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MaximilianKohler

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MaximilianKohler OP , to aboringdystopia in There may be an existing solution to the chronic disease crisis, but a disabled patient seems to be the only person motivated enough to try to obtain it. And they've been failing going at it alone.

There have been efforts to change the “fecal” part of the wording, but it’s largely been unsuccessful. I personally don’t think it’s the biggest problem to focus on. I’d rather try to educate people that healthy poop is not repugnant. They think it’s gross because their own poop is unhealthy.

MaximilianKohler OP , to aboringdystopia in There may be an existing solution to the chronic disease crisis, but a disabled patient seems to be the only person motivated enough to try to obtain it. And they've been failing going at it alone.

There’s a reason sites like Reddit sprang up and grew huge despite forums having already existed.

Yeah, but it comes with many major downsides that have become more apparent in recent years. For example, even lemmy seems to get hit hard by astroturfing, misinformation, disinformation, and toxicity. That’s more rare and easier to prevent on forums I think.

It’ll expose more people to the topic though.

Yeah, I was considering using lemmy instead of creating a forum, but decided on the latter after weighing the pros and cons.

MaximilianKohler OP , to aboringdystopia in There may be an existing solution to the chronic disease crisis, but a disabled patient seems to be the only person motivated enough to try to obtain it. And they've been failing going at it alone.

I’m doubtful that creating a lemmy community would funnel people to the forum. There is a lot to like about the forum format over time-based ones like lemmy. And the lemmy software is much newer and more incomplete/deficient than Xenforo. I think creating a lemmy community might just lead to fracturing of content/discussions, which would be detrimental. Also, unless you host your own instance it’s not super reliable (as we’ve seen with reddit and other reddit-alternatives).

MaximilianKohler OP , to aboringdystopia in There may be an existing solution to the chronic disease crisis, but a disabled patient seems to be the only person motivated enough to try to obtain it. And they've been failing going at it alone.

I’m trying to make you realize that it you keep speaking of it as if it is, with only a single biased source, while not admitting the limitations, hurts such a cause greatly.

I think there may be a misunderstanding there. I certainly recognize that FMT and the gut microbiome have limitations.

There is statistically significant evidence that there’s a lot of potential here, but there is yet to be solid evidence that this actually treats most conditions.

That’s all I’ve said as well.

Anyway, you seem to think that FMT’s potential to treat/prevent most types of cancer is something that should be emphasized more. If you have specific suggestions I’m happy to hear them.

MaximilianKohler OP , to aboringdystopia in There may be an existing solution to the chronic disease crisis, but a disabled patient seems to be the only person motivated enough to try to obtain it. And they've been failing going at it alone.

Speaking of, it also wouldn’t help anyone with an organ transplant either.

FMT may negate the need for most organ transplants. Eg:

Etc.

There is evidence that it would immensely help with preventing nearly all human-cell borne cancers however, and in my opinion, THAT’S something your messaging should focus strongly on.

Human Microbes doesn’t do any specific messaging/advertising. Just the website where it covers the gut microbiome regulating the entire body and playing a major role in virtually every aspect of health & development. I would think that narrowing the focus to one type of cancer for example would be detrimental.

you’re touting this as a cure all, when really it’s a mass preventative (which again, is still extremely important and something really big).

I think the potential for both prevention and treatment exists for most conditions that are currently beyond medical capabilities. And there is a ton of evidence for this in the wiki I shared. Sure, there are some things that FMT won’t be a solution to of course.

MaximilianKohler OP , to aboringdystopia in There may be an existing solution to the chronic disease crisis, but a disabled patient seems to be the only person motivated enough to try to obtain it. And they've been failing going at it alone.

There are at least as many spam/bot signups as there are humans, so account approval negates that completely. Forums aren’t time-based like lemmy and reddit, so there is no sense of urgency. Discussions can take place over months/years. It’s possible to turn on the ability to make a post prior to registering, then when your registration is finalized it gets posted, but I’m not sure how dependable that is. I wouldn’t want people losing content they tried to post due to some cache issue.

I haven’t bothered creating anything on Lemmy. I’ve been urging the Xenforo software developers to join the fediverse. Discourse forum software is doing it, so we may soon see discourse forums show up on lemmy.

MaximilianKohler OP , to aboringdystopia in There may be an existing solution to the chronic disease crisis, but a disabled patient seems to be the only person motivated enough to try to obtain it. And they've been failing going at it alone.

y’all need some campaign and ad managers

As the blog notes, there is no funding for that.

I don’t see anything wrong with Zelle, and multiple payment options are offered.

I’d be glad to help how I can

That would be great! There are various discussions on the microbiome forum:

MaximilianKohler OP , to aboringdystopia in There may be an existing solution to the chronic disease crisis, but a disabled patient seems to be the only person motivated enough to try to obtain it. And they've been failing going at it alone.

I’d automatically assume it’s a scam, spam, or both.

Why?

The email linked to the blog. The question was asked at the end of the blog.

Even if a panacea type microbiome WAS discord, it won’t cure everything. Cancer is one immediate example.

You may be interested in humanmicrobiome.info/cancer/.

It already would be impossible for it to prevent many diseases. Viruses for example that enter through the sinuses, or again, cancers caused by viruses. Heck even then something like norovirus would still wreck you too.

This is not correct. Not everyone gets sick from x virus. The primary reason is differences in their immune system and gut microbiome. Some relevant links for you:

This sounds more like someone who knows some knowledge but isn’t an actual expert in it

No offense, but that describes your comment. The blog should absolutely not sound like that given that it provides citations for its claims.

Not to mention it’s a big ask to strangers who probably don’t even know what a microbiome is.

The 1.2 million people who were sent the email & blog are people who are already familiar with the humanmicrobes.org project. Many of them hold advanced medical & biology degrees.

I agree though that many people are still not familiar with the gut microbiome and FMT. Do you have any suggestion in this regard?

MaximilianKohler , to science in Scientists have figured out way to make algae-based plastic that completely decomposes

Do you have a citation for that? That sounds like disinformation. Compostable bags are made from plants not plastic. www.makeitmatter.com/faq

MaximilianKohler , to science in Scientists have figured out way to make algae-based plastic that completely decomposes

There are already compostable alternatives to plastic bags being sold in stores like Target. I heard one of the issues is that people/companies refuse to pay more for them.

MaximilianKohler , to science in New Class of Antibiotics Proves Potent Against Multi-Drug Resistant Bacteria
MaximilianKohler , to science in Scientists Discover New Antibiotic Class Effective Against Drug-Resistant Bacteria

Overuse in humans is far more important than overuse in livestock.

MaximilianKohler , to science in Scientists Discover New Antibiotic Class Effective Against Drug-Resistant Bacteria
MaximilianKohler OP , to aboringdystopia in There may be an existing solution to the chronic disease crisis, but a disabled patient seems to be the only person motivated enough to try to obtain it. And they've been failing going at it alone.

Yes, FMT is super experiemental. The point of the blog/website is not to convince people to buy poop, it’s to find ideal stool donors who may be able to cure a variety of diseases.

Maybe FMT is a good idea, but it’s still too unknown for me to accept it.

It can’t become “more known” unless a highly effective donor can be found. And such a donor can’t be found unless people start helping…

I don’t think FMT is appropriate to regulate as a supplement. The ingredients of supplements are known and standardized. FMT is an extremely complex and dynamic ecosystem. Yogurt is a handful of known microbes in a highly controlled environment. FMT vs yogurt is like the universe vs a zoo.

MaximilianKohler OP , to aboringdystopia in There may be an existing solution to the chronic disease crisis, but a disabled patient seems to be the only person motivated enough to try to obtain it. And they've been failing going at it alone.

Dr. Alexander Khoruts (University of Minnesota GI, Director, UMN Microbiota Therapeutics Program) made a similar comment. …humanmicrobiome.info/…/designer-hit-panel-discus…

He asks an FDA adviser “Does the FDA care more about profits or people?”, and the response he gets is “one of the missions of the FDA is to protect the interests of commercial developers”. Another question to the advisor: “How much influence does the industry have over the FDA decisions?”, A: “A lot”.

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