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olena , to actuallyautistic
@olena@mementomori.social avatar

Do you guys also combine almost pathological conflict avoidance - and the brilliant talent to create a conflict out of nothing just trying to explain your point of view or to point out some factual error another person made while talking about your special interest?

I don’t defend myself, I don’t tell I don’t like something or that I see that I am being taken advantage of or being lied to, or that someone hurts me - I never raise a voice and tell that, or question them, or demand my rights and all - because I am terribly afraid on conflicts. Not even that I won’t be liked, or that there’s going to be some consequence or anything. Just a conflict itself. I’m scared even when there’s a conflict that doesn’t include me nearby, but even the shadow of an idea that something I may say may create a conflict makes me go silent, and just dodge and tolerate more, doesn’t matter how bad I feel.

But when just discussing something - I mean not something important, may be a birds name, a train route from 80-s, the way some thing works etc - any abstract staff that doesn’t correspond to my life in any way - especially when I clearly see the opponent is making the factual error or denying my actual experience with the topic - it does create a conflict, and people would say I am a conflicting person, I am the one who likes to just disagree and all.

Is that desire to avoid conflict at all costs - and the inability to actually spot when another person starts to see your discussion as a conflict - some thing?



@actuallyautistic

olena , to actuallyautistic
@olena@mementomori.social avatar

We got free lunches at work: on the weekend, they send the menu, people choose between three options for each of two meals for each workday, and the food is delivered every day fresh from a restaurant nearby(not a fancy one, typical “homemade” food). If you need, they provide options for vegans or food restricting diets.

I am the only person in the office not doing that. I cannot explain to my coworkers why.
No, I don’t think the food is bad. No, I am not dieting, I am not looking for ‘something healthy’, I am not counting calories.

I am eating at work my fruit and yogurt every day, not being restricted to the time when their food arrives, and I am happy.

I can’t explain to them that I can’t carry such a commitment as decide on a weekend what to eat each day, and have to follow that. What if I don’t feel like that food? What if it’s not what I pictured in my head when ordering? What if I am not hungry? What if I get hungry earlier? And I just can’t do a full meal in the middle of a day and work after that. The meal should be at home, with some rest after it, or in the restaurant, with a good walk before and after, and good conversation during it. And I don’t want to eat a salad if it wasn’t done this very second right here because of frivolous microbiology thoughts. And anyway I prefer to cook myself, when I know perfectly well what it is, how it is done, and I balance the tastes and flavors to my own liking(I like to go to gourmet places somewhere, but it’s not an everyday experience, I doubt I’d be able to eat out every day anyway)

So, I’ve been asked again and again why wouldn’t I order something for myself, and every time I have to say ‘no, thanks’ and can’t tell why.

Apparently I am a picky eater.



@actuallyautistic

scotlit , to bookstodon
@scotlit@mastodon.scot avatar

Only Here, Only Now by Tom Newlands review – growing up with ADHD

“The prose in Tom Newlands’ debut novel is glorious, managing the feat of being both muscular and airy at the same time. But it is first and foremost the landscape that he stakes out that grabs you by the throat”

—Tom Newlands’ ONLY HERE, ONLY NOW is the Guardian’s Book of the Day

@bookstodon

https://www.theguardian.com/books/article/2024/jun/27/only-here-only-now-by-tom-newlands-review-growing-up-with-adhd

olena , to actuallyautistic
@olena@mementomori.social avatar

I don’t operate the world putting everything into defined folders and boxes of clear tree-like structure (like I do on my laptop).
I operate the world by slapping infinite amount of tags on everything (which do not exist independently like in some tag cloud, but are rather interconnected in their own ways), and then tag-filtering or pulling the chain of tags when I need.
Sure, from outside that looks like a totally random chaotic pile, but it has its own structure, just the structure is different to what is usually pictured as a structure.

I know, autists are usually pictured as the ones requiring the boxes, but is it necessarily the boxes autists crave, or other forms of structure also work?





@actuallyautistic

olena , to actuallyautistic
@olena@mementomori.social avatar

Just realized that spending time with people I know, including - no, especially! - family, drains me out so much not because of all the activities, noise, planning and plans being neglected and all those things, but because of masking. Like, 95% of my energy goes to masking, to staying within acceptable range. Internalizing the meltdown that happened because of being overwhelmed takes more energy than actually dealing with being overwhelmed. Having plans established when I offered going without a plan, than changed, than cancelled, than uncancelled, than changed again and the day ruined is hard, but being smily and kind and attentive, and fun and creative after that is much more draining.
I know why most of us hate being observed: because if observed, we have to mask harder - so instead of doing the task itself and dedicating all of us to it, we have to use a lot of energy to constantly control the way we’re perceived to make sure the mask didn’t slip.




@actuallyautistic

olena , to actuallyautistic
@olena@mementomori.social avatar

“Don’t assume, ask” - is the approach I share. However, there are many people to whom asking seems like something rude and inappropriate. And those people would assume.
The thing is, I am one of those people that usually can’t be accurately assumed: if you’d think a person that does this and this would also do that, the one who likes this and this would hate that and so on - most probably, I’d not follow that pattern. For that very reason I’ve been called ‘eclectic’, or less politely - ‘messy’, ‘illogical’, and all sorts of weird - most of my life, and for that very reason some people are kinda afraid of me: they can’t predict because their assumptions aren’t correct.
In turn, for me it’s very frustrating/confusing to see that someone is offended by me asking directly instead of assuming because all I want is to avoid any misunderstanding and clarify things.
I feel like is quite an eclectic thing per se(due to some aspects looking from a certain point of view as opposite to those of ), so maybe that is the key to me being so, well, contradictory in eyes of other people.
I wonder, if that asking is just desire to have things clear and precise, or assuming/asking divide does not correspond to the NT/ND one

@actuallyautistic

Ilovechai , to autisticadvocacy
@Ilovechai@sciences.social avatar

Often, I relate to ND vids but this one has me doubting. I do have autopilot for bedtime routine or shower routine etc, only if it gets interrupted I might forget a step 🤔 So is this universal? So many in the comments relate to the wife on this one, I know it's a spectrum, but can this be used to rule stuff out? Yeah, I'm still out here swinging back and forth pendulum style 🫠
@actuallyautistic @autisticadvocacy

https://www.instagram.com/reel/C8iqN7Gujft/?igsh=eXQwamMzeGNxYTky

Ilovechai , to autisticadvocacy
@Ilovechai@sciences.social avatar

Literally said this thing to my partner today when explaining how I never enjoyed the non-conseual sexual banter out of the blue from 'dude friends'..I still wonder, are autistics also more likely to be ? As this feels definitely connected for me. I was welcomed and included socially, but it did often feel like others were having more fun than me. This vid satisfied my wondering why.

@actuallyautistic @autisticadvocacy

https://www.instagram.com/reel/C8e0l44MfJp/?igsh=djIzYWlzMDVxNHk1

Ilovechai , to autisticadvocacy
@Ilovechai@sciences.social avatar
kshernandez , to poetry
@kshernandez@me.dm avatar

Hey y'all! Check out the dope youth created and lead zine!

I with I'd had something like this as a child. Please share this with your ND youth. @poetry @disability https://nyacproject.wixsite.com/ndexperience/landscapes

Ilovechai , to random
@Ilovechai@sciences.social avatar

It's late shift day, which means all appts during business hours are crammed into Thursdays. Today? DMV with teen driver.

Ilovechai OP ,
@Ilovechai@sciences.social avatar

She's in the testing room now. No time limit so hopefully, it doesn't take her longer than 1.5 hours. I'll need to eat & head to work in time to get there for my first session. 🤞🏻I can finally read or journal & fully fade into my music as I don't have to be aware of anything around me. It's not terrible, but there's a persistent unease in these public spaces that drain my 🥄
Plus my mama heart picks up on her & testing is not fun for her

@actuallyautistic

Ilovechai , to autisticadvocacy
@Ilovechai@sciences.social avatar

@autisticadvocacy @actuallyautistic

"In our first episode of the Autism and Intimacy podcast, Candice shares the diagnostic criteria for autism spectrum including what symptoms are often expressed but not in the DSM V. She and her husband Chris also talk about a recent communication issue they had and how they have learned to effectively tackle her issues with both sensory overload and communication mishaps. Enjoy!"

https://pca.st/episode/df74741d-9f47-4c2a-ae4a-e99363b54138

Ilovechai , to autisticadvocacy
@Ilovechai@sciences.social avatar
olena , to actuallyautistic
@olena@mementomori.social avatar

I don’t have nostalgia. I don’t miss places. I may remember them vividly, and love something about them, and hold it dear in my heart, but when I leave - I don’t want to come back.
Actually, I feel rather bad if for some reason I have to. Because the place has already changed. Because I have already changed. Because we’re out of sync now(if we ever were). Because I don’t belong. And seeing that hurts actually way more than just not returning.
Maybe it has something to do with the lack of object permanence. Maybe it is more about that autistic refusal to accept the reality which differs from expectations. Inside, I feel like a kid having a meltdown in the middle of the shopping mall because the toy they got was not 100% what they imagined it was going to be. No place is what you remember when you return after leaving. Maybe that’s the reason.

Is it something other people also experience often? Do you feel nostalgic often or refuse to get back?




@actuallyautistic

shiri , to actuallyadhd

You know what's great to learn at 38, right before bedtime one night, after a whole life time of struggle...

That your mother traumatized you with ADHD to the point where actually pushing myself against ADHD is a trigger... making it so no amount of coping skills can help me push myself for any real length of time...

I'd try and do something that requires a push, even a little one... and be crying... and I thought it was just the feeling of hitting my dopamine... but nooooo... now I'm unpacking that it was me getting triggered at the feeling of pushing my reserves at all...

That explains so damn much and makes me feel so damn hurt and angry...

I was forced to push myself so far so often as a kid and she didn't ever relent when I was critically over-extended on dopamine... usually around cleaning. I'm remembering so many times crying and sobbing on the floor because she demanded I clean to an extreme standard and I wasn't allowed to do anything else until I met her approval...

And I've been running my whole life fucking kneecapped by this... I thought I just had it worse than most (with ADHD) on my ability to push myself on tasks... but no... it's because I realize now I can't fucking push myself at all because my fucking brain just jumps straight to that extreme pain and trauma right away...

Now I'm fucking crying when I should be trying to sleep...


@adhd @actuallyadhd

olena , to actuallyautistic
@olena@mementomori.social avatar

Speaking of joking.
When I was young, pretty often when I wanted to make a joke, I was too embarrassed to do that personally, so instead of joking directly, I’d add “as one of my friends says…”, or “as I’ve read recently…”(obviously, there were no friend and no book, it was just some snarky comment I came up with and desperately wanted to drop). I didn’t do that with serious things, it was just a way to slip in a joke - because doing it openly felt too daring for some reason.
When I got older, I used to do it less and less often, and now (almost?) don’t do that (probably?), but I still don’t quite understand why I was: what it was actually for, why did I need, what it was supposed to solve.
Is this also some thing? Something related to RSD? Part of autistic masking? Or just my own weird thing?
@actuallyautistic

olena , to actuallyautistic
@olena@mementomori.social avatar

Of all the avatars I’ve ever used, my favourite was made of a bit of MRI of my own brain.
Part of the satisfaction was to have long discussions with moderators saying the avatar is supposed to show the person - and arguing that the brain is actually what I am as a person, not my face.
I pretty often enjoy finding different ‘well, technically…’ loopholes, though mostly not for exploiting them, but for the sheer joy of pointing them to someone and chucking together over such a joke.
This, together with puns, together with all “imagine this and this, wouldn’t it technically be that?” type of jokes is basically my favourite genre of humor.
And my relationship with humor is kinda complicated: I love funny things, but I often don’t find pure comedies funny(while can have a good chuckle in some straight-face side jokes in some procedurals or adventures), and the main reason is I don’t find it funny when someone struggles, someone is getting hurt, someone is ridiculed or put in an awkward/cringy situation. Someone falling isn’t funny, someone failing isn’t funny, someone put in a situation when they are clearly experiencing fear, shame or disgust isn’t funny for me.
Maybe I just empathize too much: imagining myself in their place makes me want to run away, hide, stop existing, so I just can’t feel any fun there.
But give me a good chuckle with an unexpected pun, give me those “technically..” jokes, give me clever side remarks - that may be soo funny!
Basically, for me, in all the movies, books, shows:
Chuckle > laugh
Maybe it has something to so with RSD and fear to be laughed at(based on previous experiences)
Is it something common among folks? I imagine it may have something to do with and affective empathy?
What is your relationships with different kinds of humor?

@actuallyautistic

ashleyspencer , to random
@ashleyspencer@autistics.life avatar

Now that I'm spending more time on Mastodon, I'm realizing I don't follow enough people. Many of them are inactive accounts.

My feed is running dry rather quickly.

Who are some good people in the autistic and neurodivergent spaces to follow?



KitMuse , to disability
@KitMuse@eponaauthor.social avatar

I am doing a survey about yoga and neurodivergent folk and your boosts would be appreciated.

If you are neurodivergent (self-realized or Dx'd, it's all good here), and fall under the vast ND umbrella, I'd love to hear from you. Quick 6-7 question survey and you can remain anon if you want.

Thank you!

https://forms.gle/cFa6RzpfDdbfnt6b9

@actuallyautistic @neurodiversity @disability

farah , to actuallyautistic
@farah@beige.party avatar

I’ve been reading about “stimming in autism”, which up until now was very confusing to me mostly because that’s the one point kept being repeated in the community being a must for an autistic individual. And I can’t relate to that at all.

Then I came across something that describes the purpose of ‘stimming’ is to deal with extra energy. Then it kinda hit me, I’ve never had the need to stim because I’m a low energy person in general.

I get overwhelmed with activities when they involve raising heart rates (yes, THAT too). I like quiet things, dead of night etc. Once at a time in my life, I was pretty sure I could hear flow of electricity.

So my question to the community: do you think stimming is a must for autistic people? Do you relate to it? Anyone know of any low energy stimming that gets overlooked?

Thanks! Much love!! 💕 @actuallyautistic

DivergentDumpsterPhoenix , to neurodivergent
@DivergentDumpsterPhoenix@disabled.social avatar

Please stop with the euphemisms. We know what we are, we don't need it explained to us. It is patronising when people try and define our identity for us.

@actuallyautistic @autisticadvocacy @neurodiversity @neurodivergent

Ilovechai , to actuallyautistic
@Ilovechai@sciences.social avatar

I don't have the spoons to explain why I feel my neurodivergence is making this worse, but I need feedback or insight from other ND people on a unique experience. This will be a long thread (added in replies) but I'm hopeful there will be a few kind readers who either relate or have something supportive to share.
Here goes:
1/
@actuallyautistic @actuallyaudhd


Ilovechai OP ,
@Ilovechai@sciences.social avatar

@actuallyautistic @actuallyaudhd

(despite having 15-20 yr friendships before leaving.)
When you lose your entire support system, and you see red flags of manipulation or non-reciprocation miles away.... somedays it feels like I just have to accept that freedom of mind has to be enough, cuz trusting relationships was the price...
4/

Ilovechai OP ,
@Ilovechai@sciences.social avatar

@actuallyautistic @actuallyaudhd

but here I am, trying to have spaces to find connection and ASD or post religion spaces seems to be the safest 🤔 (every time I decide to leave exreligious spaces from deconstruction topic burnout, I find my way back because its the place I find like minded people) I guess I'm just here to vent about how f*cking terribly cruel shunning is.
5/

Ilovechai OP ,
@Ilovechai@sciences.social avatar

@actuallyautistic @actuallyaudhd

🤨 And how utterly burnt out I feel trying to rebuild a support system. Thanks to anyone who shared their energy to read this. 🥹🙏🏻

5/end

Ilovechai , to autisticadvocacy
@Ilovechai@sciences.social avatar
Ilovechai OP ,
@Ilovechai@sciences.social avatar

@actuallyautistic @autisticadvocacy

Sent this voice clip to my daughter in college tonight after she texted sharing she was having bad , nausea, overwhelm (and I'm guessing probably . )

Sometimes we just need a .
(Also sent this meditation) ✨️
https://insighttimer.com/chelseapottenger/guided-meditations/meditation-for-anxiety-relief

Sharing both if anyone else needed comfort.

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