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@halcionandon@disabled.social cover
@halcionandon@disabled.social avatar

halcionandon

@[email protected]

I’m severely #disabled by #ChronicIllness.

I have #SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS/ #Dysautonomia #ChronicPain & more, topped off with #LongCovid. Hi #NEISvoid

Interests now include not being #exhausted, in #pain, or rejected by doctors for being too complex a patient. (Know good #doctors #GPs in #Melbourne taking patients?)

Need help with #accommodation #NDIS #GP #carer/ #caregiver & navigating the system. LMK!

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halcionandon , to writers
@halcionandon@disabled.social avatar

Are there any Australian or wiling to write & publish a piece on me? I’m trying to escape abuse, find an , get the , etc. I‘ve tried all the orgs & the government isn’t interested either. I’m anonymous publicly for my safety but will of course share information with you.
The Canary UK has written a piece about me but I’m yet to find help:
https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/

@journalismandcomment
@writers
@disability
@disabilityjustice
@ndis
@mecfs
@chronicillness

halcionandon , to disability
@halcionandon@disabled.social avatar

Some advocates I’ve been in contact with in the past have discriminated again me because am disabled (& have functional limitations).

What we’re they expecting? That’s why I need their help!

We don’t have enough people in the social welfare system and some that we do have are extremely dodgy (some are fantastic but they have years long waiting lists or charge unaffordable fees). Where does that leave people that need help? Where I am, if not worse.

@disability
@disabilityjustice

halcionandon OP ,
@halcionandon@disabled.social avatar

@disability @disabilityjustice

If I wasn’t able to function enough to do admin, I‘d likely be dead by now. I think the govt wouldn’t mind one less ‘useless eater’.

This leaves me wondering what will happen if I can’t do basic admin at some stage.

(When I say admin - roughly 10 emails, replies, sometimes a form on a heavy day. I’m bedridden. I barely have energy to do basics so sometimes I have to choose between eating & doing admin. This doesn’t include life admin like ordering food!)

halcionandon , to disability
@halcionandon@disabled.social avatar

Still really need an . The orgs are all still full in my catchment and will be in the foreseeable future.

If anyone out there can help, please let me know.

🙏

@socialwork
@socialworkers
@mutualaid
@chronicillness
@disabilityjustice
@disability

halcionandon , to disability
@halcionandon@disabled.social avatar

Bad news bad news bad news.

I desperately need an advocate and a place to stay.

Help me please.

This never works but god maybe someone will help me for once.

@socialwork
@disabilityjustice
@disability
@mecfs

halcionandon OP ,
@halcionandon@disabled.social avatar

@socialwork @disabilityjustice @disability @mecfs

Why does nothing ever work out for me. I don’t know what else to do.

I can never get anywhere. Please help me get away from my abussive family. 😭

halcionandon OP ,
@halcionandon@disabled.social avatar

@Asenzi @socialwork @disabilityjustice @disability @mecfs

halcionandon , to disability
@halcionandon@disabled.social avatar

This is me:
https://t.co/f1vB5pXoK6

People helping me is most important. I need an & safe place to live most. Please consider.🙏

There’s help links in the article but to summarise:

Crowdfund: https://www.buymeacoffee.com/halcionandon

Also:
People with Australian bank accounts can use https://www.beem.com.au to pay @halcionandon. Fee free & anonymous.

Please & thanks for reading. Help not expected but appreciated.💜


@disability @mutualaid
@mecfs
@chronicillness

halcionandon OP ,
@halcionandon@disabled.social avatar

@Rob200 @mutualaid @mecfs @chronicillness @disability
Not homeless yet.Trying very hard to avoid that situation. The other living conditions are in the article.

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

Please boost.

Seems I’m famous (and real!) and desperate enough to go to the media for help.

https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/

@mecfs
@chronicillness
@longcovid
@neisvoid
@disability
@disabilityjustice
@longcovidaus
@hypothyroidism

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

How can I get people to consider me as a ? What can I do?

People will live with strangers who advertise on Gumtree but I’m too…? I not going to kill your pets or steal anything.

🤷‍♀️

@disability
@disabilityjustice
@chronicillness
@nostupidquestions

halcionandon OP ,
@halcionandon@disabled.social avatar

@Aileen22 @disability @disabilityjustice @chronicillness @nostupidquestions

Yes I keep posting that I can pay part of the rent as well as pay them for being my carer, so that’s roughly the same I think.There’s government help but people really don’t want anything to do with government agencies here so maybe that’s the problem.

I’m not sure if there is a platform for this in Australia. If anyone knows, let me know please.

halcionandon OP ,
@halcionandon@disabled.social avatar

@bike @disability @disabilityjustice @chronicillness @nostupidquestions

Awww thank you.

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

plz Situation terrible. 😔

suffering . Food withheld, basic needs ignored.

If you can offer a room & be a please help. Ask everyone you know. Boost until someone sees.

Can pay carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week. Can go halves in rent too, depending on your needs

Don’t give up on me I can’t survive here.

In ,

@disabilityjustice @disability @chronicillness

halcionandon , to disability
@halcionandon@disabled.social avatar

Can people PLEASE help me contact / /places of worship/ community groups & ask if they can help me find somewhere to live.

Don’t have to be in . Search for help in area. Search the . Anywhere.

Ask your place of if you have one.🙏

None of the orgs I‘ve been referred to help people with or
(Orange Door, Safe Steps I’ve tried them all.)

I cannot live like this anymore.

@chronicillness @mutualaid
@disability

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

Help me please 🙏 Need somewhere else to live. Being / denied help.



@disabilityjustice @disability
@mecfs @mutualaid @longcovid
@neisvoid @chronicillness @socialwork @socialworkers @hypothyroidism @dysautonomia

halcionandon OP ,
@halcionandon@disabled.social avatar

@disabilityjustice @disability @mecfs @longcovid @neisvoid @chronicillness @socialwork @socialworkers @hypothyroidism @dysautonomia @mutualaid

I don’t understand why people in other countries offer help but barely any from . Especially .The sicker you get & more help you need the more people feel sad & switch you off &put you on the pile as “not my problem” or “someone else will do it”
No they won’t.

No offer of room or any accommodation so far.
🥺

Please help if you can.

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

plz Situation terrible. 😔

If anyone wants to take me in & be my you’re welcome to help.

It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances.

In ,

@disabilityjustice @disability @chronicillness @mecfs @mutualaid

halcionandon , to random
@halcionandon@disabled.social avatar

Woke with fever. No more god plz
😭

halcionandon OP ,
@halcionandon@disabled.social avatar

Abusers brought me again
3rd time. They won’t mask.

Already got

Get me out of here please 🙏

Anyone in help. Will move states too.


@mutualaid
@disability
@disabilityjustice @mecfs
@longcovid
@socialwork
@socialworkers

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

plz Situation terrible. 😔

If anyone wants to take me in & be my you’re welcome to help.

It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living circumstances.

In ,

@disabilityjustice @disability @chronicillness @mecfs
@mutualaid

halcionandon OP ,
@halcionandon@disabled.social avatar

@disabilityjustice @disability @chronicillness @mecfs @mutualaid

By carer, I mean do some basics like throw some laundry in the wash, bring me food a few times a day (no need to cook, I’m eating ready meals), basic help.

Please ask around if anyone to see if anyone can help. The economy is busted. There surely must be someone with a spare room who can use the extra money I pay in rent/board and provide at least minimal care so can escape abuse.

Please help.

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

My are evil. I have to give up appts I’ve waited 12-18 months for & my birthday bc they’re going to make this environment even worse by adding another abuser so I’ll be in sensory overload / hell.

I’ll be lucky to get a cupcake.

I can’t survive this again. Stuffed in a dark room forgotten & getting scraps.

I need somewhere else to live.

Help me 😭

In , .


@mecfs
@multipledisabilities
@chronicillness
@dysautonomia
@disabilityjustice

halcionandon , to random
@halcionandon@disabled.social avatar

My part time advocate quit. Only had some help for 3 months then she went on 2 months leave and now tells me she isn’t coming back because I’m too much. So that’s nice. 😩 I’m so tired.

halcionandon OP ,
@halcionandon@disabled.social avatar

Anyone out there an
Could really use the help.

@disability
@disabilityjustice

halcionandon , to disability
@halcionandon@disabled.social avatar

Why do people assume that families of people are nice?

Just automatically assume no questions.

Why?

@multipledisabilities
@disability
@chronicillness

halcionandon OP ,
@halcionandon@disabled.social avatar

@multipledisabilities @disability @chronicillness

Why is there this assumption?

halcionandon , to disability
@halcionandon@disabled.social avatar

Do these cooler type things work at all? I have to survive another upcoming heatwave and can’t regulate my body temperature () so am risking heatstroke again.

Just humidity machines? (Humidity makes thinks even worse).

https://sotrends.com/frigus-pro-sale/

Do no have air conditioning and abuser will no allow me to have one.

@dysautonomia
@disability
@hypothyroidism
@mecfs
@multipledisabilities
@multiplesclerosis

halcionandon OP ,
@halcionandon@disabled.social avatar

@dysautonomia @disability @hypothyroidism @mecfs @multipledisabilities @multiplesclerosis

Anybody alternatives to aircon?

Cannot regulate body temperature, trying to survive coming heatwave.

halcionandon OP ,
@halcionandon@disabled.social avatar

@robotistry @dysautonomia @disability @hypothyroidism @mecfs @multipledisabilities @multiplesclerosis

Yep do all these things.

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

are .

I am so weak and hungry cannot think.

I tried so hard to get out of here but I can’t get away. I tried so hard be they worse when I am very sick and can’t fight back. 😭 They promised to help during tough week. Instead screamed at denied rest and food.

I’ll be dead by year is out if this continues.

@disabilityjustice @disability
@chronicillness
@mecfs

halcionandon OP ,
@halcionandon@disabled.social avatar

@disabilityjustice @disability @chronicillness @mecfs

They know I have nowhere to go and block anyone trying to help. They punish me for trying. 😭

halcionandon OP ,
@halcionandon@disabled.social avatar

@disabilityjustice @disability @chronicillness @mecfs

If anyone wants to take me in and be my carer you’re welcome to help.

That hasn’t worked so far but people are poorer now so maybe🤞

It would include carer allowance (not means tested, about 75$ week) carer allowance (up to about $500 a week if you aren’t working, or possibly less depending on how much you work.) We could go halves in rent or some other arrangement depending on your living arrangement.

halcionandon OP ,
@halcionandon@disabled.social avatar

@disabilityjustice @disability @chronicillness @mecfs

Please ask any Australians you know if they can help me with /. Situation worsening. Please 🤞😩😭

I am in ,

halcionandon OP ,
@halcionandon@disabled.social avatar

@disabilityjustice @disability @chronicillness @mecfs

Can somebody please post this to other platforms? I can only manage here & X. 🙏

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

Abusers are abusing.

I am so weak and hungry cannot think.

I tried so hard to get out of here but I can’t get away. I tried so hard be they worse when I am very sick and can’t fight back. 😭 They promised to help during tough week. Instead screamed at denied rest and food.

I’ll be dead by year is out if this continues.

@disabilityjustice @disability

halcionandon OP ,
@halcionandon@disabled.social avatar

@disabilityjustice
@disability

They know I have nowhere to go and block anyone trying to help. They punish me for trying. 😭

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

I desperately need an . If you are able to help, let me know. best but anywhere in is ok you can dial into any meetings.

Yes I‘be checked all the lists. There’s nobody free.

Please boost. 🙏


@chronicillness
@disability
@disabilityjustice

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

please

GPs in clinics are waiting for me to:

  1. Go into (I’m not aged.)
  2. To see a (Who works in their clinic.)
  3. Because I don’t fit their business model. (They won’t or me even if I see them once.)

Yes they literally said this.

Someone help me! 😭

@mecfs
@chronicpain @chronicillness
@disabilityjustice



halcionandon OP ,
@halcionandon@disabled.social avatar

@maggiejk @disabilityjustice

If if I came in they wouldn’t help. I’m too complex.

Here they get paid for Telehealth so it makes no doctors difference in terms of money.

I’m severe heading to very and it doesn’t matter they’d rather see me get worse to fit their model

halcionandon , to disability
@halcionandon@disabled.social avatar

Very sick feel body is finally giving up.

@mecfs
@longcovid
@chronicpain
@chronicillness
@disability

halcionandon OP ,
@halcionandon@disabled.social avatar

Don’t know what will happen but won’t last another year without miracle.

@mecfs @longcovid @chronicpain @chronicillness @disability

halcionandon , (edited ) to disability
@halcionandon@disabled.social avatar

Still no GP. Even $400+ functional GPs rejecting me because health problems too complex.

Australia the 3rd world country. Leaving me to rot. 😔

@chronicillness
@mecfs
@disability
@longcovid
@neisvoid

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