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jacquiharper

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Dr_Obvious , to actuallyadhd German
@Dr_Obvious@chaos.social avatar

@actuallyautistic @actuallyadhd @actuallyaudhd

The last months I started to dosing up medikinet retard. Since Sunday I took 50mg in the morning. I can't say that I feel big differences. Maybe it it slightly more easyto switch tasks and I don't check every email directly when notifications pop up, and I maybe stay longer at a task. But it's all really minimal.

My psychatrist stated that he don't see reason to increase further if I still don't feel significant change.

jacquiharper ,
@jacquiharper@mastodon.world avatar

@Dr_Obvious @actuallyautistic @actuallyadhd @actuallyaudhd I have good results from immediate-release v ‘timed release’ and the former is frequently cheaper (in the US anyhoo)

jacquiharper ,
@jacquiharper@mastodon.world avatar

@Dr_Obvious @actuallyautistic @actuallyadhd @actuallyaudhd Try an immediate-release formulation if that’s available — at which 50 mg is really really a LOT and likely unavailable? (which leads me to guess you have a timed-release formulation?)
20 mg IR in the morning puts my brain online for tasks (disclaimer! based in US, not a doctor, consult the pharmacy/chemist, ymmv)

chevalier26 , to actuallyautistic
@chevalier26@mastodon.social avatar

@actuallyautistic Someone mentioned "odd" sleep schedules the other day; I think I finally experienced a good dose of the "odd."

Went to bed Sunday night around 1:30 AM, slept until 2:00 PM somehow. Tried to go to bed Monday night at 1:30 AM but was wide awake. Decided to stay up until sunrise because why not, there was no point in trying to get sleep. Still wide awake, I thought taking a shower at 5:30 AM would be productive.

I am still wide awake and it is now 6:24 AM 😂

jacquiharper ,
@jacquiharper@mastodon.world avatar

@chevalier26 @actuallyautistic After decades of observation, I have learned that I have ‘windows’ and if I miss them I have to wait about four hours for another. If I plan I can work this to advantage; usually go to bed at nightfall but if out visiting end up going to bed at what most consider ‘normal’

PixysJourney , to actuallyautistic
@PixysJourney@beige.party avatar

Question to fellow folks... :confusedparrot:

For what sort of toots could I use hashtags like or the previous two I just used?

I Toot quite a bit about me and my quirky way life. But I never really know if I "should" add any ND hashtags as the "silly" things I Toot about are quite normal to me. If that makes sense 🤔...

I'm proud enough, these days, of who I am. But I wonder if and when it would be good to add some of these tags... Maybe it could help connect with other peeps like me 😇.

Fankoos 🫶🏻 for your help! 🌸

@actuallyautistic

:boosts_ok_gay:

jacquiharper ,
@jacquiharper@mastodon.world avatar

@PixysJourney @actuallyautistic Don’t overthink 🫶 use the tags 🐶 please keep the Arwen updates coming

jacquiharper ,
@jacquiharper@mastodon.world avatar

@pathfinder @PixysJourney @actuallyautistic Kevin nails it, again 🫀

pathfinder , to actuallyautistic
@pathfinder@beige.party avatar

@actuallyautistic

No matter how well I learnt to mask, no matter how well I learnt to get on with people, if not in any deep and meaningful way, at least superficially. There has always been one skill that I have never mastered and that is simply the ability to not upset people and especially without having the slightest idea how.

Or that I didn't for a long time, anyway. It was only when I realised that I was autistic and that the way I looked at the world was in some ways substantively different from the way many allistics looked at the world, that I began to understand something. Allistics tend to find validation externally, through feedback from the group or the part of society that they identify with, whereas autistics tend to find it within themselves, in their own reason and sense of worth and value.

Now I must stress that in many respects this is a generalisation and obviously there will be a lot of variation and degree in how true this is. But in its more extreme forms, it could very well explain many of the experiences and difficulties that I've had.

Because if someone's self-worth, the value they see in their life and actions, is almost entirely based on their interactions with the dynamics of the group they identify with, or the society they live within and not from their own judgement, then this could lead to certain choices and reactions that are quite frankly alien to someone like me and that I could easily end up in conflict with and all without really trying to.

For example, if the value of a child reflects back on its parents. Then in the extreme case the values and behaviour expected from that child, are not those of the child, but of the parents in terms of the group the child is meant to be representing them in and how well it is doing that. So any sense of divergence from that or criticism of that child, no matter how slight that might be, could easily be seen as an attack on the parents and reacted to accordingly, irrespective of how reasonable or just it was.

Equally, of course, worth, praise, or rewards, can also become divorced from any sense of reality. All that matters is that you, whether that's through your children or not, are being valued, not whether there is any justice to it. Because the truth or validity of it, is not based on how you see yourself, but only on how others see you. And in the extreme case, it doesn't even matter how they came to this view, as long as they have it. So worth can become something to be manipulated and played for and how you really are and how you actually feel about yourself becomes almost irrelevant to this process.

That people could even be this way, that everything could become how you're being perceived and anything that effects that negatively can be something to be attacked, is still something that I struggle to understand. It is so foreign to my nature. But, it certainly explains so many of the times that I've upset people, because I wasn't playing this game, or seeing the world the way I should and didn't even realise it.


jacquiharper ,
@jacquiharper@mastodon.world avatar

@pathfinder @EVDHmn @actuallyautistic Throughout my working life (40+years) there was generally someone who ‘got’ and worked well with me — and they were tasked with telling me (nicely) who I had pissed off, and helping me to frame whatever Words needed to be said

(I remember asking ‘Who do I need to apologize to?’ more than once)

filmfreak75 , to actuallyautistic
@filmfreak75@mastodon.social avatar

@actuallyautistic @autistics it seems everything today is poised to tip me over the rage precipice i’ve ben hovering for months

jacquiharper ,
@jacquiharper@mastodon.world avatar

@EVDHmn @filmfreak75 @actuallyautistic @autistics I gotta say — I was alone in the house, so could let out a few big screams as the neighbor ran a loud compressor OFF and ON all afternoon yesterday
It was really helpful, and now I’m a grownup so no one can whomp me for it

jacquiharper ,
@jacquiharper@mastodon.world avatar

@filmfreak75 @EVDHmn @actuallyautistic @autistics Yeah, I wouldn’t do it in the old days when my dog was around (and could hear)

Gaysis , to actuallyautistic German
@Gaysis@swiss-talk.net avatar

@actuallyautistic

For my local autism group movie nights, I am looking for recommendations of sensory-friendly movies.

Criteria include calm soundtrack, slower-paced action, quieter narrative, and no rapid cuts, fast camera movements, loud or uncomfortable sound effects or flashing lights.

Internet research only gave me results for sensory-friendly cinema events, which is not what we are looking for.

Letterboxd also has no such lists, but I will attempt to create one.

jacquiharper ,
@jacquiharper@mastodon.world avatar

@Gaysis @actuallyautistic Look for the animated short movie ’Louise By The Shore’ in which an older woman is left in a seaside town after the last train leaves at summer’s end. It’s so very great

18+ flowerpot , to actuallyautistic
@flowerpot@mas.to avatar

If you are both Autistic and ADHD, do you take meds for ADHD and do you find them helpful?
@actuallyautistic

18+ jacquiharper ,
@jacquiharper@mastodon.world avatar

@flowerpot @actuallyautistic methylphenidate IR every day — if no one needs meetings, i can keep myself in a flow state for several hours pretty reliably
can’t look at adderall, it makes my nerves fray

AutisticWave , to actuallyautistic
@AutisticWave@mastodon.social avatar
  • "But you're establishing eye contact with me; how can you be autistic?"

You'd be surprised what compensatory mechanisms developed in sophisticated ways throughout those years I went undiagnosed can do.

  • "Don't worry, we're all on the spectrum nowadays."

Well: https://medium.com/@undaautistica/no-were-not-all-on-the-spectrum-a319b0619308

@actuallyautistic

jacquiharper ,
@jacquiharper@mastodon.world avatar

@AutisticWave @actuallyautistic Mine was ‘You talk with your hands in conversation, so, no’

hosford42 , to actuallyautistic
@hosford42@techhub.social avatar

I'd like to buy an shirt -- something to represent that part of my identity when I'm in public places -- but I want to support autistic creators instead of Amazon. Where are good places to look?

@neurodivergence
@actuallyautistic
@autisticadvocacy
@autistic[email protected]



jacquiharper ,
@jacquiharper@mastodon.world avatar
AutisticAdam , to actuallyautistic
@AutisticAdam@autistics.life avatar

Autistic people are often criticised for “reading too much into things” and “assuming” the worst, but usually what we deduce is highly accurate, thanks to our pattern-spotting and dot-connecting abilities. I think the real issue is we typically unearth truths others want to remain hidden.

@actuallyautistic

jacquiharper ,
@jacquiharper@mastodon.world avatar

@markusl @simid @Laberpferd @fictionalbutnot @TeacherGriff @AutisticAdam @actuallyautistic I used to be disconcerted (even upset) that some people found me funny as hell .. then realized they thought they were laughing with me, so now it’s nice, just making folks laugh, not even trying 🥸

fictionalbutnot , (edited ) to actuallyautistic
@fictionalbutnot@mas.to avatar

I tend to avoid social media. I don't even really know how to use it; but when I'm on here, I see that whole "community" thing that I'm not very familiar with.
Like people getting support when they're down and all that.
Sometimes I try to imagine
myself getting that.

"You are a great person."
"You are worthy of love."
etc.

But if it were me, I know it would just feel empty. How could any of you possibly know me?

This can't be just me, right?

@actuallyautistic

jacquiharper ,
@jacquiharper@mastodon.world avatar

@fictionalbutnot @jamesrylandmiller @actuallyautistic Not going to tag them directly (so that you can go follow them if you want to), but there are fiber arts groups who want to know about your crochet work
It is nice here! Follow some hashtags, and just listen in if that’s where you’re comfortable

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