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halcionandon , to disability
@halcionandon@aus.social avatar

Please

Finally got dr permission for IV magnesium. I don’t absorb it any other way so I am extremely deficient in it and ill. Can provide materials.

Problem is that I can’t find anyone to come out here in suburbia for less than $600 (check cost of wellness clinics in Melbourne. Expensive or don’t do at all. )

If you are a or have any experience running a drip, please reply/DM. I don’t care if you learned it DIY as long as you know what you’re doing.

This treatment changes my life from bedridden to 60% of normal in a few months! That’s mildly ill in comparison.
It helps every symptom I have.
Hospitals only give it for preeclampsia. Hospital in the Home is the same. Private nurse services same.
It’s so basically going through proper channels doesn’t help.

It’s not illegal to have someone qualified come out and do it as long as doc has signed off on it which is why wellness clinics can do it. But medical system won’t. I know it doesn’t make sense but it’s Australia 2024. If you don’t have formal qualifications we can figure it out.

I’ve even asked the government for help. Nothing.

Was informed even private insurance wouldn’t help with this (I don’t have it ofc but this is an example of how hard and stupid this is.)

P-l-e-a-s-e post to other platforms. I have no team to help promote me I barely have any energy for basics . I have no energy to advertise. If you can help an team also let me know.

Please give me some quality of life.

I’m in .
If you’re willing to drive a distance will compensate for petrol and pay what you think is fair for your time.

TLDR: Need nurse or any qualified healthcare worker to come to my place to give magnesium IV.
Even consider unqualified if you know what you’re doing.

@longcovid @mecfs @dysclinic
@chronicillness
@chronicpain
@migraine
@disabilityjustice
@disability
@DisabilityJustice
@disability
@socialwork
@socialworkers
@communitycare @mutualaid

Help me get out of bed, gain health, get far away from my abusers.

This is me:

ideogram , to actuallyautistic
@ideogram@social.coop avatar

I've had it suggested that I don't notice when I am stressed or anxious and that my migraines are a manifestation of that.
In other news I've had two migraines in two days and I'm lying in a darkened room having left work early.

@actuallyautistic

ideogram , to actuallyautistic
@ideogram@social.coop avatar

My psychologist suggested that I don't realise when I'm overwhelmed and that's why I have migraines and meltdowns.

I think this is true and it has helped me today when I got migraine aura and I was able to withdraw to a dark room for a while to reset myself a little. I oftentimes previously have tried to push through symptoms without much success when I am at work.

@actuallyautistic

lifewithtrees , to actuallyadhd
@lifewithtrees@mstdn.social avatar

Question for the @actuallyadhd and potentially @actuallyautistic

I am someone who gets migraines and have since I was 8. The reason was never uncovered, but I know migraines are more common among neuroduvergent folks like myself.

My question for you is this:

When you have pain, what do you do to help manage it so your emotional regulation goes out the window?

In short, I can be mean when I am in the midst of migraine.

I want to do better.

Any advice?

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