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tomkindlon , to disability
@tomkindlon@disabled.social avatar

Among People With Preexisting Disabilities

https://ajph.aphapublications.org/doi/10.2105/AJPH.2024.307794

"The prevalence of long was higher among people with preexisting disabilities than in the general population (40.6% vs 18.9%)."

Hashtags:
@longcovid
@covid19 @novid @novid @disability

halcionandon , to disability
@halcionandon@aus.social avatar

Please

Finally got dr permission for IV magnesium. I don’t absorb it any other way so I am extremely deficient in it and ill. Can provide materials.

Problem is that I can’t find anyone to come out here in suburbia for less than $600 (check cost of wellness clinics in Melbourne. Expensive or don’t do at all. )

If you are a or have any experience running a drip, please reply/DM. I don’t care if you learned it DIY as long as you know what you’re doing.

This treatment changes my life from bedridden to 60% of normal in a few months! That’s mildly ill in comparison.
It helps every symptom I have.
Hospitals only give it for preeclampsia. Hospital in the Home is the same. Private nurse services same.
It’s so basically going through proper channels doesn’t help.

It’s not illegal to have someone qualified come out and do it as long as doc has signed off on it which is why wellness clinics can do it. But medical system won’t. I know it doesn’t make sense but it’s Australia 2024. If you don’t have formal qualifications we can figure it out.

I’ve even asked the government for help. Nothing.

Was informed even private insurance wouldn’t help with this (I don’t have it ofc but this is an example of how hard and stupid this is.)

P-l-e-a-s-e post to other platforms. I have no team to help promote me I barely have any energy for basics . I have no energy to advertise. If you can help an team also let me know.

Please give me some quality of life.

I’m in .
If you’re willing to drive a distance will compensate for petrol and pay what you think is fair for your time.

TLDR: Need nurse or any qualified healthcare worker to come to my place to give magnesium IV.
Even consider unqualified if you know what you’re doing.

@longcovid @mecfs @dysclinic
@chronicillness
@chronicpain
@migraine
@disabilityjustice
@disability
@DisabilityJustice
@disability
@socialwork
@socialworkers
@communitycare @mutualaid

Help me get out of bed, gain health, get far away from my abusers.

This is me:

halcionandon , to disabilityjustice
@halcionandon@aus.social avatar
halcionandon , to disability
@halcionandon@disabled.social avatar

Desperately seeking disability advocate.

None in my catchment.

What can I do? I’ve followed every lead.

Waiting 2 years. Help.


@mecfs
@melbourne
@disabilityjustice
@australia
@mutualaid
@disability

halcionandon , to disability
@halcionandon@aus.social avatar

It’s .

Please remember people like me that exist with

And remember those who were severe but are no longer with us.

Help those of us who are still here. Without help, we may not make it to the next Severe ME Day.


@mecfs @longcovid.a.gup.pe
@chronicillness
@neisvoid
@disabilityjustice
@disability

I would really like a home and care.
(See pinned post and profile for details.)

This is me

This is existing with

halcionandon , to disability
@halcionandon@disabled.social avatar

I really need a home 🏡

Can someone please help me? I’m being &
All you need is a spare room & a heart. Ask anyone you know.

Domestic violence orgs don’t help people. I need someone to take me in. I just need a quiet room.

I need to be safe with care. Please help.

@mecfs @disabilityjustice @disability @chronicillness @neisvoid @socialwork
@multipledisabilities
@longcovid

tomkindlon , to disability
@tomkindlon@disabled.social avatar
tomkindlon , to disability
@tomkindlon@disabled.social avatar

US research:

The hidden crisis: 's association with housing stability and home accessibility among people with disabilities

Free full text:
https://www.sciencedirect.com/science/article/pii/S1936657424000815

"Associations between Long and challenges related to housing stability and home accessibility highlight the need for systemic changes, financial support, and advocacy."

@longcovid

@disability
@disabilityjustice

tomkindlon , to disability
@tomkindlon@disabled.social avatar
tomkindlon OP ,
@tomkindlon@disabled.social avatar

From ABC (Australia)

"Not everyone who uses a wheelchair is paralysed. This is what ambulatory users want you to know"

https://www.abc.net.au/news/2024-06-18/ambulatory-wheelchair-mobility-aid-users/103937484

Here's the extract where the person with ME/CFS talks about her experiences

Hashtags:
@chronicillness @spoonies @disability @longcovid @mecfs





halcionandon , to disabilityjustice
@halcionandon@aus.social avatar

Please and share to other platforms.

Seems I’m famous (and real!) and desperate enough to go to the media for help. Yes, the trapped woman in the article below is me.

https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/

I’ve tried every level of government and they simply won’t help. Ask people in real life if they have somewhere for me to go. Is anybody an ? I need help.

@covid19 @mecfs @chronicillness @auscovid19 @neisvoid @disability @disabilityjustice @socialwork
@dysautonomia
@dysclinic
@mutualaid

tomkindlon , to disability
@tomkindlon@disabled.social avatar
tomkindlon , to disability
@tomkindlon@disabled.social avatar
tomkindlon , to disability
@tomkindlon@disabled.social avatar
tomkindlon , to disability
@tomkindlon@disabled.social avatar

Got my mobility scooter bus pass today. 😀

My scooter doesn’t have a tight turning circle so using it on a bus is a lot harder than my powered wheelchair but after my lesson today I feel confident enough using it on buses 😀

More in #2

@mecfs @longcovid
@chronicillness
@spoonies
@disability




tomkindlon , to disabilityjustice
@tomkindlon@disabled.social avatar
tomkindlon , to disability
@tomkindlon@disabled.social avatar
halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

please

GPs in clinics are waiting for me to:

  1. Go into (I’m not aged.)
  2. To see a (Who works in their clinic.)
  3. Because I don’t fit their business model. (They won’t or me even if I see them once.)

Yes they literally said this.

Someone help me! 😭

@mecfs
@chronicpain @chronicillness
@disabilityjustice



halcionandon , to disability
@halcionandon@disabled.social avatar
tomkindlon , to disability
@tomkindlon@disabled.social avatar

It can be useful to get people who are not doctors to write reports about how an illness or disability has affected somebody when applying for disability payments in lots of countries

This document is from the US but the questions could give ideas about areas people in other countries could write about when writing such a report

https://www.ssa.gov/forms/ssa-3380.pdf

@chronicillness @spoonies @disability @mecfs @longcovid

1/

halcionandon , to disability
@halcionandon@aus.social avatar

Please help me find a or any willing to prescribe patches ( or dose equivalent) within the next 13 days in

Refused meds by GP who promised to prescribe until I found a new GP (he dropped me because my case is too complex). Changed his mind! Now have 13 days to find any doctor to write a script or agony for me & no control.

Time running out fast!😫

appreciated!


@chronicpain
@mecfs

@longcovid
@chronicillness
@spoonies
@disability

halcionandon , (edited ) to disability
@halcionandon@aus.social avatar

Please help me find a or any willing to prescribe patches ( or dose equivalent) within the next 13 days in

Refused meds by GP who promised to prescribe until I found a new GP (he dropped me because my case is too complex). Changed his mind! Now have 13 days to find any doctor to write a script or agony for me & no control.

Time running out fast!😫

appreciated!


@chronicpain
@mecfs

@LongCovid,pe
@chronicillness
@spoonies
@disability

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