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@hauchvonstaub@nrw.social avatar

hauchvonstaub

@[email protected]

Spät diagnostiziert mit ADHS und auf absehbare Zeit(mindestens 20 Monate) nur selbst diagnostiziert autistisch.
Mein Profilbild soll ein Fenster sein, durch das Sonnenlicht scheint, in dem Staub sichtbar wird.
(he/him)
(Beruf,Hobbies, usw. trage ich nach, sobald es ein wirksames Mittel gegen ME/CFS gibt. /s)

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samid , to actuallyautistic
@samid@mastodon.de avatar

hey, what are you doing when you don't have too many spoons left or just want to relax and enjoy but also nurture yourself a bit?
one of my favourite passive enjoyments is watching watercolor videos. What relaxes me so deeply is the sensitivity. And of course the neurodivergence that shines through. I just love love love watching women being besides themselves about the subtle difference from one hue to the next. And nerding out about pigment properties. And of course the visuals. flowing colours. With my favourite channels they often have one video where they come out as being autistic/ADHD. With others I just strongly suspect it.
@actuallyautistic

hauchvonstaub ,
@hauchvonstaub@nrw.social avatar

@samid @actuallyautistic I used to watch camping videos for a while, but I'd have to manually search for good channels nowadays with youtubes changes in search and recommendations.
When I'm in the mood for one, "working against" youtubes search is just too much efford(I'm very picky).
I also like to watch let's plays of old games, especially pc games from the 90s and early 2000s.
I have a weird fascination for games that my older brother could have played when I was a child.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

Do my comrades have a good relationship with their families of origin?

@actuallyautistic

hauchvonstaub ,
@hauchvonstaub@nrw.social avatar

@theautisticcoach @actuallyautistic Not really, but I would get along with some people in my family if there was contact.
There were some people that "kept the family together" and some people who would "push it apart" and with time the influence of one group got bigger than the other.

haui , to actuallyautistic

Being @actuallyautistic and for me means I often get told the following, initially:

„No! You‘re wrong! What a shit take! You have no idea what you‘re talking about! Stop the drugs, man!“ and the like.

After some discussion, people say:

„I have not thought of it this way. I got you wrong. We should actually consider doing it your way. You seem to have deeper insight than the average person.“

This often makes me question my place in this world. Anyone else?

hauchvonstaub ,
@hauchvonstaub@nrw.social avatar

@haui @actuallyautistic ... and then people end up either still doing what they admitted is wrong, or go back to their old habits/behavior in less than a week.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

Do my comrades have a journaling practice?

What's it look like?

@actuallyautistic

hauchvonstaub ,
@hauchvonstaub@nrw.social avatar

@theautisticcoach @actuallyautistic I started writing a diary at some point after I had lost my memory and still write down important dates/events.
It used to be more about typing, so I don't get out of practice, nowadays I try not to write too much text, so it doesn't take me ages to read through the documents, if I ever want to write a summary.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar
hauchvonstaub ,
@hauchvonstaub@nrw.social avatar

@theautisticcoach @actuallyautistic Seeing the development of an effective ME/CFS treatment, that preferably reverses its effects.

autism101 , (edited ) to actuallyautistic
@autism101@mstdn.social avatar

Autistic masking behaviors vary from person to person. What are some of your masking characteristics?

image: @littlepuddins.ie

@actuallyautistic

hauchvonstaub ,
@hauchvonstaub@nrw.social avatar

@pilum @JeremyMallin @autism101 @actuallyautistic Doesn't all of masking count as "adapting to social environment"?
If you regularly have to hide from others, that you know more about a subject than them, or are better at something than them, I would count that as masking.

ChrisMayLA6 , to random
@ChrisMayLA6@zirk.us avatar

Hurrah... good sense breaks out in the as the 'Waitrose of the North', Booths begins to get rid of self-service check-outs.

Given the price premium at Booths, we (the customers) want the social interaction with staff at the checkouts, not be told to 'scan & bag'!

More importantly, not only do checkouts provide regular local employment, they are also for many semi-isolated shoppers a key bit of rare social interaction... so a welcome reverse!

https://www.bbc.co.uk/news/uk-england-lancashire-67373472

hauchvonstaub ,
@hauchvonstaub@nrw.social avatar

@ChrisMayLA6 @Greenseer @actuallyautistic @RolloTreadway So you think "a choice is best", but your reaction to that choice being removed is "Hurrah"?
Seems contradictory.

hauchvonstaub ,
@hauchvonstaub@nrw.social avatar

@Greenseer @ChrisMayLA6 @actuallyautistic @RolloTreadway I would have as well, wasn't it for "Q. is I guess how many people use the self-service", which means "there probably aren't enough to justify having a choice", so this makes it not part of a learning curve, but shows contradicting views.
"It's best to have a choice, but most peoples health would benefit from taking the stairs and question is, if there are even enough wheelchair users" would be the same logic.

masukomi , to actuallyautistic
@masukomi@connectified.com avatar

A nice little TickTok about finding joy in someone else's Special Interest, even if it's really not your thing.

https://www.tiktok.com/t/ZT8Sqeq92/

I think this is something most folks "just get" but that Allistic people constantly struggle with. The end result being Austistic people can frequently only talk about the thing they're passionate about with other autistics, or other people with the same Special Interest.

1/2

@actuallyautistic

hauchvonstaub ,
@hauchvonstaub@nrw.social avatar

@masukomi @actuallyautistic "Second hand special interest" is a thing.

neversosimple , (edited ) to actuallyautistic
@neversosimple@mstdn.social avatar

@actuallyautistic I'd like to share the great new video on Pathological Demand Avoidance, or Pervasive Drive for Autonomy (PDA) by the very informative and insightful YT channel Autistamatic.

Feel free to discuss and share your experiences!

https://youtu.be/HOrsMUyGnq4?si=suCK2tKIKGfR_IAK

hauchvonstaub ,
@hauchvonstaub@nrw.social avatar

@neversosimple @actuallyautistic I relate to being uncomfortable with the concept of social debt, but for me the expected subordination to a social hierarchy, including rules and who gets to be above and below those often arbitrary rules plays a bigger role.
Being told what to do makes the task not about if it should be done anymore, but about who gets to decide.
It feels like you had the energy to do a task and now your body decided to transfer this energy to resisting the task.

AutisticAdam , to actuallyautistic
@AutisticAdam@autistics.life avatar

Some of my less talked about autistic traits:

  • Reading captions on videos despite having solid hearing.

  • Only speaking when you’ve knowledge or valuable insights.

  • Answering “how are you?” honestly.

  • Proofreading texts/emails/etc 10+ times before sending.

  • Clumsy phraseology (e.g saying “present opening” instead of present opening” instead of “opening presents”).

  • Not upgrading items due to a strong attachment to current items.

What's yours ?!

@actuallyautistic

hauchvonstaub ,
@hauchvonstaub@nrw.social avatar

@AutisticAdam @actuallyautistic One I've only heard a few people talk about so far is struggling to leave something unfinished.
This is also one of the traits that conflicts with my ADHD the most.
It's an uncomfortable situation to be stuck between not being interested in something anymore(and not being able to make any meaningful progress because of it), but also not being able to let it go yet.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

What does the term “special interest” mean to my comrades?

@actuallyautistic

hauchvonstaub ,
@hauchvonstaub@nrw.social avatar

@theautisticcoach @actuallyautistic There seems to be a lot of criticism of the term being pathologising, but even if that's the case, I still wouldn't abandon the term, because there are differences between a regular and a special interest.
The differences are potential intensity, persistence and usually a sense of comfort.
I can usually fall back on a special interest, when I'm in a state, where nothing else is interesting enough to engage with.

neversosimple , to actuallyautistic
@neversosimple@mstdn.social avatar

Before knowing that I'm I labeled myself as an introvert.

I wonder how often introverts are actually autistic, knowingly or not.

I can see that saying you're an introvert is a whole lot less to explain and would suffice in many situations.

Also curious to know if anyone @actuallyautistic considers themselves an extrovert?

Came to think of it while watching this: https://youtu.be/MdG4f5Y3ugk?si=QI5kdseAE1EuFHqj

hauchvonstaub ,
@hauchvonstaub@nrw.social avatar

@neversosimple @actuallyautistic I would still call myself an introvert.
Who I'm talking to and in which environment just changes how much energy it will cost me.
Maybe you could call a conversation stimulating for me, but that's not the same as "giving energy", because I'm still exhausted afterwards.
It's like sports, fine as long as I have the energy for it.
This can also seem paradoxical to others, because seeking conversations can be stimulation seeking behavior, especially when I'm tired.

CynAq , (edited ) to actuallyautistic
@CynAq@neurodifferent.me avatar

Until I was 8-9 years old or so, I was under the impression that god and religion were abstract, philosophical concepts everyone used as practical metaphors. It made perfect sense as mythology and was seemingly culturally bound, different countries and languages having different religious traditions.

Then one day, I suddenly realized people were serious when they say they believed in god and they adhered to religion as a matter of faith.

That realization was, and still is, very shocking to me.

I now think being might have something to do with me not taking people seriously on their religious faith claims.

@actuallyautistic

hauchvonstaub , (edited )
@hauchvonstaub@nrw.social avatar

@CynAq @actuallyautistic When I was young, I was taught religion like it's facts and I also believed in it for a short time.
What made me skeptical were contradictions within religious teaching and being lied to on religious hollidays about the easterbunny/santaclaus(and its german equivalents).
To me it felt a bit like at some point adults just forgot to tell their children that besides the easter bunny and santa claus, the whole jesus and god thing is also made up.

ratcatcher , to random
@ratcatcher@neurodifferent.me avatar

For anyone having issues with the hashtag, there is also and @allautistics (the latter being a recently created group that you can follow and post to).

They are intended for anyone who is (or thinks they might be) autistic (formally or self-diagnosed).

hauchvonstaub ,
@hauchvonstaub@nrw.social avatar

@FrightenedRat @ratcatcher @Gtmlosangeles @allautistics @actuallyautistic This is really tough.
The hashtag has to be short, hard to misunderstand and also should sound nice enough, so that people are willing to use it and it shouldn't make you seem weird for using it to others not familiar with the hashtag...
The best I could come um with is the seemingly most obvious , but that could sound too much like a hashtag to come out as autistic and not to be used regularly.

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