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alexisbushnell ,
@alexisbushnell@toot.wales avatar

Looks less likely I'll get an Autism assessment having just had a letter saying they're now running a triage service and I have to contact then if I want to be put on the list to be seen by them, and if they decide I need an assessment then I'll be put on the currently 20 month long waiting list for an assessment...

alexisbushnell OP ,
@alexisbushnell@toot.wales avatar

urgh, I'm burnt out and forgot to even add the tag or group @actuallyautistic .

Basically Cardiff & the Vale are trying to put people off going for Autism assessments.

alexisbushnell OP ,
@alexisbushnell@toot.wales avatar

This is the letter I had from them.

@actuallyautistic

We have received your referral to Cardiff & Vale Integrated Autism Service for a diagnostic assessment of autism. Triage Clinic From the 1st September 2022, all individuals who have new referrals accepted by the service for autism assessments will be invited to attend our triage clinic. Information for people attending a triage appointment: Prior to being offered a triage appointment, you will be asked to return a questionnaire. You will then be offered an appointment at the triage clinic where you will be assessed by two experienced clinicians who will determine whether further assessment of autism is indicated. . If further assessment is indicated, you will be added to the waiting list for assessment. If further assessment is not indicated, you will be discharged from the Integrated Autism Service and directed to other services or resources, as required. Please note, the triage clinic will offer rapid initial access to the service; however, should individuals need further assessment the waiting time is currently 20 months. We are hopeful that the implementation of the triage clinic will reduce the waiting times in the long term.

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AlisonW ,
@AlisonW@fedimon.uk avatar

@Waiting4Thunder @alexisbushnell @actuallyautistic
If you get to an appointment and tell them you can't manage stairs then you get told benefits cut off.
If you then crawl up the stairs they decide you are mobile so lose those benefits.

Heads they win.Tails you lose.

AlisonW ,
@AlisonW@fedimon.uk avatar

@alexisbushnell @actuallyautistic
So an assessment to get an assessment for an assessment. Gatekeeping much?! 🤬

Fcksd ,
@Fcksd@todon.eu avatar

@AlisonW @alexisbushnell @actuallyautistic ❤️ I feel with you. Was at two assessments just for getting put on the wait list for an assessment (which apparently is 2+ years). This is in Sweden though, hooray for cutting funding to the healthcare system.

Thumptastic ,
@Thumptastic@universeodon.com avatar

@alexisbushnell @actuallyautistic 20 months??? Aye!

alexisbushnell OP ,
@alexisbushnell@toot.wales avatar

Very proud of myself for making myself send the "I would still like to go ahead with the assessment" email.

@actuallyautistic

seanwithwords ,
@seanwithwords@mstdn.social avatar

@alexisbushnell @actuallyautistic nice. That’s a good way to go after bureaucratic gatekeeping ❤️✊

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