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DivergentDumpsterPhoenix , to actuallyautistic
@DivergentDumpsterPhoenix@disabled.social avatar

For the sake of the Autistic people in your life.

"Autistic burnout is more than being tired"

Yes, there can be exhaustion. There can also be an infinite number of other ways it presents.

Not everyone stops during burnout. Some people push through. Some people shutdown completely. Some people feel like they are losing their minds.

Professionals and families need to realise that Autistic burnout is a traumatic experience.

@actuallyautistic @autisticadvocacy

brainpilgrim ,
@brainpilgrim@mastodon.social avatar

@simid @KitMuse @JoBlakely @DivergentDumpsterPhoenix @actuallyautistic @autisticadvocacy

I don't seek a cure. So what if I lack conformist abilities?

That's not a bug. It's a feature.

SleepyCatten , to random
@SleepyCatten@cultofshiv.wtf avatar

Query for other folks who both are autistic & have ADHD:

What has been your experience with focus & executive function compared to folks who solely have ADHD? :NeurodiversitySymbol:

Bonus question: if you've found medication helpful, which type & amount are on (if you feel happy to disclose)? :BlahajHoldingNeurodivergentSymbol:

Boosts welcomed :BoostsOKPrideSymbol:

autism101 , (edited ) to actuallyautistic
@autism101@mstdn.social avatar

Some autistic people find making phone calls extremely stressful and unpleasant and will avoid them at all costs.

Please don’t try and force your communication preferences on others.

image: https://shreyadoodles.com
@actuallyautistic

DivergentDumpsterPhoenix , to actuallyautistic
@DivergentDumpsterPhoenix@disabled.social avatar

do you experience imposter syndrome?

I have been so good at hiding parts of myself over the years that I now doubt they are there.

@actuallyautistic @autisticadvocacy @actuallyadhd

johnnyprofane1 , to actuallyautistic
@johnnyprofane1@neurodifferent.me avatar

Neurodivergent Kiss: Autistic Fairytale… or Fabulous Marriage?

Folks ask about my marriage. Umm… over and over. Like… "Is that even possible?"

@actuallyautistic @actuallyadhd
http://autisticaf.me/2023/08/18/neurodivergent-kiss-autistic-fairytale-or-fabulous-marriage/

BZBrainz , to actuallyautistic
@BZBrainz@mastodonbooks.net avatar

Late-Identified AuDHD: A Starter Workbook—a tool to begin gathering information together. (Large-Print pending review!! 🤩)

✅ Do you suspect you have spectrum disorder (ASD) and attention-deficit/hyperactivity disorder (ADHD)?
✅ Are you late-diagnosed with ( + )?
✅ Are you still trying to identify your traits and describe your experiences to access support?
➡️ https://books2read.com/audhd
@bookstodon
@Adhdinos
@actuallyautistic

dan , to random

post?
I'm Dan.
I don't generally do social media.
And yet here I am.
Trying out this Fedi thing,
excited to have a space where I can just be myself.

I'm recently self diagnosed , , , & officially (39yo, better late than never!)

It's been so enlightening to finally start learning and embracing who I really am.

Meeting other autistic people has been amazing and is helping me feel less alone.

So um hi 🙂

PsychTink ,

@dan @autisticadvocacy @audhd
Welcome!! Great introduction!

You may also like this server. tohttps://discord.gg/CfqK8ZmZ

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

Being is a unique experience in the context of the neurodivergent world It gives us special abilities to experience the world, but comes with its own challenges as well

Come join me & fellow comrades for my new workshop!

@actuallyautistic

BZBrainz , to actuallyautistic
@BZBrainz@mastodonbooks.net avatar

@audhd @Adhdinos @actuallyautistic

COMING SOON!

The large print version of Late-Identified : A Starter Workbook is almost done! This is a starter workbook for those with late-identified and .
I aim to keep the cost of paperbacks the same for equitable access. This version should be live by 8/18/2023!

💫 https://books2read.com/audhd

johnnyprofane1 , to actuallyautistic
@johnnyprofane1@neurodifferent.me avatar

I feel a post coming on... sometimes sharing my process helps...

"Every Clock Is Handgun Pointed at My Head"

Blv it or not... these are the seeds I planted in my notebook:

"Every clock is a handgun pointed at my head

How much does a dream weigh? Enough to slump shoulders... break backs. Strangely? Even more as they die

Dream dreamed dreamt dread

T -10 9 8 7 6... Countdown to anxiety

Doctor forcing labor

Shrieking at the factory door

Time to next paycheck measuring the distance to starvation

Clock tower time to disaster

Einstein measured time as distance between events. I don't give a shit about events. Just the quality of the travel between them...

You don't need a book to know when the sun rises

when to eat

when to sleep

when to pick berries on the fence row

Bible

Landmines of duty waiting to go off

Every tick is an unspoken command

Sale

Punch clock

Daily planner

Best seller"

Trust me this is going somewhere... Let's see where we end up.


@actuallyautistic @actuallyadhd

Mysticcshadow , to random
@Mysticcshadow@neurodifferent.me avatar
Mysticcshadow OP ,
@Mysticcshadow@neurodifferent.me avatar
johnnyprofane1 , to actuallyautistic
@johnnyprofane1@neurodifferent.me avatar

"Calm down."
🧵

G-d, I hate those words. Always have.




@actuallyautistic
@actuallyadhd

I've heard them pretty much every day of my long life.

Delivered in soothing tones...
Helpful tones...
Authoritative...
Anxious...
Angry...
Sometimes accompanied by a slap.

From Parents. Teachers. Priests. Playmates. Lovers. Doctors. Therapists... Each one demanding one thing of me.

👉Control over THEIR own feelings.

By demanding... control of mine.

WHO needs control when I'm sad?
Angry?
Intense?
Passionate?
Proud?
Informative...
Joyful...
or...
Suicidal?

You folks do.

I'm feeling what I'm feeling. And expressing it in ways that are not only the most natural to me... but also the most appropriate...

To the neurology I was born with.

You may not like it.
In the park.
In the grocery store.
In front of strangers.
In front of Aunt Mary.
In 2nd grade.
👇👇👇

With my office door open.
In your waiting room.
On our 3rd date.
In your house...
In your life.

There's a whole wing of autism deniers masquerading as scholars who say we autistics lack a "theory of mind."

Like adult autistics don't deal with typical human minds
👉 24 / 7 / 365.25 ... 👈

YOUR problem with MY behavior is easier to understand than your whole "theory of mind," "behavioral analysis" crap.

I don't get how YOU think or feel.
You don't get how * I * think or feel...
And we rub each other the wrong way. Just like cats and dogs.

👉THIS cat has a theory of your mind. It's simple.

You don't acknowledge what you think or feel.
Not in public.
Lots of times not even to yourself.

S'why y'all drive me crazy.

Why did parents, teachers, "helping" pros, "friends" tell me to calm down?

Not to soothe my distress. To soothe THEIR distress.

👉 Shame?
Not fun to feel ashamed... of your child.

👉 Fear?
Scary when everybody's looking at you.
And you think it's not even your fault.

👉 Anger?
It's frustrating... when you have no control.
Like... when I don't do what you want me to. Fast enuff.

👉 Soothing?
Of course, YOU need soothing...

Every time someone else's pain...
Or bad luck...
Or death...
Reminds you of YOUR danger.

🚨 "Calm down." 🚨

There is never a time that a command...
implying that an autistic person in distress is doing "something wrong"...
helps.

Doesn't matter our age... education... profession... wealth.

And since your "helpful advice" almost certainly inflames their pain... literally adding fuel to the fire in our hearts, minds, and bodies...

You'll NEVER get the outcome you demand... soothing.

You'll just add one more brick to the prison wall of our trauma.

johnnyprofane1 , to actuallyautistic
@johnnyprofane1@neurodifferent.me avatar

Folks have asked what's happening with my health. Haven't had the spoons to really talk since March...

But some older folks may need to know.

Here's the deal.


@actuallyautistic @actuallyadhd

This is a roller coaster. I'm good most mornings for a few hours...

Then I crash. The initial presenting symptom that got me into the doctor was really bad hot flashes. Apparently, I'm told, pretty much identical to "severe" hot flashes accompanying female menopause.

Hard to blv. Kinda weirdly hard on the ego identity. Even embarrassing...

I was so used to autistic burnout that I assumed I was just having a bad one...

Til the only NP I could see with Medicaid finally tested my testosterone. That took over a month...

It was 56.

Normal ~500. Supposed to be a minimum of 300. At least around 200 at my 70 years.

For all males, there are serious implications for neurology, heart, bones and more below 100.

Hospitalization around 30...

But my thyroid and other endocrine systems are involved. And I can't see an endocrinologist until at least November.

PTSD, elderly autism, heavy cannabis use may all be involved. They're each known to depress Teststerone and other hormones.

There's one study on older autistic males and testosterone. We may be prone to such a crash...

There aren't many of us to study...

As you can see I'm fairly available right now...

By mid afternoon I'm likely to be in dysfunctional brain fog, extreme physical fatigue, and possibly paranoid as fuck.

A heads up.

.

btaroli ,
@btaroli@federate.social avatar

@johnnyprofane1 THANK YOU for sharing this. I had no idea could contribute to low ! I hope docs can help get hormones in balance for you. It’s helps when they’re not ignoring. And it underscores perhaps why late diagnosis is imperative. Are similar hormone affects seen in Autistic women, I wonder…? @actuallyautistic @actuallyadhd

BZBrainz , to actuallyautistic
@BZBrainz@mastodonbooks.net avatar

@actuallyautistic @Adhdinos @audhd
When I’m tired language comes out directly. Instead of saying I was getting ready for bed early, I said: “I’m in my final bedtime form.” 😂 BZisms for the win.

BZBrainz , to bookstodon
@BZBrainz@mastodonbooks.net avatar

✅ Do you suspect you have spectrum disorder (ASD) and attention-deficit/hyperactivity disorder (ADHD)?
✅ Are you late-diagnosed with ( + )?
✅ Are you still trying to identify your traits and describe your experiences to access support?
❇️ Check out Late-Identified AuDHD: A Started Workbook (e-book & paperback available).
➡️ https://books2read.com/audhd
@bookstodon
@Adhdinos
@actuallyautistic

BZBrainz , to bookstodon
@BZBrainz@mastodonbooks.net avatar

✅ Do you suspect you have spectrum disorder (ASD) and attention-deficit/hyperactivity disorder (ADHD)?
✅ Are you late-diagnosed with ( + )?
✅ Are you still trying to identify your traits and describe your experiences to access support?
❇️ Check out Late-Identified AuDHD: A Started Workbook, available in ebook (major retailers) and paperback (on Amazon & B&N).
➡️ https://books2read.com/audhd
@bookstodon
@Adhdinos
@actuallyautistic

BZBrainz , to actuallyautistic
@BZBrainz@mastodonbooks.net avatar

@actuallyautistic This morning I was called a yokel, a word I have not heard outside of old television in my lifetime until now—among other labels. When I asked them to clarify how they used yokel, the coworker identified many visible traits they had been noting since we met yesterday, paired with appearing young. I had the opportunity to correct them and let my skillset speak for me throughout the day. @audhd

autism101 , to actuallyautistic
@autism101@mstdn.social avatar

We have been dealing with an insurance company and it has been a complete nightmare.

I’m sure I’m not alone.

image: @pizzacakecomic

@actuallyautistic

autism101 , to actuallyautistic
@autism101@mstdn.social avatar

It can be difficult to get through a burnout. I’m in the midst of one now.

Any helpful suggestions that worked for you?

image: @autistic_callum_

@actuallyautistic

autism101 , to actuallyautistic
@autism101@mstdn.social avatar

Anxiety is common amongst autistic people. It can build up over time and lead to a meltdown or shutdown.

Do you deal with anxiety? Share any helpful tips that work for you.

image: @Autism1o1

@actuallyautistic

autism101 , to actuallyautistic
@autism101@mstdn.social avatar

Sometimes it is difficult for me not to bring up a special interest in conversation. And I can’t read when others aren’t really interested in hearing about it.

Do you ever do this?

@actuallyautistic

autism101 , to actuallyautistic
@autism101@mstdn.social avatar

Have you ever come up with an original way of doing something, only to be told it won’t work?

image: @lifeinanautismworld

@actuallyautistic

autism101 , to actuallyautistic
@autism101@mstdn.social avatar

Are you limited in what foods you can eat? I was considered a picky eater when I was growing up. I still habitually eat the same things over and over again.

@actuallyautistic

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