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jasondj , (edited )

I swear people who talk about waiting have never visited an ER for something mundane because it’s the only option opened after 6, or who never had to meet with a specialist, or get a procedure that requires one.

Story time. January 2019. I have a 6 month old baby with mysterious rash. Pediatrician has us cut out common allergens and he clears up. Tells us to book with a pediatric allergist.

Now, I don’t live in BFE. I live in Southeastern MA. By no means an area underserved by doctors. The doctor refers us to Boston Children’s Hospital. It’s an hour and a half away without traffic, or 2 hours and 3 transfers on public transit.

The first appointment available was in October. Kids 7 months old at this point and already getting appointments for longer than that out.

We get put on a cancellation list and around March we get a call for him to be seen and get a scratch test. We take it, we are going on vacation 3 days after that and we’d love to know exactly what to avoid.

Kid lights up like a damn Christmas tree, but only one food allergy (peanuts) and it comes in like 1.5x the diameter of positive control.

Next, because of his age, they want to get him into an exposure therapy study, but he needs a good challenge first and they would call us when we got back from vacation.

Well, we came back from vacation the first week of March, 2019. BCH was now not scheduling any challenges due to the pandemic. Try again after Easter when the whole thing blows over. Then a month later. And another month.

Eventually they are booking again and after getting through the backlog of people that were cancelled due to the pandemic , the next appointment is 14 months out. By that point he’s too old for the study and we neeed to wait till he’s 4.

Well, now he’s 4. We book an appointment for his food challenge. The old scratch test is no longer good. He needs another one. Next booking for that is 10 months out, again. As luck would have it, though, we called back over and over again and eventually got a booking for his scratch test.

That was back in August. We booked his food challenge while we were in the office. It will be next October, barring any more global catastrophes or blind luck on the cancellation list. He will be five.

It’s amazing to me that there’s a person who can beat me at Smash Bros who has been waiting for a doctors appointment for nearly his entire life. And people tell me healthcare in America is fine. Those motherfuckers don’t know about this. They don’t know how much it costs every time he’s out of school for a couple of days with a fever and the school wants a doctor’s note. They don’t know that after wages, the single biggest part of their compensation package is their employers portion of their health insurance. In fact, depending on their job, it may even be more than their wages.

That last bit is important. People don’t realize how much their healthcare actually costs. They see the pre-tax line item for their share of premiums, never their employers. They see that as separate from the Medicare pre-tax item, and the vision and dental, all of which they don’t see the employers portion. They might see the bills if they got the high deductible plan, but they’re somewhat expected because “they got the ‘cheap’ plan”.

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