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tomkindlon , to disability
@tomkindlon@disabled.social avatar

Ancient Greek word of the day: κακοθερής (kakotherēs), unsuited to endure summer heat (literally, bad at summer).

My thoughts are with those with conditions such as ME for which this is relevant.

Hashtags:
@longcovid
@chronicillness
@spoonies
@disability
@mecfs

tomkindlon , to disability
@tomkindlon@disabled.social avatar

From ABC (Australia)

"Not everyone who uses a wheelchair is paralysed. This is what ambulatory users want you to know"

https://www.abc.net.au/news/2024-06-18/ambulatory-wheelchair-mobility-aid-users/103937484

One of the people interviewed has ME/CFS

=========================
Hashtags:
@chronicillness
@spoonies
@disability
@longcovid
@mecfs







tomkindlon , to disability
@tomkindlon@disabled.social avatar

@chronicillness
@spoonies
@disability
@longcovid @mecfs

tomkindlon , to disabilityjustice
@tomkindlon@disabled.social avatar

UK Government Open Consultation
“Modernising support for independent living: the health & disability green paper”

Article with links
https://www.gov.uk/government/consultations/modernising-support-for-independent-living-the-health-and-disability-green-paper

The government has published a series of documents including a Green paper & evidence pack

@disability @disabilityjustice
@chronicillness @spoonies

1/

tomkindlon OP ,
@tomkindlon@disabled.social avatar

2/

There is consultation questionnaire about whether assessment for PIP should be based more on a diagnosed condition or on its functional impact; about the need for assessment and review for awarding PIP, and how to assess fluctuating conditions.


@disability @disabilityjustice @chronicillness @spoonies
@mecfs

halcionandon , to disabilityjustice
@halcionandon@aus.social avatar

Please and share to other platforms.

Seems I’m famous (and real!) and desperate enough to go to the media for help. Yes, the trapped woman in the article below is me.

https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/

I’ve tried every level of government and they simply won’t help. Ask people in real life if they have somewhere for me to go. Is anybody an ? I need help.

@covid19 @mecfs @chronicillness @auscovid19 @neisvoid @disability @disabilityjustice @socialwork
@dysautonomia
@dysclinic
@mutualaid

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

Please boost.

Seems I’m famous (and real!) and desperate enough to go to the media for help.

https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/

@mecfs
@chronicillness
@longcovid
@neisvoid
@disability
@disabilityjustice
@longcovidaus
@hypothyroidism

tomkindlon , to disabilityjustice
@tomkindlon@disabled.social avatar

People with disabilities including a woman with ME complaining about how they have been treated by the Welsh health service

https://www.bbc.com/news/uk-wales-68891090

@chronicillness
@spoonies
@disability
@disabilityjustice
@mecfs

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

Help me please 🙏 Need somewhere else to live. Being / denied help.



@disabilityjustice @disability
@mecfs @mutualaid @longcovid
@neisvoid @chronicillness @socialwork @socialworkers @hypothyroidism @dysautonomia

halcionandon , to disabilityjustice
@halcionandon@aus.social avatar

Help me please 🙏 Need somewhere else to live. Being / denied help.



@disabilityjustice @disabilityjustice @mecfs
@mutualaid @longcovid
@neisvoid @chronicillness
@socialwork
@socialworkers
@hypothyroidism

halcionandon , to disabilityjustice
@halcionandon@aus.social avatar

Help me please 🙏 Need somewhere else to live. Being / denied help.


@disabilityjustice @disabilityjustice @mecfs
@mutualaid @longcovid
@neisvoid @chronicillness
@socialwork
@socialworkers

tomkindlon , to disability
@tomkindlon@disabled.social avatar

@mecfs
@longcovid
@chronicillness
@spoonies
@disability

tomkindlon , to disability
@tomkindlon@disabled.social avatar

Notes from a recent support group meeting: "Minority Survival Skills: Facing Internal & External
Ableism".

Note: "minority" here doesn't refer to ethnic or racial groups but having a or

https://batemanhornecenter.org/wp-content/uploads/2024/02/20240216-Support-Group-Recap.pdf

https://batemanhornecenter.org/wp-content/uploads/2024/02/Minority-Survival-Skills-The-Victim-and-Empowered-Identities-for-Chronic-Illness-and-Disability.pdf

@mecfs
@chronicillness
@spoonies
@disability

tomkindlon , to disabilityjustice
@tomkindlon@disabled.social avatar

(Ireland)

This is an easy to read summary of the green paper on disability reform that is out for consultation.

https://www.gov.ie/pdf/?file=https%3A%2F%2Fassets.gov.ie%2F270940%2F581637ed-ada2-4cb4-a913-efb099245992.pdf&fbclid=IwAR2Ithrzv1BCYvpqdhq0wKO7AYzrFem9vMOK7q7i3WYyQNn6H6E1DFQw1HU#page=null

With just 2 weeks to go to the deadline for submissions, this document I think is a good place to start if you haven't started reading.


@chronicillness
@spoonies
@disability
@disabilityjustice
@mecfs

1/

tomkindlon , to disabilityjustice
@tomkindlon@disabled.social avatar

My new blog post:

Comments from an ME/CFS perspective on “The Green Paper on Disability Reform:a flawed effort to reform payments for people with disabilities" (Cousins)

https://forums.phoenixrising.me/blog-articles/comments-from-an-me-cfs-perspective-on-the-green-paper-on-disability-reform-a-flawed-effort-to-reform-payments-for-people-with-disabilities-cousins.3482/


@mecfs
@chronicillness
@spoonies
@disability
@disabilityjustice

tomkindlon , to disabilityjustice
@tomkindlon@disabled.social avatar

Jo Hunt:

My new paper on welfare reform politics and the risk of following the trajectory of stigmatised conditions such as . Includes health & disability White paper, macro-politics of the PACE trial, psy-corporate-state alliances etc.

https://journals.sagepub.com/doi/10.1177/02610183241229050

@longcovid
@mecfs

@chronicillness
@spoonies
@disability
@disabilityjustice

tomkindlon OP ,
@tomkindlon@disabled.social avatar

2/

Hunt outlines the history of the construct of "‘deserving’ and ‘undeserving’ impairment, ill-health and related disability" that causes problems for people with ME/CFS, and likely also for people with .

@longcovid @mecfs @chronicillness @spoonies @disability @disabilityjustice

tomkindlon , to disability
@tomkindlon@disabled.social avatar

“Why the pandemic isn't over for me”

About navigating in the pandemic when you have an underlying condition making you more vulnerable for the infection.

https://alifehidden.com/2024/02/07/pandemic/

@longcovid

@covid19
@novid
@auscovid19
@mecfs

@chronicillness
@spoonies
@disability

1/

halcionandon , to disabilityjustice
@halcionandon@aus.social avatar

& heat stroke no air con live on protein shakes

Everyone coughing no masks. They had party no food for me.

and hungry.

Help me find

@mecfs @dysautonomia @disabilityjustice
@longcovid
@disability

halcionandon , to disabilityjustice
@halcionandon@aus.social avatar

& heat stroke no air con live on protein shakes

Everyone coughing no masks. They had party no food for me.

and hungry.

@mecfs
@dysautonomia
@disabilityjustice

tomkindlon , to disability
@tomkindlon@disabled.social avatar

Somebody shared the following saying: "I found this video on tiktok and it explains m.e so well" and "I saw it and thought to myself I
relate so much"

Here's the TikTok link:
https://www.tiktok.com/@jeremyandrewdavis/video/7135061608316833070

@chronicillness
@spoonies
@disability
@mecfs
@longcovid

video/mp4

tomkindlon , to disability
@tomkindlon@disabled.social avatar

Got my mobility scooter bus pass today. 😀

My scooter doesn’t have a tight turning circle so using it on a bus is a lot harder than my powered wheelchair but after my lesson today I feel confident enough using it on buses 😀

More in #2

@mecfs @longcovid
@chronicillness
@spoonies
@disability




tomkindlon , to disability
@tomkindlon@disabled.social avatar

"ABC (Australia) Article: For People Like Kate Who Live With , The Thought Of Evacuating In A Disaster Is Daunting"

https://www.abc.net.au/news/2023-11-19/calls-for-more-inclusive-disaster-planning/103114376

@chronicillness
@spoonies
@disability @mecfs

tomkindlon , to disabilityjustice
@tomkindlon@disabled.social avatar

"Framing the activists: gender, race, and rhetorical disability in contested illnesses"

https://www.tandfonline.com/doi/full/10.1080/00335630.2023.2291895

@mecfs

@longcovid

@disability @disabilityjustice @chronicillness
@spoonies

halcionandon , to disabilityjustice
@halcionandon@aus.social avatar

I desperately need an . A advocate to be precise. If you are able to help, let me know. Do you know anyone else who can help? Yes I’ve checked all the lists books are closed. best but anywhere in is ok you can dial into any meetings.

Please boost. 🙏

@chronicillness
@ChronicIllness

@disabilityjustice
@DisabilityJustice
@disability
@chronicpain
@mecfs @LongCovid
@longcovid
@auscovid19

tomkindlon , to disability
@tomkindlon@disabled.social avatar

On , please remember that not all disabilities are visible.

@chronicillness
@spoonies
@disability


@mecfs
@longcovid

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

please

GPs in clinics are waiting for me to:

  1. Go into (I’m not aged.)
  2. To see a (Who works in their clinic.)
  3. Because I don’t fit their business model. (They won’t or me even if I see them once.)

Yes they literally said this.

Someone help me! 😭

@mecfs
@chronicpain @chronicillness
@disabilityjustice



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