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@ahrimans_erbe@social.anoxinon.de avatar

ahrimans_erbe

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hosford42 , to actuallyautistic
@hosford42@techhub.social avatar

I'm interested to get my fellow folks' takes on this.

Neuroscience News: Is Inflammation in Childhood A Mechanistic Link to Neurodevelopmental Disorders?
https://neurosciencenews.com/neurodevelopment-inflammation-24941/

@actuallyautistic
@neurodivergence

ahrimans_erbe ,
@ahrimans_erbe@social.anoxinon.de avatar

@dbc3 @ashleyspencer @hosford42 @actuallyautistic @neurodivergence
The problem is that people don't understand the meaning of normal. They do two things. First, they define the expectation value, majority etc as the normal, but other groups or the edges of distribution are normal to. Second, they use normal interchangeably with natural and good. It's completely normal that the average has an IQ of 100 and that there are few with really high and really low IQ. But all of that is normal.

CynAq , to actuallyautistic
@CynAq@neurodifferent.me avatar

@hellomiakoda ‘s thread about visual imagination reminded me of something I realized yesterday. I was talking to my wife about taking things apart as a kid, to see what’s inside and how I hate electronics as a field of technology. I don’t hate the devices and their functionality. I hate the way electronics work.

Let me elaborate.

As a child, I was very interested in how devices worked and liked to open things up, take them apart and put them back together. With mechanical devices, this has always been easy for me because I can see how the parts move and interact with each other, thus I can see their function and make sense of the whole thing easily. It is fixable if something isn’t destroyed but only misaligned for example, and I can readily identify what can’t be fixed without a new part.

Then one day, I opened up my first small fm radio. It was the biggest disappointment of my life up to that point. There were no moving parts with discernible functions. Nothing made sense because I couldn’t watch how they worked. I could see the components but they were completely opaque to me as to what their individual and collective functions were.

I remember feeling so utterly cheated. The world had invented something that I couldn’t figure out, by myself, as a six year old, and therefore I hated it.

I still find electronics boring to the extreme, even though I learned enough about the field to understand how they work. No visibly moving parts (electrons don’t count), nothing to look at, nothing to keep my interest going.

Can anyone in the community relate to this?

@actuallyautistic

ahrimans_erbe ,
@ahrimans_erbe@social.anoxinon.de avatar

@CynAq @lapingvino @marytzu @PatternChaser @hellomiakoda @actuallyautistic
You have multiple native languages? Like with english and welsh etc. or like family roots?

I think I had some talent for languages, but because of my fucked up school history and my ignorant teenager self dealing badly with it, I only learned reasonable english at the end of uni. During school time I was usually between F and D.

At uni I learned swedish just for fun and because of that, it was fun indeed.

ahrimans_erbe ,
@ahrimans_erbe@social.anoxinon.de avatar

@CynAq @lapingvino @marytzu @PatternChaser @hellomiakoda @actuallyautistic
Deutsch ist wirklich keine einfache Sprache. Aber zumindest ist sie mit Englisch stark verwandt. Japanisch stelle ich mir sehr schwierig vor. Meine Frau hat in der Uni Japanisch gelernt und einiges davon erzählt. Das sind nicht nur andere Vokabeln und Grammatik, das ist auch eine ganz andere Art zu denken.

ahrimans_erbe ,
@ahrimans_erbe@social.anoxinon.de avatar

@CynAq @lapingvino @marytzu @PatternChaser @hellomiakoda @actuallyautistic
Indeed. That is really an interesting part of languages. Such differences that can't be translated or don't have a propper analogon in another family of languages show that there is a real difference in how different cultures look on the world.

And big acknowledgments for sucuk. I love that stuff since kindergarten.

ahrimans_erbe ,
@ahrimans_erbe@social.anoxinon.de avatar

@nddev @actuallyautistic @marytzu @PatternChaser @CynAq @lapingvino @hellomiakoda
No problem, just wanted to give CynAq some words to get unrusty. English is fine for me.
I excel on the most common version of english; foreigner english. I sometimes had easier times understanding indian or chinese colleagues than some people in actual england. There are some pretty strong dialects on your islands and you are usually a lot faster than us non mother tongues.

AutisticAdam , to actuallyautistic
@AutisticAdam@autistics.life avatar

A rather interesting thing to do is explain you are Autistic to someone but only don't use the word ‘Autistic’ and just say "neurological" and watch how seriously they take you until you tell them it's Autism.

@actuallyautistic

ahrimans_erbe ,
@ahrimans_erbe@social.anoxinon.de avatar

@Autistrain @guidedbywire @masukomi @AutisticAdam @actuallyautistic
So are eyebrow moves. By that I unawarely layed the foundation for my marriage.

How long can you be on a date without knowing it's a date? The answer is yes 🙃.

independentpen , to actuallyautistic
@independentpen@mas.to avatar

Hey @actuallyautistic how do you pace yourself at an office job? I've been contracting for years but as of this week I'm an employee. My style of work is all or nothing, but I sense that isn't going to be sustainable in this context, and I suspect the allistics aren't working like that either anyway. How do you reset or recharge throughout the workday? How do you know if you're doing "enough" versus overperforming? How do you take care of yourself in socially sanctioned ways?

ahrimans_erbe ,
@ahrimans_erbe@social.anoxinon.de avatar

@independentpen @Jobob @actuallyautistic
Simple answer: Yes
More complicated answer: You establish a level of expectations what you can perform. This should ideally not fall behind your colleagues, but not overperform them totally. First is bad with managers, second is bad with colleagues.
Second thing is. There might come times or tasks where you are not performing well or where you struggle to get things started or done. It's good if you have some buffer for expectations then.

theautisticcoach , to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

What are some of my comrades’ same & safe foods?

Do you know why?

@actuallyautistic

ahrimans_erbe , (edited )
@ahrimans_erbe@social.anoxinon.de avatar

@theautisticcoach @actuallyautistic
I really love pizza. But also things with strong intense flavour, like chili.
And a thing I really like is fried slices of sucuk. A turkish sausage full of garlic, paprika and cumin.
Edit:
To add on the why. It's just really good comfort food. And I really like stuff with real intense and complex taste. Roquefort, Bordeaux etc.
To an extent it becomes next to self harm. This box with insanely strong and salty scandinavian licorice, I could eat it all at once.

AutisticAdam , to actuallyautistic
@AutisticAdam@autistics.life avatar

I'm autistic, so I guess it's natural that I will never, ever be able to understand exactly when is the correct time to add my point to a group conversation.

Watching the conversation move onto a totally different topic, while a really good point is left unsaid, is a very specific autistic sadness.

@actuallyautistic

ahrimans_erbe ,
@ahrimans_erbe@social.anoxinon.de avatar

@AutisticAdam @actuallyautistic
Thats the most frustrating thing in group discussions. You had a very good point, but your chance is over...

ahrimans_erbe ,
@ahrimans_erbe@social.anoxinon.de avatar

@irenes @AutisticAdam @actuallyautistic
That doesn't make sense. That would mean everybody silently agrees who is on the row and signaling it. It's more about grasping the right brake and timely take the word.

ahrimans_erbe , to actuallyautistic German
@ahrimans_erbe@social.anoxinon.de avatar

@actuallyautistic
I am a bit hung up with all this strange questionaires set up with an outside deficit oriented perspective.

A nice comparison came into my mind. Let me know what you think about it.

Classical painters make a questionaire to identify this odd guys they named modern painters. They are puzzled how those people make pictures with green faces etc. Surely modern painters suffer from color confusion, they conclude.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@actuallyautistic
So they add the question: Do you often struggle to select the right color in your paintings?

One modern painter takes it and thinks about the question. Of course he thinks about the color, but in the end he is happy with his choice. He marks the answer no.

The classical painters will considder him to be of their party and he will continue to paint faces green.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@actuallyautistic

Would they have asked, do you paint things differently with respect to their natural appearence to express certain things, it might have turned out differently.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@actuallyautistic
This experience in combination with research on topics like ABA and knowing that operant conditioning is like the goto tool in local and current children therapy, I have rising doubts in what to expect from autism abulance especially for my little son.
I really want to help him to get easier with routines and I am a bit stressed thinking about his future with respect to school teenagers etc.
But if they start suggesting stuff like negative punishment etc. I guess I am out.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@actuallyautistic
Hmm, maybe it was a bit confusing comparisson?

StevenSaus , to actuallyautistic

@autisticadvocacy @actuallyautistic

In this video, I explain how bad research accidentally shows how flawed the diagnostic criteria are, and gives credibility to

(featuring a toot by @Zumbador )

https://www.tiktok.com/t/ZT8MtQy69/

or

https://youtu.be/0PtR7z0xNx0?si=v0LonRdKZzD1FFov

ahrimans_erbe , (edited )
@ahrimans_erbe@social.anoxinon.de avatar

@StevenSaus @autisticadvocacy @actuallyautistic @Zumbador
Are there any diagnostic tools created by autistic people? I know that there are autists in the field of psychology. So it would be interesting whether some late diagnosed psychologists work on better tools. I guess this monotropism questionaire goes into this direction.

Storries of people being misdiagnosed, because they can make eye contact or take part in a fluent self reflected discussion appear ludicrous.

cynaq , (edited ) to actuallyautistic
@cynaq@c.im avatar

I just did that test.

I went in blind and didn't think I'd score too high because as far as I understand what monotropism proposes, I didn't think it fit my profile very well. I tried to answer the questions as accurately as I could, without overthinking.

Well...

The result says I'm more monotropic than 73% of autistic people and 98% of allistic people.

I guess I was misunderstanding what monotropism would feel like, if these results are anywhere near accurate, because I'm quite surprised, to say the least.

Would anyone else like to chime in and discuss this with me a bit? This result was not at all what I was expecting.

@actuallyautistic

Edit: this is the questionnaire https://dlcincluded.github.io/MQ/

ahrimans_erbe , (edited )
@ahrimans_erbe@social.anoxinon.de avatar

@cynaq @actuallyautistic
If it's this test https://dlcincluded.github.io/MQ/
I am more monotropic than 60% of autists and 97% of allistic people.

Monotropism Score: 199 / 235

Your Average: 4.23

If this is a valid questionaire I like it, because it needed way less thinking and interpreting than typical autism questionaires.

ahrimans_erbe ,
@ahrimans_erbe@social.anoxinon.de avatar

@cynaq @neversosimple @actuallyautistic
That was my initial problem with realizing and relating to typical autistic social interactions. I was unaware that there is a difference. Like how should one know other people do that differently.
I thought overthinking a reply on all different levels is just a proof for being socially intelligent and empathetic. Indeed it is I believe, but it's also an indication for autism, because I was assured that allistic people just intuitively feel the answer.

ahrimans_erbe , (edited )
@ahrimans_erbe@social.anoxinon.de avatar

@cynaq @neversosimple @actuallyautistic
That in fact leaves me sometimes baffled when they say something obviously wrong which has so many room for negative interpretation. And again I am baffled when the person adressed doesn't notice.

I never had the feeling I am bad at communication. I always thought next to everybody else is.

ahrimans_erbe ,
@ahrimans_erbe@social.anoxinon.de avatar

@Jobob @cynaq @neversosimple @actuallyautistic
My wife nowadays proof reads sometimes my messages.
So I have this kind of miscommunication too. But I think the very same about communication between allistics. Like that person should feel offended. Good for them they didn't notice.

ahrimans_erbe ,
@ahrimans_erbe@social.anoxinon.de avatar

@quietmarc @sentient_water @samiam @cynaq @actuallyautistic
Yeah I really stumbled over this question. That only makes sense if you see autism like autist like things and facts and not people.
There are brilliant museums and amazingly interesting plays.
They could have asked do you prefer drinking or eating. It certainly depends on how I feel and what is offered.

ahrimans_erbe ,
@ahrimans_erbe@social.anoxinon.de avatar

@agenderfox @cynaq @anomalon @jake2 @quietmarc @sentient_water @samiam @actuallyautistic
Maybe they would come up with better statements then.
At least for me the following statement is strange:
Do you often don't know when it's your turn to speak?

If they phrased it:
Do you often make multiple unseccessfull attempts to take the turn to speak?

It would be much more easy to answer that.

ahrimans_erbe ,
@ahrimans_erbe@social.anoxinon.de avatar

@sentient_water @agenderfox @cynaq @anomalon @jake2 @quietmarc @samiam @actuallyautistic
Muhaha, phrasing it like that makes it so obvious how stupid this is! Brilliant!

ahrimans_erbe , to actuallyautistic German
@ahrimans_erbe@social.anoxinon.de avatar

@actuallyautistic
Is there any research about autism and efficiency of local anaesthesia drugs?

I did a fast search, but everything was flooded with pros and cons about using full anaesthesia or with stupid stuff like does anaesthesia cause autism.

I am asking because some years ago under surgery with local anaesthesia I felt more than I should or doctors could believe. So since nearly all my specialities so far was mirrored by autistic people, I wonder if that could be a thing too.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@strange_child @actuallyautistic
Thanks for sharing. So it might be a thing.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@ScottSoCal @actuallyautistic
Thanks, so two others already within few minutes. Hmm.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@autistrain @actuallyautistic
Thanks, I wasn't aware at this time. They reacted with additional injections, but I still felt pain. I could manage that. But if I had known I had picked full anaesthesia.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@homelessjun @actuallyautistic
I am really not familar with all sorts of prescriptive drugs and anaesthesia. I once was send to sleep for an examnination and that worked perfectly.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@finch @actuallyautistic
I do.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@ImmedicableME @actuallyautistic @ohtwist
Thanks for the info. I might have that. I have knee and shoulder problems, I can flex my fingers quite good, yogi seat was easy for me, and I can stretch my skin quite easily.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@nohecate @Zumbador @actuallyautistic
Very, very interesting. So it can take us linger to metabolize some drugs?
That statement ran a bell. I was facing zyrtec withdrawel this summer. When I said the hives started around 48 hours after stopping zyrtec, he said it can not be, because the dose is metabolized within less than 24 h. But he even didn't know this condition exists at all.
Why is it that often that doctors don't know stuff and don't believe you, even with proper research?

ahrimans_erbe , (edited ) to actuallyautistic German
@ahrimans_erbe@social.anoxinon.de avatar

@actuallyautistic
I got the information that my mother always thought or "knew" that I am autistic. I have not yet talked about it with her and I can't imagine that there is any chance I won't escalate it totally. I am 36 right now and feel deceived and betrayed. I had a tough childhood and youth. And big part of it was that she never set boundaries to me and especially my siblings. There was already a lot to forgive in the past. And I thought I made my peace with my past, my family and myself.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@26pglt @actuallyautistic I didn't talk with her yet, but she told my wife she had always had the idea. I guess it could be related to anthroposophy, or having a disabled sister that she thought about could have developed better if not overprotected. But her "knowing" about it, makes her parenting worse than it already was.
And differently from the other stuff, it is not only about the past. Not telling me up till now, makes it a thing of today. I will need some time before facing this talk.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@26pglt @actuallyautistic
Thanks! Suffering is an inevitable part of life. And I am sure one can't do parenting perfectly. With no doubt I believe my son will have reason and right to confront me with my parenting mistakes, when grown up.

Beside searching another vent, my other main intention to post this is to strongly advocate that you hide it from your kid or anybody. Life is hard enough that I assume for most this knowledge is manageable and I never read, I would have liked to never know.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@aeveltstra @26pglt @actuallyautistic
You misunderstood. I am advocating to tell your kids. I assume my son is autistic and we will sort this out together.

ahrimans_erbe OP , (edited )
@ahrimans_erbe@social.anoxinon.de avatar

@26pglt @llPK @actuallyautistic
I wouldn't say that. I could get out of this school after fith class and had given not much attention. But in university it became a special interest. I strongly believe those schools are not a good place for anyone, but especially not for us.
There is nearly no content in classes. It's cognitive squalor. Everything has a meaning, but nobody will explain. The teachers will make assumptions about your "karma" and act to it. Mobbing is "carmic cleansing". No fun!

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@llPK @26pglt @actuallyautistic
I could get out of that school, but my parents didn't break with anthroposophy unfortunately. But it wasn't forced on me anymore.
I am really happy about the side effect of pandameic that all those esoteric people acted out more than usual and public awareness was risen. At least people don't ask about name dancing anymore, but are aware that it's a bad and abusive thing.
Sadly there is still no debate to close this schools alltogether.

ahrimans_erbe OP , (edited )
@ahrimans_erbe@social.anoxinon.de avatar

@26pglt @llPK @actuallyautistic
I don't want to be offensive. But have you ever deeply read about ? All this weird Atlantis and racism stuff? That weird made up explanations everything relies on?
Like if you have bad teeth you will be bad at math. Because your ether body is responsible for tooth change and later on related to math skills. Bad teeth -> weak ether body -> bad at math. Nothing one can do about it...

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@26pglt @llPK @actuallyautistic
Or an even better one for all my autistic people out there: If a toddler would bang his head intentionally against the floor or wall (which can indicate, but I guess not necessarilys proofs autism), they say it is due release of incarnation pain. Nothing to worry about.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@26pglt @llPK @actuallyautistic
They are additionally cultivating meanest ableism. Their explanation for disabilities is that the person has chosen it themself to suffer in this life in order to get rid of charmic debt. Never trust them with taking care of a disabled person please!

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@llPK @26pglt @actuallyautistic
Thanks, but I am occupied by other topics right now. And think I have a quite detailed knowledge about it.
It's nice to know that other countries are starting to target those issues. I also noticed that france recently dropped financial support for homöopathy. Medicine is another topic on which our laws are unbelievable stupid.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@llPK @26pglt @actuallyautistic
I see. It might be of interest for @AnthroBlogger who is running a german blog and podcast about anthroposophy.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@26pglt @llPK @actuallyautistic
I am kind of triggered by excuses like that. Obviously Steiner was not a psychic, he picked up what was there. And obviously it found resonance in a group of people, which is not a big part of society of that time. But it's not an excuse, it's an explanation.
The anthroposophs make of the excuse that Steiner was a child of his time. But on the other hand they don't fundamentally oppose any of his ideas. They only state you got it wrong and don't understand.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@26pglt @llPK @actuallyautistic
No problem. It's not triggering in a harmful way, but it is impossible for me to not point that out.
It's so common that people who struggled themself with this groups will look back to it with mild ambiguity. I can only unterstand this in a way that they didn't figure out that most likely their problems with it were not individual, but systematical. And that they are maybe not aware of the esoterical reasoning on the things that they perceived as good.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@26pglt @llPK @actuallyautistic
Often waldorf school is viewed as very arty and creative. And in fact you do a lot of art and crafting there. So you can perceive this as confirmed. But doing arts at waldorf is often narrow reproduction what the teacher does and with restricted tools. In first class you get those big chunky crayons. If you would like to scetch with a pencil with distinct lines that is not accepted. Because it does not fit their idea of proper development.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@26pglt @llPK @actuallyautistic
Sorry for flooding you with that. I hope the thinking I triggered is enlightning and not stressful.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@26pglt @llPK @actuallyautistic
I want to add something that might help to get some relief when sorting something out with respect to . One has to know that communication is not open in this groups. They will not openly explain to pupils and parents what they are doing and why they are doing it. Even future teachers don't get explained everything. It's a society with inner circles. You actually have to read Steiner or look for external review on it.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@llPK @26pglt @actuallyautistic
Never heard of him. But it's maybe again something @AnthroBlogger might be interested in. Obviously there might be differences internationally compared to the motherland of anthroposophy. But I guess this whole concept is impossible to be reformed essentially. So differences are most likely minor.

Waldorf without Rudi is like christianity without jesus. Makes simply no sense.

ahrimans_erbe OP ,
@ahrimans_erbe@social.anoxinon.de avatar

@llPK @26pglt @actuallyautistic @AnthroBlogger
Ah, I see. But point is still relevant since many waldorf apologetics will claim that they are more modern and anthroposophy plays minor role. But that's not possible in the end.

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