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tomkindlon , to disability
@tomkindlon@disabled.social avatar

US research:

The hidden crisis: 's association with housing stability and home accessibility among people with disabilities

Free full text:
https://www.sciencedirect.com/science/article/pii/S1936657424000815

"Associations between Long and challenges related to housing stability and home accessibility highlight the need for systemic changes, financial support, and advocacy."

@longcovid

@disability
@disabilityjustice

tomkindlon , to disability
@tomkindlon@disabled.social avatar

Ancient Greek word of the day: κακοθερής (kakotherēs), unsuited to endure summer heat (literally, bad at summer).

My thoughts are with those with conditions such as ME for which this is relevant.

Hashtags:
@longcovid
@chronicillness
@spoonies
@disability
@mecfs

tomkindlon , to disability
@tomkindlon@disabled.social avatar

From ABC (Australia)

"Not everyone who uses a wheelchair is paralysed. This is what ambulatory users want you to know"

https://www.abc.net.au/news/2024-06-18/ambulatory-wheelchair-mobility-aid-users/103937484

One of the people interviewed has ME/CFS

=========================
Hashtags:
@chronicillness
@spoonies
@disability
@longcovid
@mecfs







kerstinsailer , to disabilityjustice
@kerstinsailer@sciences.social avatar

Pure brilliance and so much empathy in this piece by @martinruecker on (as well as ) sufferers
https://www.martin-ruecker.com/anna-and-the-beast

As Martin normally writes in German, this is something for the English speaking community as well

@disabilityjustice

tomkindlon , to disability
@tomkindlon@disabled.social avatar

@chronicillness
@spoonies
@disability
@longcovid @mecfs

AceyAngel , to actuallyautistic
@AceyAngel@disabled.social avatar

Looking to support a fellow Autist whilst navigating your own ASD journey?

I invite you to follow my Autistic Diaries Blog!

I share insight on my own personal experiences as a Chronically ill Autistic person. My life, my diagnosis, and some information about Autism and my chronic illnesses (Coeliac and Graves', as well as POTS, and other conditions)

https://buymeacoffee.com/addriannawa/welcome-my-autistic-diaries-blog

@actuallyautistic

AceyAngel OP ,
@AceyAngel@disabled.social avatar

New post for potential supporters is now live!

"Chronic Illness After Covid"

A little rant about what it's been like recovering from Long Covid, as well as having been chronically ill prior to the Pandemic.

https://buymeacoffee.com/addriannawa/chronic-illness-after-covid

@actuallyautistic

halcionandon , to disabilityjustice
@halcionandon@aus.social avatar

Please and share to other platforms.

Seems I’m famous (and real!) and desperate enough to go to the media for help. Yes, the trapped woman in the article below is me.

https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/

I’ve tried every level of government and they simply won’t help. Ask people in real life if they have somewhere for me to go. Is anybody an ? I need help.

@covid19 @mecfs @chronicillness @auscovid19 @neisvoid @disability @disabilityjustice @socialwork
@dysautonomia
@dysclinic
@mutualaid

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

Please boost.

Seems I’m famous (and real!) and desperate enough to go to the media for help.

https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/

@mecfs
@chronicillness
@longcovid
@neisvoid
@disability
@disabilityjustice
@longcovidaus
@hypothyroidism

halcionandon , to disabilityjustice
@halcionandon@disabled.social avatar

Help me please 🙏 Need somewhere else to live. Being / denied help.



@disabilityjustice @disability
@mecfs @mutualaid @longcovid
@neisvoid @chronicillness @socialwork @socialworkers @hypothyroidism @dysautonomia

halcionandon , to disabilityjustice
@halcionandon@aus.social avatar

Help me please 🙏 Need somewhere else to live. Being / denied help.



@disabilityjustice @disabilityjustice @mecfs
@mutualaid @longcovid
@neisvoid @chronicillness
@socialwork
@socialworkers
@hypothyroidism

cbecker , to academicchatter
@cbecker@hci.social avatar

This is how you can organize a covid-safe event. Hint: it's neither very expensive nor very difficult.
https://www.eventbrite.ca/e/ed-yong-public-lecture-on-long-covid-tickets-849000241577 with the great @edyong209 - virtual option too.

@academicchatter

halcionandon , to random
@halcionandon@disabled.social avatar

Woke with fever. No more god plz
😭

halcionandon OP ,
@halcionandon@disabled.social avatar

Abusers brought me again
3rd time. They won’t mask.

Already got

Get me out of here please 🙏

Anyone in help. Will move states too.


@mutualaid
@disability
@disabilityjustice @mecfs
@longcovid
@socialwork
@socialworkers

inquiline , to academicchatter
@inquiline@union.place avatar

"Getting tenure was so profoundly destructive to my health that it prepared my body for severe one Latina researcher in the humanities tells Nature. “I feel like my academic job demands my death.”

https://www.nature.com/articles/d41586-024-00819-w

@academicchatter

just_me_gi , to disabilityjustice
@just_me_gi@mastodon.cloud avatar

Question: Anyone who specializes in indoor air quality able to take a look at something? Used @cleanairstars tool to ask for filters for a classroom and was told it's not needed bc HVAC is ASHRAE 62.1. Thanks!

@longcovid @novid
@cleanaircrew @cleanairkits @disability @disabilityjustice

tomkindlon , to disability
@tomkindlon@disabled.social avatar

@mecfs
@longcovid
@chronicillness
@spoonies
@disability

just_me_gi , to disabilityjustice
@just_me_gi@mastodon.cloud avatar

Sharing for a friend. Please boost/repost!

Parent or teacher interested in a Covid safe school?! Centered in disability justice. One is forming in MA/RI, location TBD. Email for more info or with questions!

@disability @mcas
@chronicillness
@disabilityjustice
@education @neurodivergents

tomkindlon , to disabilityjustice
@tomkindlon@disabled.social avatar

Jo Hunt:

My new paper on welfare reform politics and the risk of following the trajectory of stigmatised conditions such as . Includes health & disability White paper, macro-politics of the PACE trial, psy-corporate-state alliances etc.

https://journals.sagepub.com/doi/10.1177/02610183241229050

@longcovid
@mecfs

@chronicillness
@spoonies
@disability
@disabilityjustice

tomkindlon OP ,
@tomkindlon@disabled.social avatar

2/

Hunt outlines the history of the construct of "‘deserving’ and ‘undeserving’ impairment, ill-health and related disability" that causes problems for people with ME/CFS, and likely also for people with .

@longcovid @mecfs @chronicillness @spoonies @disability @disabilityjustice

tomkindlon , to disability
@tomkindlon@disabled.social avatar

“Why the pandemic isn't over for me”

About navigating in the pandemic when you have an underlying condition making you more vulnerable for the infection.

https://alifehidden.com/2024/02/07/pandemic/

@longcovid

@covid19
@novid
@auscovid19
@mecfs

@chronicillness
@spoonies
@disability

1/

halcionandon , to disabilityjustice
@halcionandon@aus.social avatar

& heat stroke no air con live on protein shakes

Everyone coughing no masks. They had party no food for me.

and hungry.

Help me find

@mecfs @dysautonomia @disabilityjustice
@longcovid
@disability

halcionandon , to disabilityjustice
@halcionandon@aus.social avatar

& heat stroke no air con live on protein shakes

Everyone coughing no masks. They had party no food for me.

and hungry.

@mecfs
@dysautonomia
@disabilityjustice

janetlogan , to actuallyautistic
@janetlogan@mas.to avatar

ATL is a huge and busy airport. I've seen maybe 3 masks. Sigh.

It's going to be a long day. Upper back pain has begun. So is flaring.

I'm past security, so I can relax. I'm safe. So why is my brain still in hyper vigilant mode?

@spoonies @actuallyautistic

Dynamicallydisabled , to autisticadvocacy
@Dynamicallydisabled@spore.social avatar

Maybe you've heard that people can be nonverbal or nonspeaking. But did you know there are many ways to be semi-speaking? I'll list some I just learned about below. Sing out if any of these resonate with you! @autisticadvocacy

Dynamicallydisabled OP ,
@Dynamicallydisabled@spore.social avatar

@autisticadvocacy Expensive speech is the newest term for me. It resonates so deeply as someone with energy-limiting illness. I imagine many people with might resonate with this one as well.

tomkindlon , to disability
@tomkindlon@disabled.social avatar

Somebody shared the following saying: "I found this video on tiktok and it explains m.e so well" and "I saw it and thought to myself I
relate so much"

Here's the TikTok link:
https://www.tiktok.com/@jeremyandrewdavis/video/7135061608316833070

@chronicillness
@spoonies
@disability
@mecfs
@longcovid

video/mp4

tomkindlon , to disability
@tomkindlon@disabled.social avatar

Got my mobility scooter bus pass today. 😀

My scooter doesn’t have a tight turning circle so using it on a bus is a lot harder than my powered wheelchair but after my lesson today I feel confident enough using it on buses 😀

More in #2

@mecfs @longcovid
@chronicillness
@spoonies
@disability




robotistry , to disability
@robotistry@sciencemastodon.com avatar

Does anyone know what happened to the Hummingbird Foundation for ME website? They had a really nice symptom severity scale that I used to point people to, but the whole website is gone now.

Does anyone know whether it would be okay if I post the scale directly in the MEPedia, since the link is broken?

@mecfs @longcovid
@disability

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