Actually, they didn’t mention any specific diagnosis. And you might want to read their post and history more closely, such as this line above:
I read that this is likely because the disease finally reached the part of the brainstem that controls breathing, and that if it gets worse, it may be fatal.
It really looks like OP is coming to their own conclusions by what they are reading online, not by what they are being told by a neurologist based on exam and tests, and is then being driven further into a spiral of seeing the condition as inescapable because they’ve convinced themselves of a worst case scenario.
This is probably exacerbated by their comments in the past of having normal test results and feeling dismissed by their neurologists in spite of their symptoms, which as I said is not all that uncommon. Most neurologists that don’t specialize in functional neurology don’t handle patients well that have normal test results, and may not even be familiar with the more recent research regarding functional neurological disorders.
Someone close to me is a neurologist who specializes in functional neurology, so I hear a lot about frustrations regarding the ways in which patients with normal tests but abnormal symptoms can be dismissed and feel unheard by their general neurologists, hence my recommendation OP seek out a subspecialist.
But the more pressing issue is that OP’s progress in their post history is very alarming with a number of red flags for potential self-harm in the near future (such as “hey Lemmy, how can I leave a permanent record for when I’m gone in a day”), which is especially frustrating given that what they have going on is likely treatable and their self-diagnosis and prognosis is unlikely to be agreed upon by a medical professional without positive test results, which they previously said they didn’t have.