I am a man in my late forties and I can tell my body is running down. But, um, I don’t deal with constant pain. Swelling. I can do everything I want to do.

CaptDust , to asklemmy in Is it really just ageing/ getting older? How is this supposed to work? How is everyone else doing this?

I’m entering 40s and this doesn’t sound normal to me. Get a second opinion if your doctor is writing it off. Don’t get me wrong, as I got older my joints are sore and pop in the morning. My back can’t handle some sports I used to enjoy. You’re too young to be struggling with jars and shoes in my completely uninformed nonprofessional opinion.

some_guy ,

Times a thousand. I’m older and have beat the shit out of my body with drugs (ended early 20s) and alcohol (still) and don’t get enough exercise and I wake up feeling reasonably good. What has been described here is outside of normal aging. Good luck!

Also, give up on that doctor. Reminds me of one that assumed I had a hemorrhoid without checking it and I actually had an abscess of infection. Emergency room doc told me that had I waited any longer for a second opinion I’d have had to get checked in to deal with it. Your current doctor is dangerously unqualified.

upsiforgot OP ,

Well that sounds rather unpleasant. Maybe I was a little naive in assuming that this doctor for sure won’t tell any bullshit, as he seemed (old) experienced. I’m glad you had the courage to get a second opinion

WeirdGoesPro ,
@WeirdGoesPro@lemmy.dbzer0.com avatar

I work in healthcare. Can confirm that most doctors are full of shit to some degree, and many will default to “no problem” if they don’t know what is wrong with you.

There are good ones out there who will listen though. Keep looking for an answer.

Racingradar , to lemmyshitpost in Regain Control in my ass

Limit to your love in my ass

msage , to nostupidquestions in How many squirrels do you think you could take in a fight to the death?

No weapons for me or the squirrels?

Grayox OP ,
@Grayox@lemmy.ml avatar

Both

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