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tomkindlon , to disabilityjustice
@tomkindlon@disabled.social avatar

I'm considering going to this protest, "“Scrap The Green Paper” coalition calls on the Department of Social Protection to "Scrap the Green Paper" on Disability Reforms." outside Leinster House on Thur, Dec 7.

Main thing that might stop me is my health

https://beacons.ai/scrapthegreenpaper

@disability @disabilityjustice @spoonies @mecfs

halcionandon , to disability
@halcionandon@disabled.social avatar
essie_is_okay , to actuallyautistic
@essie_is_okay@aus.social avatar

Chronically ill peeps! I need advice!

I am having a family emergency that requires a LOT of work from me and is incredibly stressful. It's been going on for weeks and it will continue for at least another 2. I finally have hit a flare, and was up all night in fibromyalgia agony. My stomach is upset, and I am exhausted. It is not an option for me to truly rest.

What are yalls tips for managing flares through crisis, when true rest isn't available, but I also can't afford to incapacitate myself. I am walking a VERY fine line here.

I am autistic, have panic disorder, fibromyalgia, chronic pain, CCI, and a bunch of other stuff.


@neisvoid @actuallyautistic

marzours , to disabilityjustice
@marzours@kolektiva.social avatar
marzours , to disabilityjustice
@marzours@kolektiva.social avatar
marzours , to disabilityjustice
@marzours@kolektiva.social avatar
marzours , to disabilityjustice
@marzours@kolektiva.social avatar

Philosophy and Madness a combination that makes me smile!!!

Too mad to be true II - The promises and perils of the first-person perspective

https://www.psychiatrieenfilosofie.nl/too-mad-to-be-true-ii

The second Too Mad To Be True conference that was dedicated to exploring the various links between philosophy and madness. The atmosphere was vibrant and it initiated new ways of thinking and communicating around issues of madness and philosophy. The central theme was both relevant to philosophical and mad theories and practices: ' The promises and perils of the first-person perspective'. The conference was hybrid: both in person, in Ghent, Belgium, as well as online.

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@disabilityjustice
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tomkindlon , to disability
@tomkindlon@disabled.social avatar
tomkindlon OP ,
@tomkindlon@disabled.social avatar

3/

"My doctor signed it without question. I still was not comfortable with the term “disabled” then and I was still trying to pretend I could physically do what I was longer able to do. “Passing” as able-bodied was significantly easier than trying to live with disability (or so I thought at the time), and I was coasting on denial as long as I could."

@chronicillness @spoonies @disability @mecfs @longcovid



marzours , to disabilityjustice
@marzours@kolektiva.social avatar

Sanism is normalized in relationships with institutions.
It’s not talked about.
It’s woven tightly into unquestioned assumptions (common sense knowledge)
It’s a tool for power and control.


The Wildflower Alliance

Grassroots Peer Support, Advocacy, and Training organization with a focus on harm reduction and human rights.
https://wildfloweralliance.org/

Thank you @leftvu 😍

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halcionandon , to disability
@halcionandon@aus.social avatar

Please help me find a or any willing to prescribe patches ( or dose equivalent) within the next 13 days in

Refused meds by GP who promised to prescribe until I found a new GP (he dropped me because my case is too complex). Changed his mind! Now have 13 days to find any doctor to write a script or agony for me & no control.

Time running out fast!😫

appreciated!


@chronicpain
@mecfs

@longcovid
@chronicillness
@spoonies
@disability

halcionandon , (edited ) to disability
@halcionandon@aus.social avatar

Please help me find a or any willing to prescribe patches ( or dose equivalent) within the next 13 days in

Refused meds by GP who promised to prescribe until I found a new GP (he dropped me because my case is too complex). Changed his mind! Now have 13 days to find any doctor to write a script or agony for me & no control.

Time running out fast!😫

appreciated!


@chronicpain
@mecfs

@LongCovid,pe
@chronicillness
@spoonies
@disability

sarahmatthews , to bookstodon
@sarahmatthews@tweesecake.social avatar

Another great list from @fivebooks I read Sanatorium by Abi Palmer when it was published as an e-book but it’s now also available on audio through Spiracle Audiobooks. And Sea Bean is already on my reading list | ‘Living with a long-term condition or is difficult, says Polly Atkin, the author of Some of Us Just Fall. Those affected often feel isolated, misunderstood, or frustrated by their interactions with the medical establishment. But books about will remind you that you are not alone; here, she recommends five memoirs that offer insight into the "kingdom of the unwell."

@disability @bookstodon
https://fivebooks.com/best-books/chronic-illness-polly-atkin/

marzours , to disabilityjustice
@marzours@kolektiva.social avatar
marzours , to disabilityjustice
@marzours@kolektiva.social avatar

Disability doula. Peer support. Social support. Physical support. Cultural roots.


Newly disabled people aren’t given a ‘how-to’ guide. Disability doulas are closing those gaps.
The community care practice, pioneered by queer women of color, reorients newly disabled people to a different life

https://19thnews.org/2023/07/disability-doulas-support-newly-disabled-people/

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marzours , to disabilityjustice
@marzours@kolektiva.social avatar

Open Minded Online
sharing ideas and resources about holistic approaches to emotional and social wellbeing

We are two people who both have a great passion for holistic approaches to mental health. This passion has grown out of our own experiences of receiving traditional psychiatric treatment and finding it lacking.

We believe that it is possible to make sense of intense states of mind often described as psychosis.


https://openmindedonline.com/resources/

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marzours , to disabilityjustice
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