I got my Crohn's diagnosis about 3 years ago. While it has been worth it, the amount I have spent on medication, procedures, doctor's visits, etc has kept my credit card near its limit for years and is a constant source of anxiety. This is with decent insurance. I have a job that is flexible with hours, but between flare ups and infusions, I have to miss work semifrequently and someone not in my position could be in a very tenuous state with their employer. Not to mention the stress of fighting the insurance for coverage of medications that are thousands of dollars per dose and dealing with systemic incompetence of the people involved in every stage of the process. They all fail (doctor's office, infusion clinic, insurance, etc) to communicate in anything resembling a timely manner without my constant pestering and prodding. It is torturous, and only marginally better than the symptoms themself, and I understand exactly why people forego treatment if they have deal with any one of these issues individually, let alone with all of them. Just so BCBS/UHC/etc can turn a profit off our suffering.