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@RolloTreadway@beige.party cover
@RolloTreadway@beige.party avatar

RolloTreadway

@[email protected]

Autistic Welsh NHS emergency care quality improvement person.
(they/them or he/him - those are familiar enough and will do.)

Most important:
Trans rights are human rights; Black lives matter; Tories always despise you even if they pretend not to.

Enthusiastic about woodland, cricket, silent film, constitutional stuff, birds, gardens, tea, sandwiches, music.

(Profile pic: Buster Keaton sits unhappily in a steamship funnel; header is a glass teapot full of leaves.)

This profile is from a federated server and may be incomplete. Browse more on the original instance.

Schnuckster , to bookstodon
@Schnuckster@beige.party avatar

I've only read one Ian McEwan book, On Chesil Beach, donkey's years ago, and I'm afraid I didn't see what all the fuss was about, but the premise of this one looks interesting, and it's short at least. @bookstodon

RolloTreadway ,
@RolloTreadway@beige.party avatar

@Schnuckster @bookstodon Read that quite a while ago, but I'm pretty sure I enjoyed it.

18+ ashleyspencer , to actuallyautistic
@ashleyspencer@autistics.life avatar

In 2019, every morning for months I ate pop tarts for breakfast when I first got to work.

Then I got sick of them and didn’t eat them again for 5 years until last week. Now I’m eating them every day again lol.

Anyone else do that where you eat a same food every day until you’re sick of it and don’t eat it again until years later?

@actuallyautistic

18+ RolloTreadway ,
@RolloTreadway@beige.party avatar

@ashleyspencer @actuallyautistic Pretty much. I don't usually eat the same thing every day, but I certainly eat certain things very regularly, and then not again for years.

If possible, I try not to let myself eat something so much that I wear it out, because that will reduce the number of things I'm able to eat.

farah , to actuallyautistic
@farah@beige.party avatar

I’ve been reading about “stimming in autism”, which up until now was very confusing to me mostly because that’s the one point kept being repeated in the community being a must for an autistic individual. And I can’t relate to that at all.

Then I came across something that describes the purpose of ‘stimming’ is to deal with extra energy. Then it kinda hit me, I’ve never had the need to stim because I’m a low energy person in general.

I get overwhelmed with activities when they involve raising heart rates (yes, THAT too). I like quiet things, dead of night etc. Once at a time in my life, I was pretty sure I could hear flow of electricity.

So my question to the community: do you think stimming is a must for autistic people? Do you relate to it? Anyone know of any low energy stimming that gets overlooked?

Thanks! Much love!! 💕 @actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@farah @actuallyautistic I absolutely don't think that stimming is inherent to being autistic. I think some of the things I do probably count as stimming, but 99% of what I see referred to as stimming is alien to me.

It frequently bothers me that I see so much 'we all do this', 'we all like that' in the community. I don't think it's helpful, and it can be othering and ostracising to autistic people (like me) who don't fit into what seems to be common niches.

LehtoriTuomo , to actuallyautistic

Someone asked whether I ever played Doom. No, not really. I told that I've never liked first person shooters and then it hit me. I never liked them as there's too much going on. In fact, I've never been a big fan of any types of shooters, the only exception being Cannon Fodder. Now, with the new-found autistic perspective, it makes perfect sense. Sensory overdrive all the time equals no fun. How about my fellow autistics, any fans of shooters?

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@LehtoriTuomo @actuallyautistic I've never got on with shooters. It might well be what you say - too much going on. I tend to find them annoying and tedious.

Schnuckster , to bookstodon
@Schnuckster@beige.party avatar

It's time. @bookstodon 📖

RolloTreadway ,
@RolloTreadway@beige.party avatar

@Schnuckster @bookstodon I think I read that, albeit a long time ago. Pretty sure I found it very interesting. Had a bit of a thing about central Asia at the time.

olena , to actuallyautistic
@olena@genomic.social avatar

I’ve heard today that people don’t form habits, they create routines.
I thought of my ‘useful habits’ - and yeah, right, they are routines.
But then I thought: well, what’s the difference then? What is a habit if NOT a routine?
Can anyone help me with examples of what may be a habit, but not a routine?

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@olena @actuallyautistic To my mind, the difference is that a routine has a schedule, even if it's a vague one - such as 'I must do x before I do y', or 'I must do z at some point before I try to sleep'.

A habit, on the other hand, happens not within a schedule but whenever you feel it is required. For example, 'I go for a run every day after work' is a routine; 'I go for a run every time I feel like I've been sitting still for too long' is a habit.

That's how I see it, anyway. Other opinions are available.

ChrisMayLA6 , to bookstodon
@ChrisMayLA6@zirk.us avatar

Here's a handy guide to check yourself against; which way do you display/store/shelve your ?

I have so many that I fit a number of different categories depending on which part of he house you're in.... I doubt I'm alone in my pluralist shelving habits

@bookstodon

https://www.theguardian.com/lifeandstyle/2024/jan/17/shelf-absorbed-nine-ways-to-arrange-your-bookshelves-and-what-they-say-about-you

RolloTreadway ,
@RolloTreadway@beige.party avatar

@ChrisMayLA6 @bookstodon My fiction books are haphazardly squeezed into an insufficient amount of bookshelf space, some upright and some on their side and some on top of others, very roughly alphabetised. But the one thing I do insist upon is that they are stored upside down until I've read them.

Non-fiction are scattered around all sorts of storage spaces, wherever I have room. I try to keep broad subjects together. But how I organise them within that changes all the time. Do I sort history books by author or subject? Is a civil war history book military history, political history, British history, or its own genre? And so on. I keep changing my mind.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

Do my comrades have a good relationship with their families of origin?

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic Not particularly. It's not really bad, though. We're just not close at all. When my mother dies, her funeral will probably be the last time I see anyone in my family.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

How do my comrades feel about airports?

Planes?

What are your top tips?

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic I hate airports. Not enormously fond of planes either. But particularly hate airports, everything about them appears to be designed as unpleasantly as possible.

I'm not saying I'll never fly again, because who knows what the future holds, but I certainly don't plan to ever fly again. Give me trains and ferries instead.

dave , to actuallyautistic
@dave@autisticnomad.social avatar

@actuallyautistic What are your thoughts on physical activity?

More specifically, do you find that it drains your energy more than most people? That you can't push yourself as hard as others? Or, put another way, that you need more rest and recovery time than most people?

Almost two years ago, I tried Couch to 5K. I made it to week five, then burned out and stopped because it so thoroughly drained every bit of energy I had.

I remember being so puzzled and confused about it. I remember thinking, what's wrong with me? I'm eating well. I'm eating enough. I'm getting enough sleep. I'm resting on my off days. I'm not extraordinarily out of shape and I was keeping up with the program well enough until the fifth week.

In retrospect, I'm wondering if it was an Autistic energy management problem, and I'm curious about others' experiences with C25K and other physical activity programs.

RolloTreadway ,
@RolloTreadway@beige.party avatar

@dave @actuallyautistic I've never tried couch to 5k or anything like that, because I know myself and it's not something I'd want to do at all.

But generally yes, absolutely. I hate exercise, I have to force myself to do enough to remain moderately healthy, and a big reason is that it swallows all my spoons and drains... whatever it is in my brain that allows me to maintain some kind of emotional balance.

18+ JeremyMallin , to actuallyautistic
@JeremyMallin@autistics.life avatar

Some of my triggers/tortures:

• very low pitch sound
• very high pitch sound
• very loud sound
• sock toe seams
• shirt wrist cuffs
• wrist watches
• in ear buds & plugs
• over ear head phones (but not as bad)
• wool clothing
• my whiskers
• my ear hair
• my nose hair
• background noise when I'm trying to hear
• very bright light
• very dim light
• artificial light
• rapidly blinking light
• repetitive sounds

What are yours?



@actuallyautistic

18+ RolloTreadway ,
@RolloTreadway@beige.party avatar

@JeremyMallin @actuallyautistic A few of mine that spring to mind:

The glossy paper envelopes that a lot of junk mail comes in. I have to handle it with gloves on.

Stickiness. One reason I stopped making bread by hand and bought a machine is that sticky dough feels sickening.

A certain type of uPVC door/window frame. I don't know exactly what it is but it's horrifying to touch.

In fact, most kinds of plastic-based door/window frames if I touch them with my fingernails. Most are okay for touching with my skin but nail contact is unbearable.

Pretty much all fake meats. I really want to eat fake meat so I keep trying new ones when they get invented. But so far the texture has been unmanageable on everything I've tried.

Similarly, mushrooms are a struggle unless they're cut very thin.

Jewellery. I absolutely hate wearing jewellery. Or coming into contact with anyone else's.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

Good morning comrades!

How long does it typically take you to "boot-up" in the morning?

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic Hmm. About twenty minutes to half an hour? I have a regular morning routine, and a light-up alarm clock that gradually gets me up and about, so yes, I'd say twenty to thirty minutes.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

What’s been the most important thing you’ve learned about yourself during your journey?

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic Is it silly to just say, that there's a reason why I am who I am?

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

How did my comrades come to know that they’re autistic?

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic A therapist (one of many I'd seen) suggested I might be, so she got me to do an informal test, which was followed by a formal assessment.

Before that - I was 35 - it had never even crossed my mind, I knew next to nothing about autism.

ChrisMayLA6 , to random
@ChrisMayLA6@zirk.us avatar

Hurrah... good sense breaks out in the as the 'Waitrose of the North', Booths begins to get rid of self-service check-outs.

Given the price premium at Booths, we (the customers) want the social interaction with staff at the checkouts, not be told to 'scan & bag'!

More importantly, not only do checkouts provide regular local employment, they are also for many semi-isolated shoppers a key bit of rare social interaction... so a welcome reverse!

https://www.bbc.co.uk/news/uk-england-lancashire-67373472

RolloTreadway ,
@RolloTreadway@beige.party avatar

@cvwillegen @dweebish @ChrisMayLA6 @Greenseer @actuallyautistic I would definitely use that if my local shop had the scan as you go devices. Maybe they will do one day. Anything to reduce my time in the shop is welcome, because it's all very stressful.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

What are some of my comrades' favorite scents?

Mine are lavender, vanilla, orange blossom, and pizza.

When you're feeling dysregulated, it's always good to keep something with it on hand to come back to center.

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic I often open the jar of fenugreek seeds just to have a sniff. It's a gorgeous smell.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

Good evening comrades!

If you could go anywhere right now, where would it be?

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic Languedoc. Down by the coast.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

Good morning comrades.

For the next 24 hours, go ahead and ASK ME ANYTHING.

Autism, history, food, spirituality, coffee, gardening, home design, torah, mindfulness, or anything in between!

I'm at your disposal.

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic Do you like cheese?

RolloTreadway ,
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic Mmmm, superb choices.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

Do my comrades struggle with eating too fast and taking in too much air?

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic Yes, I eat far too fast. But I always just assumed that, because I nearly always eat alone, there's nothing to make me slow down. Never considered there could be a deeper reason.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

How do my comrades think of themselves —— as a doer, a thinker, or a feeler?

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic A sleeper?

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

What role does nutrition play in the life of my comrades?

Do you monitor it and how it affects your day to day?

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic To an extent. I always keep an eye on how much fruit and veg I'm eating, because of an extensive family history of bowel cancer, and making sure I eat lots of plants helps reduce the risk.

But my bigger preoccupation is just ensuring that I'm eating, because I have problems with eating and I need to keep a stable meal schedule. Which is hard work.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

How did my comrades understand that they're autistic?

How old were you?

@actuallyautistic

RolloTreadway , (edited )
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic I'd seen so many therapists and other MH professionals. And one of them - I think maybe the ninth or tenth? - said towards the end of one session, 'has anyone ever suggested you could be autistic?'

And then we discussed it at the next session, I did an informal assessment which eventually led to a formal assessment and here we are.

But I really had no idea at all before that. Had never crossed my mind.

EDIT: and oh, I was 35.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

What are my comrades challenged with at the moment?

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic Is 'everything' a reasonable answer?

(I know your everything is a lot harder than mine, too, I hope you're looking after yourself as best you can.)

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

How many hours of sleep do my comrades get every night on average?

@actuallyautistic

RolloTreadway ,
@RolloTreadway@beige.party avatar

@theautisticcoach @actuallyautistic Hmmm. Nominally, about 7.5. But my sleep is often disturbed, and it's hard to estimate how much time I lose by briefly waking up my multiple times.

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