My chronic illnesses are having one of those, we're too tired to do anything days. Or more like week. 😂
I just wish it didn't have to mean that my mind takes it upon itself to make me feel bad about not doing enough. 🤔
I can't bind because of chronic pain, and trans tape isn't holding my tits because it's heavy, I can't do surgery either because it takes more than morphine for me to not suffer, what should I do? I'm lost.
#BrainFog is really acting up today. #Fibro pain is much higher than normal too. Thanks to the brain fog, I totally spaced on a group #therapy session earlier.
Got my postal vote for upcoming referendums in Ireland, so I thought I would remind people of this option for future votes (it's too late for the referendums).
I’m interested in memoirs, blogs etcetera telling stories of resilience, surviving psychiatry, trauma (developmental). Please share them if you know any. #MadLiterature
Lisa Wallace on why she left psychiatric care and why she may return one day
"To explore experiences of patients who have complex chronic conditions, such as #fibromyalgia & #chronicfatiguesyndrome, when they request medical assistance in dying (#MAID) in Canada"
The Soteria model relies on personal relationships, interactive activities, and minimal use of psychiatric medication within a comfortable “living community” as opposed to a conventional psychiatric setting.
#MadLiterature
How Does the Soteria House Heal?
The alternative treatment model of Soteria helps individuals suffering from schizophrenia without relying on medication or coercion.
My scooter doesn’t have a tight turning circle so using it on a bus is a lot harder than my powered wheelchair but after my lesson today I feel confident enough using it on buses 😀
Empire of Normality
Neurodiversity and Capitalism
by Robert Chapman
This is a priority read for me!
I’m looking forward to how Chapman explains the emergence and rise of the pathology paradigm and its entanglement with the fundamental logic of capitalism. Specifically how the medical and scientific definitions of illness, disability, and normality have grown in response to economic and ideological developments.
…the need to offer a positive account of mental illness—one that does not define the essence of mental illness exclusively as the absence, lack, or failure of the power of reasoning…
On the Importance of Conceptual Contrasts Madness, Reason, and Mad Pride
Awais Aftab
Between going out in the cold after only 2 hours of sleep, and the stress of my worrying about the test, my #fibro is flaring big time. I'm going to go relax in bed, and try to recover. 💤
I handled the peopling fairly well. The Lyft driver over there this morning was cute, with great mom energy. Of course, she was the age of my own kids. 🤷♀️ But she helped me to relax a bit. 💜
I desperately need an #advocate. A #medical advocate to be precise. If you are able to help, let me know. Do you know anyone else who can help? Yes I’ve checked all the lists books are closed. #Melbourne best but anywhere in #Australia is ok you can dial into any meetings.
I'm a firm believer in making space for marginalized people. I am a minority in many ways, except that I am white. I acknowledge that privilege, and try to use it to benefit others.
@halcionandon@disabilityjustice I am in the US and my pain management provider usually only makes me go in every other month I just called for a refill on the off months.
Last month I asked if I could increase my dose by 5 mg a day because I’m just not getting enough coverage with the amount of insomnia that I experience. She agreed but only if I would come in next month rather than call in. I laughed and I was like yeah I can come in whenever I’m like 15 minutes down the road. But I am well aware that they are just trying to get as much revenue as they can before the end of the year. And I’m not objecting because I really do need the extra 5 mg. But it feels gross that it was presented that way.
And man, just having that extra 5 mg if I need it made such a difference, I have noticed that about half the days I don’t even take it because I don’t need it. But knowing I have it if I caused myself extra pain makes it easier for me to do what I need to do because I don’t have to worry that I will be an extra pain later because I can do something about it if I am.
Of course I still have to pace because of the #MECFS but at least I know I don’t have to put myself to bed at 6 PM on a heating pad because the pain is just overwhelming.
The Way Out: A Revolutionary, Scientifically Proven Approach to Healing Chronic Pain
A groundbreaking mind-body protocol for chronic pain.
Chronic pain is an epidemic. 50 million Americans struggle with back pain, headaches, or some other pain that resists all treatment. Desperate pain sufferers are told again and again that there is no cure for chronic pain.
If you suffer from chronic pain, this proven 10-step program brings hope and relief, showing you how gradual changes in specific behaviors can lead to great improvements in your ability to cope.
I'm considering going to this protest, "“Scrap The Green Paper” coalition calls on the Department of Social Protection to "Scrap the Green Paper" on Disability Reforms." outside Leinster House on Thur, Dec 7.