Well, I brought up the worst parts because it emphasises the harsh realities yoj go through with that.
But you’ll notice I didn’t speak ill of the actual treatment plan. The people I would see every 2 weeks. I’d be brought into this room, and hooked up to this machine, and the thing would take 6 hours every time. But the nurses were nice. They took care of anything they could. The one time my body rejected the chemo, the head nurse fixed things before I knew what was happening. My skin had turned lobster red, and was in the process of poisoning itself to shut down the foreign chemo drugs. This being after 3 months of treatment. I just felt my skin a little warm, and I felt dizzy. But unrelated to the cancer, I grew up being told never to ask for help. Always tough it out. Which is TERRIBLE advice. If there are any new dads out there, don’t teach your kids they shouldn’t get help when they need it.
So I’m sitting in the chair, knowing I’m burning, knowing I feel dizzy, and not sure if that’s bad enough to warrant asking for help. I’m looking at the floor, thinking “It’ll pass…just let it pass”.
And the head nurse sees me, rushes over, and starts adjusting the chemo pump. She says (not asks, says), “You’re feeling hot right now, and you shouldn’t stand. You’re dizzy, and you have no leg strength. You will fall on your face if you try. You’re having a chemical reaction, and this dosage has become too strong. We’ll lower the dosage.”
All of this, without me trying to bring attention to myself. I didn’t want to worry her, when so many others in that room are elderly. I figured I’ll be fine.
What I didn’t know is that if left untreated like that, your body will eventually go into shock. From there you could pass out. You could have a heart issue. You could have a seizure. It all depends on how your body tries to react. And she told me, in no uncertain terms, that if I ever feel somethkng is odd, to ALWAYS speak up. They’d rather have 100 false alarms than 1 ignored real issue. Which was total culture shock for me. I’m used to being ignored.
And my family were there for me too. Financially especially. I had no income. So they paid my rent. For a year. I tried to pay my sister back for a portion of what she paid in rent, and she wouldn’t take it.
So, yeah, my message highlighted the worst parts of the experience. But I had some people looking out for me too.