"Gordon Waddell, back pain, the subversion of the biopsychosocial model, and the UK government's development of a victim-blaming approach to disability" by Katie Johnstone (ME/CFS advocate)
This piece on Special Needs Letter of Intent” & others on site were recommended by an ME caregiver. It’s about “provid[ing] the people who will care for your child when you are gone with detailed info only you know”
Applying for the #NDIS is soul destroying and they keep adding more paperwork and meetings and bullshit just to wear us down.
I submitted my application in April. I’d been working on it for a year. They generally tell you yes or no without 6 weeks. Instead I didn’t get a reply, I was told the application process has changed and they needed more goals and more meetings. First I was told it was optional, now I’m told it isn’t. Which one is it??
I look like this most days and they want more bloody meetings!?
Applying for the #NDIS is soul destroying & they keep adding paperwork & meetings & bullshit just to wear us down.
Application submitted in April. A year working on it. They tell you yes or no in about 6 weeks. Instead I was told the application process has changed & they needed more goals & more meetings. First optional, now compulsory.
I look like the photo below most days & they want more bloody meetings!?
Applying for the #NDIS is soul destroying & they keep adding paperwork & meetings & bullshit just to wear us down.
Application submitted in April. A year working on it. They tell you yes or no in about 6 weeks. Instead I was told the application process has changed & they needed more goals & more meetings. First optional, now compulsory.
I look like the photo below most days & they want more bloody meetings!?
There is consultation questionnaire about whether assessment for PIP should be based more on a diagnosed condition or on its functional impact; about the need for assessment and review for awarding PIP, and how to assess fluctuating conditions.
I’ve tried every level of government and they simply won’t help. Ask people in real life if they have somewhere for me to go. Is anybody an #advocate? I need help.
Comments from an ME/CFS perspective on “The Green Paper on Disability Reform:a flawed effort to reform payments for people with disabilities" (Cousins)
My new paper on welfare reform politics and the risk of #longCovid following the trajectory of stigmatised conditions such as #MECFS. Includes health & disability White paper, macro-politics of the PACE trial, psy-corporate-state alliances etc.
Hunt outlines the history of the construct of "‘deserving’ and ‘undeserving’ impairment, ill-health and related disability" that causes problems for people with ME/CFS, and likely also for people with #LongCOVID.